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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support Thread 15 - tests, treatment and trying again

990 replies

Justonemoretime · 01/01/2015 09:02

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

OP posts:
twilightstruggle · 12/01/2015 22:33

Bootles - how very rude your colleagues are. Hugs to you.

I'm having a little wobble in my posifrickintivity just now. St Mary's (London) people: at my feedback appointment they said they'd complete TEG test when I got a bfp. When I called them following my bfp they booked me in for a scan at 6 weeks but didn't say anything about this TEG test. Do I need to worry? When did you have TEG repeated?

bootles · 12/01/2015 22:47

Sorry not to name check everyone, but have to say that honestly, I love you ladies. Thanks so much, its really helped and the perfect day for a foul language fest.

Thing is my job is medical, people should know better, meant to be good at the touchy feely stuff. Evidently not. Big characters. I did consider the tactical overshare. No doubt if I had agreed that I had indeed been off with a mc and it was my 5th...they would have been shamed into silence. But then I feel sort of vulnerable that people know.

Genetic counsellor is not my 'counsellor' as such, I saw her after tfmr, and have always discussed every loss with her since. Definitely the expert when it comes to chromosomal issues.

Hmm OH...its unreasonable of him to care who I tell at work, it's true. This evening I think he realised it wasn't a great comment to make, as he has offered to do all manner of housework. I did say 'offered' not 'done'. I think he feels like a failure for not managing to produce another healthy child and that I should avoid this sort of work situation by never having told people about the first two. For work reasons it was helpful for a few people to know at that time.

bootles · 12/01/2015 22:57

twilight I had TEG repeated at 6 weeks too, at St.Mary's. I don't think there's any point in doing it earlier as your body wouldnt have had a chance to show any changes in TEG. I think an increased TEG would cause tiny clots in the placenta and there isnt really a placenta yet at 6 weeks..

ourdaywillcome1983 · 12/01/2015 23:23

bootles sorry you had such a rotten day and for the wankers and their insensitivity - well done for surviving it Flowers

TinyTear · 13/01/2015 06:41

Twilight, they repeated my teg at 5.2w and then scanned at 6w

TinyTear · 13/01/2015 06:42

And I am now open at work. Yesterday talking about age gaps as I will have just over 3 years I did say clearly, well, if it hadn't been for my 2 MCs after DD I'd have a 6 month old by now...

Original poster
Justonemoretime · 13/01/2015 07:13

I actually never told st Marys that I am pg again as I went with the Coventry protocol, but if I had they had told me that they would have done it between 6-7 weeks, which seemed late to me given my 6-7 week loss history. They may do it a bit earlier, though. I think they only do it on Tues or Weds but perhaps they'd fit you in if needed.
Bootles, so sorry your first day back was so awful. Hope things are better today.

OP posts:
Original poster
Justonemoretime · 13/01/2015 07:17

Mrsdiddlydoo, I can 100% recommend Coventry. I wish I'd known about it and gone there after mc #1. Its £360 and you have to not be pg. Some say you need to be 2 afs clear of mc, but that doesn't seem to be consistently enforced. Good luck.

OP posts:
longestlurkerever · 13/01/2015 08:00

I had the repeat teg at 8 weeks but tgat was because i was away. I did tell them about my bfp before i went but they said it was too early to go in.

Can i have a mini hand hold? On my way to my 20 week scan. Nervous!

Boozle80 · 13/01/2015 08:02

Longest massive handhold coming your way - just keep in mind how far you've come. You're 20 weeks! Let us know how it goes - what time is it?

twilightstruggle · 13/01/2015 08:15

Thanks guys. I think on balance I feel reassured. If you get a positive TEG in one pregnancy does that mean that it's likely your blood goes sticky (if I've understood what TEG is testing) in every pregnancy or is it some off thing?

Holding your hand longest. It feels like that's come round so quickly - although I suspect not to you!

tannyLoo · 13/01/2015 08:15

Longest hand holding here too. I was worried about mine as well, but I'm sure it'll all go swimmingly. x

Original poster
Justonemoretime · 13/01/2015 08:22

Hand holding for you Longest, I'm sure it will be fine! x

OP posts:
Sunandrainbow · 13/01/2015 08:24

Longest - big hand hold from me too. Hoping all goes perfectly for you today.

Sorry not to name check all - I haven't posted for a few days as found last week back at work really tough, but have been reading and the positivity of this thread has really kept me going - thank you ladies.

TinyTear · 13/01/2015 08:26

longest BIG hand hold!

And don't worry if they can't see everything, with Newbie I was sent for coffee and cake, jumped around and they still didn't manage to see her face and heart properly and had to go back after 3 weeks

Belleende · 13/01/2015 08:35

bootles other people can be hell, as so well illustrated by your colleagues. But it is over with now, so hopefully they will back off. I am afraid that your dh will need to suck it up a bit. The number one priority is that you have the freedom to manage your situation to make it as easy as possible for yourself. Consideration for dh's bruised pride or whatever comes a very poor second. Give him a kick up the arse from us.
MNHQ very sorry ladies, I was led to believe you was wiping out the swears. Turns out to be a vicious rumour, but it was started by a woman who puts chilli on her cervix for fun, so I wouldn't mess if I was you.
monten ta muchly for the name shout out.
boozle you are a bad influence, I swore I wouldn't do it and it may be the end of my dp, but I have a doppler on the way. I blame you entirely for the consequences.
tiny sucky news about gd, you seem remarkably sanguine. I suppose you have had worse news.
longest get you 20 weeks! Hand hold on the way. Good luck. Dare you not to weep. I am crying at everything these days.
Donut is making itself felt a bit more these days. Wore trousers that were a bit tight yesterday, donut had a good whack at the waist band until I undid the button.
Too many others to name check but hello and hugs to all.

Marchgirl · 13/01/2015 08:36

Hand holding longest. Bet you're excited to see your little one again, even though you're nervous. Best of luck Flowers

tannyLoo · 13/01/2015 08:58

Belle that made me snort! Thanks for that!Grin

longestlurkerever · 13/01/2015 09:00

Thanks all! Scan is in a minute. Bus strike meant train was rammed and had to leave dh to get the next one. Dunno if he is going to make it in time! X

TinyTear · 13/01/2015 09:07

Belle, yes, bloody tears...

in this pregnancy I have cried at:

Stick Man - the stage show
Theory of Everything Trailer (not even seen the whole film yet)
John Lewis christmas advert
Interstellar, the film
Humming "we'll meet again"
This morning reading about children in Pakistan going back to school

Blooming hormones!

Boozle80 · 13/01/2015 09:26

Lol, I booed at my DD sleeping in bed... Need to get a grip - she does it on a nightly basis and its going to get hard work if I can't vheck on her without bursting into tears!
Belle I love my Doppler - OH has to live with it - he actually quite likes it to - I tried getting him onboard by getting him to do it but he seems scared of it, he does love listening though! Which one have you got? Can I say, your post this morning made me chuckle lots - great way to start the day!

Boozle80 · 13/01/2015 09:27

Too not to, I'm a teacher for gods sake! I'm going to hang my head in shame...

bakingtins · 13/01/2015 10:14

Longest hand hold from me.

longestlurkerever · 13/01/2015 10:24

All good! Dh made it just in time and they think another girl which will delight dd. It is fuelling our conspiracy theory that my family can't carry boys. None born on my mum's side for four generations and my grandma was one of five.

BettyButterchops · 13/01/2015 10:32

Wonderful news longest :) Not been on here since about thread 11 (mc3 was end of March 2014) but do check in now and then to see how you're all doing have had my fingers crossed for all of you. Just wanted to say sorry to see so many have joined in sad circumstances since then but heartened by the number of pregnant ladies too. Wishing everyone that much wanted baby, or at the very least some much needed answers for the new year ahead. Betty x