Recurrent Miscarriage Support - tests, treatment, trying again - thread 12

[bakingtins]

Welcome everyone! A thread for anyone who has suffered recurrent losses and is in need of support, information, moral support or tea and sympathy. Newbies very welcome.

Please can we start (as is traditional) with a recap of where we are on 'the journey'.

I know, it's bonkers! I've got tons of it all, and would love to pass it on, but know it's not allowed...

Well Charring Cross think it was not a molar pregnancy! Which is the good news. Bad news is...not enough tissue left over for karyotyping. Ah well, you can't have it all!

Happy Friday everyone - I'm looking forward to this eve to celebrate coming back to a none day week at work... Or perhaps I will just go to bed . Anyone up to anything fun this weekend?

*nine not none.

Phew - that must be a relief bristolian

Nothing massively exciting this weekend except another couple of excursions with mad squirrel-chasing dog.

Good news! Enjoy your wine...

No plans for the weekend further than volunteering at my local parkrun

Great news Bristolian, enjoy your .

No plans apart from trying to get the house back to some semblance of tidy before starting work all over again on Monday.

We might make it out for a bit on Saturday as it's our first wedding anniversary. Sadly I joined this thread just before my wedding last year when I was newly pg with my 3rd MC, and mc'd less than a week after the wedding.

Well, I still believe that what doesn't kill you makes you stronger...

Happy (wedding) Anniversary tanny
Think what a difference a year can make when the anniversary comes around. Hugs.

Bristol Every cloud and all... Bummer about the karyotyping, though. Hope you can relax a bit now! I don't know anything about molar pregnancies, other than that you apparently have to wait quite a long time before ttc again, is that right? Do you think you might get back on the wagon now (if you are not already on it)?

No plans for the weekend, other than swimming lesson with DS tomorrow. He needs new shoes... But I am not feeling very motivated to venture into town to get some, urgh.
Might do some baking... Want to try the sweet bread from the Bake Off Technical Challenge a few weeks ago. DH made is as I was away at my mum's that weekend, and it tasted amazing.

Speaking of anniversaries - we had our 6th wedding anniversary last Saturday... Went out for a lovely dinner, all organised in secret by DH (including a sleepover at friends' for DS).

Sadly, now is also the time of my EDD for my last mc I have been very down in the last few weeks with this, always thinking 'I would have had my baby by now/would be on maternity leave/etc'. It would have helped to be pg again, but sadly, it wasn't meant to be.

It sucks, it really does.

Bristol, glad its not a molar, but sorry about the no karyotype. Enjoy your .
Cloud, sorry you're feeling down. Hope things turn around for the better soon. Your DH sounds fab!
Tanny and Tiny, it's annoying about the meds :/
As for me, I think the NHS may just come through for the HSG as I have been ringing the consultant's secretary daily . I have a provision 'date window' for October half term. She said that if we miss that I can always have it in November to which I replied that I'd waited long enough and could literally have had 3 children in the time this sorry saga has been going on. So they're going to try to fit me in in October. I'm on the 2ww and have been good this week with etc. but will have a small one tonight as out with some friends. Maybe I will be pg this month and not need the HSG! Here's hoping!
Have a good weekend, everyone!

Thanks all... You are a lovely lot!

Tanny happy anniversary. I hope you can enjoy it and get royally spoiled!

Cloud am off the wagon as awaiting some surgery on a painful ovarian cyst. Quite enjoying the break actually (and I am not strong enough for 3 mc in a year so putting off TTC suits me at the moment!)

End of this month would be EDD for my 1st mc and I am totally guilty of thinking 'i would have been on maternity leave by now'. This whole thing is completely rubbish and does indeed suck.

Yes, Tanny, happy anniversary. Hope you have a lovely time. Look to the future. :)

Lovely ladies it's been a busy day on here whilst I've been entertaining my three year on my own, first time since last mc and I'm out of practise- definitely ??o'clock!

Tanny- happy anniversary & Bristolian good news x

We have a busy weekend catching on house renovations we have put off this year due to the pregnancies. Also have Sing Along with Frozen. Not sure who's more excited! ??!!

Hey folks. Watching the walking dead. Shit scary!!

Sorry for people with edds. They are awful and this whole thing sucks.

I bloody love frozen -

Just - really really hoping this Is your month.

Happy anniversary Tanny.

Walking dead update... and its very sexist! Has anyone watched it?

October is also edd from my last one

Yep, and me. The one that nearly broke me. Hugs all round x

Hello all.
I seem to be v late to this but hopefully it's ok to still join.
My history
DD born Aug 12. V straightforward pg (if only I'd appreciated it more!)
1st MMC jan 14 (discovered 9wks but didn't complete m/c til 12.2 after 2nd attempt at medical management)
2nd MC (thankfully natural) jul 14 (8wks)

3rd MC happening now. Would have been 8 wks 2 days today but scan yesterday showed a dead baby. Another missed one as no bleeding. So sad after a heartbeat seen only a week ago. Took tablets yesterday for medical management and once again it looks like it's not been successful, so booked in for more tablets on wed if no progress before then.

Last 8 weeks has been hellish with the worrying and stress, and the thought of having to go through that again scares me more than anything else.

My only positive is that at least they will do some tests now. Just feels so hopeless though.

Hi marchgirl you are v welcome to join, this is a rolling thread, newbies join whenever they are unfortunate enough to "qualify". it's the club nobody really wants to be in, but on the other hand the women on here are a fantastic support so I hope you'll find it helpful.
Most of the tests you'll have are blood tests and can be done at any time, for some you need hormones to have all settled post MC. I know it is grim, but when/if your MM does work, try to catch the sac for genetic testing I used a sieve and put it in a clean pot then take in to the EPU and ask for genetic testing on the embryo/foetus. It makes a big difference knowing if you lost the baby due to a genetic defect or if there is a maternal reason for the losses, and if it's genetic whether it's a spontaneously arising thing like the trisomies, or if it's an abnormal copy of a gene that you or DH might be passing on in which case you both need a blood test for karyotyping. If you end up needing surgical management then ask that products are sent for testing, don't assume they will automatically do it.

Hi Marchgirl, so sorry that you find yourself here. Horrible that you're going through it again. I hope that everything is as straightforward as possible and your physical recovery completes soon. Are you going to get the products (sorry to use that phrase) tested? You are entitled to have this done. Have you considered an ERPC rather than medical management? That way, they have a much better chance of keeping everything sterile and it goes directly for genetic testing. This information will be very useful in your testing and diagnosis going forward. Do you know where you will go for testing? This may help you know what to expect from the testing process.

Frustratingly, 50% of couples never find out an obvious cause, but this is a good outcome as you still have a very good chance of carrying to term. Many 'found' causes are treatable, and they will advise you. Bear in mind, however, many local services might tell you that aspirin 'can't hurt', but, latest research says that it can interfere with implantation, so, unless you have a diagnosed blood clotting issue, avoid it. This is the advice from the specialist centres, but local services don't seem to have had the memo... Good luck!

Sorry marchgirl was interrupted earlier, hope I didn't come across as unsympathetic as we all know how devastating it is. The other thing I was going to say is that it's recommended not to TTC whilst going through the testing process, and since it sounds like you've had a bloody awful year the enforced break will probably do you good. Focus on getting strong, whether for you that means counselling, losing weight, exercise, or chocolate and vino. The testing is likely to take a couple of months by the time you've got your appointment then waited for results. The NHS tests find a reason about 50% of the time. You may want to consider what you'll do if no reason is found. Many of us have been up to Coventry for immune testing if we got to that point, but it's only available privately.

The books I mentioned up thread are still up for grabs, ladies, if anyone wants them? The John Cohen one in particular is a good overview for any newbies ~ marchgirl if you want it, it's yours.

Baking, is one of the books 'Is your body baby friendly?'? If so, I'm interested. Sorry, I can't find your original post. Will look properly later. :)

Hello everyone. Sorry I have been silent. Have been without internet for a week. In Sydney now for our last night before hideous flight home tomorrow. Have been reading the thread. Yeay to tiny. Really delighted. Sorry to twilight, marchgirl and everyone else having a rubbish time.

Everything still ok here. Have a scan on wed which I am really terrified about. If I see a heartbeat it will be the first I have seen since dd. But I still can't imagine it going any differently to the others, even though my symptoms are slightly more promising this time. Feel pregnant enough to keep me hoping without being sick enough to be properly reassured.

Tanny we share a wedding anniversary! I had a great one this year snorkeling at the reef. Xx

just yes it is. Pm me your address.

Thanks Baking, I have done. At least I think I have. Let me know if it doesn't turn up.

Hi lurker, I was wondering how you were... Good luck for Wednesday.

I told my parents and sister today and I'm scared I jinxed it now... 14+1 eeek