Recurrent Miscarriage Support Thread 16 - tests, treatment and trying again

[Justonemoretime]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

Eva, glad you found it, hopefully Kerri will be able to make an appointment for you soon. They run the clinic on Monday and Friday afternoons and you email when you get a positive ov test and they get you to come in 7-10 days later, before your next af starts. You need to not TTC that month. You'll see either prof Brosens or Quenby for a chat about your history and then they'll do the biopsy. It is uncomfortable, but you'll be fine with a paracetamol and a sleep in the car on the way home (make sure your dh can take you). You'll probably be fine to ttc straight away from the next month, and probably be prescribed progesterone from day 21-28 (continued from bfp if you get one) and heparin from in uterine scan regardless of nk results. They'll email you the results and you'll have a results consultation over the phone a few days later. Just one word or caution; some other consultants are a bit funny about such new research and protocols and you'll need to find a 'friendly' consultant at your epau to access the heparin when the time comes. I kept the Coventry letter on my phone to flash at doctors and nurses as needed. I also got my GP to arrange for a gynae consultant at my local hospital to agree in principle to oversee the Coventry protocol in advance of getting pg again as I didn't want the stress of arguing over what I could and couldn't have in those early days and weeks. Its worth being prepared. Good luck to you.

I have now had a round of applause from two of my classes for being pregnant, which is sweet of them and doesn't make me feel at all self conscious!

Good luck Eva. Sounds like Coventry is the way to go for you. At least they will give you specialist care there, sounds like it's been sadly lacking before now

Brilliant just! How sweet.

Just lit a candle to remember baby number 1 and having a glass of prosecco.

We toasted our gorgeous ratbag 3 cats, beautiful new home had that we'd do everything we could to make 2015 a better year.

And I have survived due date number 1. Hopefully this means I can survive number 2 and. 3

Hugs Brummie. xx

Justonemoretime and marchgirl-thanks loads for the support.
As I spoke to my GP a couple of weeks ago we discussed getting a 2nd opinion so I think she'll be supportive when the time comes. As I'm already under a gynae at local hospital I'm hoping they too will be the same. It's a tricky one really, I don't want the gynae to get p**d off by my actions but with the same token time is of the essence for me now. I'll let you know how I get on

Well done Eva! Really good that you're making progress.

And we'll done Brummie. Your toast sounds lovely. Hope you got some fab clothes!

Hugs brummie well done for getting through today. Better things are on the road ahead xx

Massive hugs brummie and well done for looking at all the positives. I need to take a leaf out of your book in a few weeks. Things will get better for you x

Thinking of you Brummie. Hug.

Well done on being so proactive Eva. There's always some comfort in a bit of a plan I think.

Someone asked about the dose of clexane. It was twice a day, either 20mg or 40mg I can't quite remember. Someone said about it probably didn't have a negative impact (sorry, can't remember who for both of these things). I sort of know that deep down or they wouldn't prescribe it for no reason in places like Coventry - I sort of like to tell myself it might've been a factor though because if it did and I'm not injecting this time then I stand a better chance! Twisted rmc logic. People taking it in the absence of s clotting prob should not however take this desperate theory at all seriously.

In terms of time passing, the days pass slowly but the week has gone quite quickly. I'm now the second most pregnant I've ever been in terms of days! progesterone masks mc, progesterone masks mc

Hi Twilight, I can't remember my dose, but it was only once a day and 40 units/ml (whatever units they come in) sounds familiar. But remember that heparin can't cross the placenta, so I don't think it could affect the baby? Are you still waiting for genetics? If that turns out to be the issue, then nothing you could have done either way would have made a difference. Getting the Turner's syndrome diagnosis helped me to make sense of #3. Hope you get some answers soon.

Hey Just. I've never had genetics done. The two miscarriages which have happened since I've been eligible happened so quickly there wasn't really the opportunity. If my current pregnancy doesn't work out I am absolutely determined to get genetics done. Fingers crossed I don't need to though.

Hi, sorry I've not been keeping up with thread and mostly been lurking bug just wanted to say I'm glad you got through today okay Brummie and I hope it goes well with Coventry Eva.

I've been trying to get back into work again since last Wed and not doing a good job of it. Going to speak to GP tomorrow about options of a bit more time off or phased return etc. I did go to a support session yesterday which was really good and made me realise how much I need to talk about my experience. Def recommend it.

Oh Brummie I got my BFN a day before you last week I think so looks like we might be at similar stages, although this was MC 2 for me. So looking forward to AF next. Am fighting between wanting to get back to normal so I can TTC again and being a big more patient and holding my hands up that I'm not coping as well as I want to be.

Fx for you peeps in 2ww

Anyone around for some hand holding? I've barely slept. I've never had a good follow up scan :(

Hand holding ourday. Remember, every pregnancy is different, so there's no reason to think this will end badly just because the others did.when is your scan?

Ourday what time's your scan? It's horrible waiting - I gotbthrough by playing endless games of solitaire on my phone and ignoring everything around me!

Virtual hand here ourday thinking positively for you x
Well done for getting through yesterday brummie you did it!
jade hope your gp is receptive to more time off, don't feel guilty take as long as you need, your health is more important than work
eva well done for having the strength to move things forward, I hope you get to Coventry and it all goes well

Thanks march and boozle it's 8:50 feel sick with nerves! We are currently 10 mins away and sat in nose to tail traffic which isn't helping! I am on my phone too, I've warned them I'll be late.

Thank you flower cross posting

hand holding
Godd luck good luck
what time is your scan?

Ah cross post... Good luck!!!! Hope you are not too late

Handhold ourday. Traffic is horrible but at least gives you something else to focus your stress on.

And here is an interesting question...

At my EPU they have a number of sonographers, one of which is always very abrupt and whenever I saw her I had bad news, I started to hope I would get someone different when I got called in...

So, yesterday I walked past her (hopsital is on my way to nursery pick up) and spot she is HEAVILY pregnant...

I am now curious, will she still be working the EPU where most women go when they have issues and often bad news? Will they have changed her to regular "happy" scans? Other duties?

I don't know how I would feel if I had a bad scan and my sonographer was 8 months pregnant...

tiny it's not quite as bad as charlie's mc counsellor being pg but still tough. That said my epu is full of pregnant women and I am generally feeling too self absorbed to really notice.

It was my counsellor who was pg!!
But I spotted it for sure the day I went to tell her I was stopping

Ah I got confused. That is one case where discrimination would be justified I think!