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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support thread 14 - tests, treatment, trying again

999 replies

Justonemoretime · 29/11/2014 17:38

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

OP posts:
bakingtins · 05/12/2014 12:46

I did go after one cycle but that was in summer of 2013 and they seem to have changed their protocol since then, everyone I've heard of since has been told two cycles minimum. The do tell you to go forth and TTC straight away, before getting your results - the scratch is supposed to be beneficial for the first few cycles, and if you get pregnant straight away your results ought to be back by the time you get a BFP (didn't quite work for tanny) I got pregnant first cycle after testing having started the progesterone, and was able to get the pred from BFP and the heparin from a week 5 scan.

Personally I'd book Coventry, use contraception on holiday, enjoy a drink, go on 22nd, enjoy Christmas and new year and TTC in January. New year, new start. But that's me, and I'm v biased pro-Coventry!

bakingtins · 05/12/2014 12:48

belle thanks for sharing Wink

ourdaywillcome1983 · 05/12/2014 12:59

Thanks TT and longest i am ridiculously impatient so this wait for referral and tests has been enough, im not sure i could manage more!
Bakingtins if youre reading, did you tell them that it was just 1 cycle?

ourdaywillcome1983 · 05/12/2014 13:01

sorry bakingtins we must have been typing at the same time!
My only problem with the 22nd is i actually only land on the 22nd in manchester, cases an all, at 7.30am so im not sure logistically it would be doable?

longestlurkerever · 05/12/2014 13:05

I suppose on the other hand one day if you did wait till 22nd, that would be it all over and done with and no having to stop ttcing to go next year. You also get quite good care in pregnancy, albeit remotely, from what I've seen on here, and can have things like progesterone prescribed from day 21 of your cycle. 22nd is just over 2 weeks away. Up to you though! As I say, I decided the opposite!

TinyTear · 05/12/2014 13:08

the clinics are in the afternoon. i went up from London on the train

longestlurkerever · 05/12/2014 13:11

It's just over 2 hours from Manchester airport to Coventry, oneday, with a change at Crewe:

www.thetrainline.com/buytickets/combinedmatrix.aspx?Command=TimeTable#Journey/MANCHESTER%20AIRPORT/COVENTRY/22/12/14/09/00/DepDep/1/0

What time would the appointment be? Would be a crazy day right before Christmas, you're right, but I went more or less straight from Heathrow to the EPU on my way back from Oz as I felt it was better to get it out of the way before having to go back to work (and did I mention I'm impatient? Wink )

SashaKerr · 05/12/2014 13:16

This reply has been deleted

Message withdrawn at poster's request.

longestlurkerever · 05/12/2014 13:20

sasha - you poor thing. Some time off is needed I think. Hope you get a chance to rest over the weekend.

ourdaywillcome1983 · 05/12/2014 13:26

i will have to see when i ov and go from there. We are driving to the airport so we would have to drive down and i would want a shower first. The last day they can see me is the 22nd and then they are closed, so its then or January ovulation.

ourdaywillcome1983 · 05/12/2014 13:27

sasha please go easy on yourself. I had the medical tablet for my MC on a saturday and went to work on the monday, when i look back on that i feel as if i was hungover, just a body and not there mentally. Please take it easy

ourdaywillcome1983 · 05/12/2014 13:32

Thanks for checking the trains for me longest that was a very sweet thought :)

TinyTear · 05/12/2014 13:34

Sasha, take it easy... with MC2 i had the erpc on wednesday, off thursday and worked from home on friday... even that was overstreching myself...

cloudjumper · 05/12/2014 13:36

belle Share away, we are all here for you Grin

ourday I can completely understand your impatience, but if you look at it within the 'grand scheme of things' - is another month going to make that much of a difference... If you make a conscious decision to take a real break, it might actually feel like a relief! But that's just my pennies' worth, to add to the mix Smile

It's so busy here, I can't keep up! Sash I am also a control freak who wants to be in charge of everything, and the increasing age gap is also causing me much grief. The lack of control and how I not deal with it has been the topic of many a counselling session...
By now, there will be more than 4 years between DS and any prospective siblings, which was never the plan Sad But I am also now happy to take whatever comes my way, I have to accept that I have no control over this anymore (or at least try to). I really don't think that it influences in any way how siblings get on, as so many others have already said - after all, being friends depends on people's personalities, not their age.

On an unrelated topic - have any of you seen the video with the woman having a go at the anti-abortionists that's currently going viral?! I just love her...

As for me, I am currently ovulating and stressing about dtd as usual. Already panicking we missed the boat again - very strong OPK on Wednesday evening, dtd. OPK line still present last night, but much weaker, Cbfm only saying 'High' yesterday and today. Did not dtd last night, but will try again today - I really don't want to get another bladder infection, but at the same time, I am worried it'll be too late. Confused Argh! Why can't this be easier?! Why do I have to devise strategic insemination plans like for a WW3 battle, whereas others just fall pg without batting an eyelid?! So unfair.

longestlurkerever · 05/12/2014 13:44

It sounds like you've covered the bases cloud. Good luck! xx

ourdaywillcome1983 · 05/12/2014 13:54

cloudjumper i did read the story, the woman is fantastic, not watched the video yet.

I know what youre saying about another month and if i was reading anyone elses story i would be saying the same but becuase its me ist another story haha! will speak with hubby tonight and see what he says, if i could gaurantee OV so i knew i could go on the 22nd i would annd then as you say its only one more month, but its 2 if i miss that window. And then an evil little thought makes me think how do i know how much time i do actually have to waste? I'll see what sense my hubby has to offer.

Good luck cloud sounds good to me :)

bythesea82 · 05/12/2014 14:10

Hi all and particularly hi to the new faces, seems that you have been given good advice by the lovely fairs team Smile
Just popping in as saw te consultant this morning for results. Bloods all normal, tissue from last miscarriage had genetic abnormalities. So basically they said looks like 3 times unlucky and better luck next time. Not sure how I feel. Good to have a definite answer on why it happened and makes it easier knowing that there was something wrong. No reassurance for next time though, so it'll just be fingers crossed for 4th time lucky! Not looking forward to getting to my 10 week danger point again Sad
flen hope you get your results later and you're ok x

bythesea82 · 05/12/2014 14:12

cloud good luck for this month. Have to say have been loving the enforced TTC break. Might extend another month or so even though nothing to stop us starting to try again. My brain feels better than it has in a long time, scared to get on the crazy wagon again!

longestlurkerever · 05/12/2014 14:18

Glad you got your results bythesea and have a partial answer at least. I too hope it is 4th time lucky for you. Did they make it clear that it was a random genetic abnormality rather than something inherited?

bythesea82 · 05/12/2014 14:36

Yes, he was clear on that, said really nothing to worry about in that nothing to indicate it would happen again. I guess we'll see!!Confused

tannyLoo · 05/12/2014 14:39

Wow! So much to catch up on!

Welcome to the thread, as you can see we are a grumpy, opinionated, forthright and welcoming lot! Between us all, there is such a wealth of knowledge and understanding...

I think I echo baking, for me I was definitely on my last try after 5 early MCs and age 42. The age gap wasn't what got to me as much as my ticking clock, and feeling that the quality of my eggs must be diminishing. I also had to have an end to all this, and the emotional strain of putting my life on hold was really taking its toll.

I am also a Coventry "success" story, being 27+3 weeks, which is major! What I would say is that of the Coventry successes, only 2 are due to treatment for high nk cells, the rest of us have been treated with the standard protocol, which I believe works because it focuses on implantation and the lining, making it receptive and selective. This stops it from being about treatable vs unknown causes, and means that we have all been seen as treatable. So much value in this!

I also advocate stepping off the TTC train for a few months if possible, indulging in some R&R, sorting out life and work stresses and working on your general wellbeing. When you do get pg again, it is immensely draining, so having some reserves helps...

I may be pg, which is wonderful, but I still carry emotional scars from my journey, and am still healing. That's why this thread and these women are so wonderful.

When I have a wobble, the support is there, so thank you again for making me feel it's OK not to be OK Blush .

In the time it's taken me to write this, there's probably been another whole conversation happened!

tannyLoo · 05/12/2014 14:42

Sorry, some of that doesn't really make sense! I was typing with a wriggly, sleepy two year old on my lap...

ourdaywillcome1983 · 05/12/2014 15:03

hi tannyloo can you tell me what the standard protocol is from them? Sorry if i missed it earlier! My cons has said he will prescribe progesterone supposotries

tannyLoo · 05/12/2014 15:11

Hi one, we all had a uterine biopsy, which delivers the scratch factor, encouraging growth (I've had a very thin lining in the past), then progesterone from one week post ov until 12 weeks if pg, or AF if not pg, and heparin injections from sac being seen at early scan, which is usually around 5 weeks. That also lasts until 12 weeks. Mine was started earlier as I cried down the phone that I usually MCed at less than 6 weeks, so they fitted me in for a scan at 4+3.

tannyLoo · 05/12/2014 15:11

Sorry, I meant our!