Recurrent Miscarriage Support Thread 15 - tests, treatment and trying again

[Justonemoretime]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

Oh baking I'm so sorry this is happening to you. What an appalling hand fate has dealt you - not fair at all. You're so lovely and supportive of everyone. Go 'awol' as long as you need and we'll keep you and wee Faith in our thoughts.

Thinking of you and your family baking

Glad you got everything brummie! Yes it's extremely tart and when I said cheap I suppose I meant the tea - the juice is dear! Much stronger than you expect it to taste. The tea isn't unpleasant, I even left the bag in, it's just fruity really. good luck, hope it works well for you.

Baking that's awful. Hope Faith is ok and big hugs.

We'll be here waiting for you when you in AWOL xx

Big hugs Baking. Will be thinking of you, Faith and DH x

My thoughts are with you baking and faith. She has that name for a reason and she will pill through this. Wishing you all the strength you need for the days ahead. X

Thinking of you baking

Good morning Ladies,
Here's a new thread: www.mumsnet.com/Talk/miscarriage/2285265-Recurrent-Miscarriage-Support-Thread-16-tests-treatment-and-trying-again
Thread 16 already! We are a chatty bunch! I remember joining this thread on number 7, and I am amazed how many positive stories we have been able to generate thought this supportive and informative community. Thank you to everyone who makes this such a great place to be in spite of the sad circumstance that bring us here.
See you on the other side!

*through

Finally, getting round to posting my stats.

Me:42, DH:44

DS1 born in Nov 1999 Uncomplicated pregnancy, previous relationship
DS2 born in Feb 2012 Uncomplicated pregnancy, with DH
MC 1 Dec 2012 - 6 weeks, natural MC
MMC 2 Apr 2013 -11 weeks but measured 6, natural but horrific haemorrhage
MC 3 Oct 2013 - 6 weeks, natural MC, but not much bleeding. Referred for RMC testing but in the meantime got pregnant again.
MC 4 Dec 2013 - 6 weeeks, natural MC but was suspected ectopic. Empty sac finally appeared just before MC started. Thin endometrium seen on scan.
Blood tests and scan all came back normal (lining still on thin side) and healthy. Diagnosed as "super fertile" ( no shit!) and told to keep on trying, as one might stick.
MC 5 Feb 2014 - 6 weeks, natural MC, low bleeding. Was prescribed progesterone and clexane from 5 weeks, but sac was already empty and irregular shape.

After all that, I had a proper melt down and spent days in bed watching reruns of Star Trek. I was signed off long term sick, had fortnightly acupuncture and a massive list of quack medicines to help my lining develop. Went to Coventry in May, following genetic tests, and was pregnant before my NK cell results were back. Was treated with progesterone, clexane and prednisolone as a precaution. Tests came back normal, but I continued on all meds until I was roughly 12 weeks.

I am a complete Coventry protocol convert and wish their research was being followed by other RMC units and clinics as it really feels like there was more than good luck this time round.

Am currently 34 weeks with DC3. Very happy, can almost believe its happening, and only a week and a half until I start maternity leave...

I ought to post them on the right thread really. What a plonker...

Hi
A friend forwarded this link.
My stats
Me 41 yo
DH 42

MC Sept 2010
DD born Sept 2011
Started TTC again new year 2014
MC March 2014 ERPC at 9 weeks
MC June 6 weeks natural
MMC 11.5 weeks booked in for ERPC but happened naturally before appointment (horrible). It had gone at around 9 weeks
Booked to see NHS consultant.
My bloods tested NORMAL abd scan showed NORMAL but told to take .75mg aspirin when next pregnant and to relax and try and enjoy sex etc. They had taken DH blood so they could test us both for Translocational gene but when got results she told me they don't do that test on the NHS anymore. ... also if I did miscarry to collect 'it' for gene testing then.
MC June 6th at just shy of 9 weeks.
I am allowed early scans now (which is reassuring and I know a MMC won't happen again) so 2 scans showed fine and HBP but then started bleeding and took the week off work scan was unclear re HB and miscarried on the Saturday.
The 'collected stuff' was put in a freezer bag and take away box and a rang A&E. They paged someone from gynae and told me to come in straight away. They put me in a special room and DH joined me ASAP. Gynae doctor tested 'it' which confirmed it was pregnancy tissue and he put as much of it in tube for genetic testing and rest has been disposed of sensitively. Doc checked me out to say cervix closed and could go home ... He was very sensitive and was just lovely.

I've been referred to private hospital to see if IVF or any other tests can be done. I'm not sure it's helpful as even at our older age we don't seem to have problems conceiving. Not sure what they can offer .... my questions to you lovely ladies is

1. What questions should I ask the private doctor?
2. Should I give up I was 41 in February and 4 MC in row.
3. Do you they test embryos for anything before implantation?
4. Do NHS test for the NK cells? And is NK cells called anything else?

Any other advice would be really appreciated.

It's been a really hard week ... the day I started bleeding my beautiful Sister in law safely deliver twins after IVF and a weeks after miscarriage 2 friends announced their pregnancy .... I know I have my beautiful DD who keeps me sane and makes me smile everyday but I really really wanted her to have a little brother or sister.

I'm getting some counselling but it's a topic you can't discuss over a coffee.

nice to find some support and advice from girls in similar situation.

Thanks

Hi christley this is an old thread but you can find the latest one (thread 26 I think) in the same section and it's a great source of information, support and hope. I am sorry for what you have been through.

Hi, hope it's ok to post. Here's a bit about me:
Me - 36y (yesterday!); DH 38
DD1 - born 3.5y ago after 2y of trying to conceive; I have mild endometriosis.
MC1 - Got preg in oct 2014 after 1y of trying; bleeding from the start. First scan at 7wk but had to wait a week for scan as NHS strikes; so did my bloods - hcg rose from 21,000 to 28,000 over 48h. Scan showed normal size, sac, foetus, heartbeat etc. Continued to bleed and awful pelvic pain. Repeat scan at 9 weeks - no heart beat, foetus 8wk size. Managed by MVA which was horrific and didn't work. Haemorrhaged on new years eve;

MC2 - chemical - few days late for period, +ve preg test then period few days later.

MC3 - similar to above but a few more days later

3 people at work are pregnant and finding that really hard though really happy for all of them and don't begrudge anyone but also feel like no one understands how I'm feeling. No one addresses the miscarriage anymore or asks how I'm feeling esp with the 3 pregnancies around me. As though people are too embarrassed / treading on eggshells etc. Feel slightly abandoned and alone.

Saw a lovely consultant. Bloods normal. Having laparoscopy and hysteroscopy in 10 days and am really hoping that will all be positive. Also very anxious. Stopped trying the last 2 months whilst waiting for surgery.

Freakily - passed a beige lump size of a very small tomato during my period last monday. Never seen anything like it before. Sent photo to my consultant who consulted another colleague and both said was decidual cast. Sent to lab who said had placenta etc in it from one of the miscarriages.

Was doing ok til this thing appeared. Feeling quite low in mood, anxious and alone. Feel now much the same as I did when fist had the miscarriage. Surely this isn't normal to feel lo and tearful after all this time.

Any support much h appreciated.
x

Hi christley..I am so sorry for what you have been through. It's a painful time and our emotions are not always understood by other people who haven't gone through it. I just wanted to say...you are definitely not too old to keep trying. I'm glad you're getting some counselling. Try to stay strong and positive. Things you can do for yourself are staying healthy - light-moderate exercise, healthy diet - low GI, seeds nuts, f+v, reduce sugar and carbs (to reduce insulin insensitivity / resistance). May be worth seeing someone (but would have to be privately as not offered yet on NHS) re. testing for natural killer cells which are part of our immune system and do a good job in keeping us well but can cause miscarriage. Not everyone has them, but things like endometrial scratch and biopsy can sometimes reduce the risk of further miscarriage. The tests and procedures cost between 300 and 600 pounds. Look at Professor Quenby's work in coventry..she has pioneered this work. I hope you find the help you need to achieve your dreams

medic sorry for your losses and you are v welcome to join for support, but we are all over on thread 26, this one is ancient!