Recurrent Miscarriage Support thread 14 - tests, treatment, trying again

[Justonemoretime]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

Hope they will just do it on Saturday longest and then they can put your mind at rest. Talk about a bad time of year for your poor DH to go on a strict diet though. Be sure to let us know how he gets on. Here are some to let you know I'll be thinking of you all. XxX

Argh just lost a long post! So again in brief...

march glad the structure of your uterus looks goodgood

flen I totally agree with everyone else: private probably wouldn't benefit you at this point; heparin will only ever be given once a pg is confirmed as intrauterine (ectopic plus blood thinners = potential disaster); for aspirin the advice now seems to be to give it later as it can interfere with implantation (though not all consultants agree); progesterone either from CD 21 or bfp.

I did TTC before my rmc results were back (I do have a DS though so figured tbat ruled out any major clotting issues etc) and got a bfp at the same time as the results. They repeated the TEG, and said it was abnormally raised and put me on clexane.there was a?it of stress running round to get it That turned into my 4th mc, and the consultant later said I shlu!d never have been given the clexane as my TEG in pg was fine. I'm just re!aging that tale as an example!e of how frustrating it is when professionals have differing opinions or get it wrong. I totally understand why you are feeling tearful and wobbly. You WILL negotiate your way through this, and we are here to help as much as we can.

Such a personal decision with the TTC, but good you have a consultants appointment lined up for Jan, and asking more questions now sounds like a good plan. Hugs xx

Yeah that was brief....

And longest hand holding for a different type of scan on Saturday. Keeping everything firmly crossed that he is fine, and at least he'll have it out of the way. Hugs for you both x

Glad your OH had his appointment through, and I suppose sooner rather than later is best. Hopefully it will put your minds at rest before Christmas. I'll be thinking of you both on Saturday x

Loads of typo's there, was rushing.

Scanxiety for tomorrow, I really do feel somewhat mega-stressed.

cat your post made me well up, mind you I seem to be crying at lots of things these days.
flen how frustrating for you. Having the nurse be so distracted when you are trying to get some answers is just plain rude. I think these pages contain some of the most consistent advice.
longest what a crappy time of hear to be having your insides poked about with. That said with any luck you should get some answers quickly and hopefully go on to enjoy the rest of the holidays. All the best to you both.
bootles I was wondering who was up next. Is it today or tomorrow, your post was just before midnight, so I wasn't clear. How many weeks will you be? Lots and lots and lots of luck.

Good luck today bootles. Hope you got some sleep

Good luck bootles and good luck for tomorrow mrlongest

Good luck today Bootles, hope it goes well. What time is your scan?

Thanks, its today at 12.40. I am meant to be 9+1 (minus 4 days though for late ovulation). Plenty to do to stay busy this morning though, and DS refused to sleep last night so my evening passed quick.

Hope it goes well today bootles, and thank you for your advice. It is getting clearer in my head now. Thinking of you today.

longest just not what you guys need right now! Here's hoping it all goes smoothly and your OH is fine.

Good luck Bootles!!

Good luck bootles. Everything crossed for you x

Good luck bootles!

And also for Mr longest tomorrow!

AF has arrived

Sorry cloud how disappointing. Another new month is another new start, have some mulled wine & champagne over the next couple of weeks, enjoy yourself over the Christmas break! xxx

Cloud . 2015 will be a new beginning. Xx

I have just suffered my 2nd miscarriage in 9 months.
When I went for a scan first time round my uterus was empty but lining was very thick and I had a strong BFP for a few weeks after the loss. A couple of days after the scan I passed a large fleshy mass it didn't really resemble anything ( sorry for the details) not sure what it was and how it didn't show up on the scan.
So this time round at the scan it showed a elongated gestational sac but nothing else I should have been 11 weeks.
What I am trying to find out is does it sound like there was something wrong with the development at the beginning of the pregnancy like an abnormality. I read that it's unlikely to be the case twice in a row.
Just trying to find out what went wrong and is it likely to happen again.
Sorry for going on. X

Sorry to hear that cloud . But as the others say, new start for the new year. And this is going to be your year.
Hi sj and sorry that you find yourself here. It's really difficult to say what has happened. It sounds like maybe with the first one it was perhaps already on its way down which could explain why it didn't show up on the scan.
They don't tend to do any testing after two,which is just awful when you're in that limbo.even when they do test,they don't find a cause in 50% of cases, and docs often put it down to 'bad luck'. I don't buy it and i think it's more likely they just haven't discovered the process that causes them yet.
I think the stats go a bit like this. The background miscarriage rate is somewhere around 20% or 1/5, so the chances of having 2 in a row by chance are 4% (1/5×1/5), and of 3 in a row by chance are 0.8% (1/5×1/5×1/5). However the actual rate of 3 in a row is around 1 to 2 %, as there are other processes going on which are above and beyond 'chance'.
However, as little or no research is done on anyone who has had fewer than 3, then it's entirely possible that a lot of these people are actually affected by a 'not chance' thing that they don't yet know about.

The good news for you is that you still have a really good chance of being successful next time (over 75% I think), but I know it's really hard to concentrate on the positives right now.
Might be worth speaking to your gp and seeing if they will take some bloods for basic tests. Also the results of the PROMISE trial were due out a couple of months ago. When they are released they are expected to show that progesterone helps some people in early pregnancy, so on the back of that you may be able to get them to prescribe, although I suspect again they may not prescribe till after 3. Sorry you are going through this. It's just shit, isn't it.

sj - Sorry to read your story. Very early losses are often caused by chromosomal abnormalities or problems in implantation. The latter can be caused by a hormone imbalance (generally not enough progesterone). It's difficult to say which without genetic testing of the "products" (sorry for the terminology). march is right that the NHS don't normally do any testing after two but you could ask for a hormone profile to be taken by your gp. Some of us have managed to push for a referral to a recurrent miscarriage clinic after 2 - normally with more success where there are other issues eg difficulty conceiving. Others have gone down the private route. I don't know if that would be an option for you.

Others still have gone on to have a healthy pregnancy third or fourth time round without any diagnosis or treatment. At the moment there are 11 pregnancies on this thread currently doing well, and there is plenty of support and advice for everyone at all stages. Pull up a chair and we'll get the kettle on.

xx

longest ?

cloud sorry to hear that. Get riotously pissed over Christmas and see what the consultant says in January.

sj welcome and sorry to hear about your losses. A second loss is really difficult, it's hard to swallow the 'bad luck' line a second time doesn't stop the NHS trotting it out as many times as necessary but nobody takes you particularly seriously as someone with an issue. march is quite right that chromosomal losses are v common so it may just be you've been dealt a really shitty hand, but it's hard to shake the feeling that something is wrong. Some GPs will be sympathetic and run some of the simple tests for you - can't hurt to ask.

Quick update.. good heart beat, grown 10mm in 10 days, dates at 8 plus 3 and am meant to be 9 plus 1 but i know i O'd late, and got a late bfp..so i think thats reassuring.. in shopping centre on phone so hope mskes sense!

Yay bootles ?hat a great early Christmas present!

I have exactly no idea why the 'w' is wearing a little hat. Getting into the Christmas spirit??

Fab bootles. Lovely news

yay bootles!!