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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 12

978 replies

bakingtins · 13/09/2014 20:32

Welcome everyone! A thread for anyone who has suffered recurrent losses and is in need of support, information, moral support or tea and sympathy. Newbies very welcome.

Please can we start (as is traditional) with a recap of where we are on 'the journey'.

OP posts:
Purplefrogshoes · 08/10/2014 09:21

Got scan doom, waiting outside epu, I was given no reasons for my miscarriages either but they did mention my age (38 today)

girliesaints · 08/10/2014 09:49

Purple & twilight- thinking of you both x

twilightstruggle · 08/10/2014 10:34

Good luck purple - thinking of you

TinyTear · 08/10/2014 10:42

good luck purple

Tranquilitybaby · 08/10/2014 12:42

Thinking of you purple xx

Purplefrogshoes · 08/10/2014 12:46

Heartbeat found Smile but they reckon I'm 6 and a half weeks but I'm worried as I should be about 8, my cycle is between 31 and 37 days and I have a retroverted uterus so I'm trying not to panic. The doctor that scanned me is perfectly happy, said it matches perfectly to what was seen on last scan and told she to book with the midwife. It was an abdominal scan, does that make a difference?

Twilight the tests I was given all came back fine too and I was given the bad luck/ age rubbish too even though my miscarriages have all been different and it's terrifying to just jump back in to TTC

Hope everyone is doing ok

TinyTear · 08/10/2014 13:13

With a retroverted Uterus and abdominal maybe they didn't measure as accurately... did they book you another scan in a couple of weeks?

I would try and get another one!

But tentative good news and a quiet yay

Purplefrogshoes · 08/10/2014 13:15

Thanks tiny, I have another booked in 3 weeks but she insisted I book in with the midwives now but I'm a bit reluctant

cloudjumper · 08/10/2014 13:33

Blimey, so much going on here, I can't keep up!

purple With long cycles like yours, there is quite a lot of room for error when it comes to measurements. Do you know when you ovulated in the cycle you fell pg? Try not to worry, a week and a half out is easily corrected. Will you be getting another scan soon? Remember, it is all woefully inaccurate this early...

twilight Bad luck I can accept (only just), but an age of 32 as reason for mc?! Honestly, that is a bit ridiculous. Don't they know the stats?! I'm 42 and have been told that I still have a very good chance for a successful pregnancy. I think I'd go to Coventry now, too, in your position.

Af arrived at the weekend Sad Not unexpected, but still disappointing. I am thinking if I should have a break from ttc until the new year, I am so fed up and mentally exhausted from it all... And 3 months won't really make a difference, in the grand scheme of things apart from me turning 43 and being proper old I am almost decided to sell my Cbfm - I don't really need it, it adds significantly to the emotional stress (not to mention the financial one!). Anyone tentatively interested...? PM me if you are.

Bristolian1 · 08/10/2014 14:40

Great news purple and try not to worry too much about the dates - there's room for error especially measuring a transabdominal scan at that stage Smile

Sorry about AF cloud she is rusbbish! We're on an enforced break at the moment waiting for test results and it is actually quite relaxing!

My samples have been sent to charring cross for extra molar testing as the histologists in Bristol don't know what it is. Bit scary!

Original poster
bakingtins · 08/10/2014 14:47

purple is it actually your birthday today? Happy birthday if it is Cake
I think I'd be less worried about the date they are giving the pregnancy if there has been the right amount of growth between scans. I can appreciate how hard it must be when it's not absolutely spot on your dates though. Hang in there. I'd probably contact your midwife and explain the situation - mine got me onto the system and booked for a 12 week scan before actually seeing me, as I couldn't bear to fill out the wretched forms and make an appointment only to have to cancel it again.
bristolian hope you get reassurance from Charing Cross quickly, did they say how long you'd have to wait for further results?

OP posts:
Purplefrogshoes · 08/10/2014 14:48

Thanks just need to banish my anxiety

Sorry about AF cloud

Bristol I had a complete mole, sorry you are having this extra worry

Purplefrogshoes · 08/10/2014 14:57

Crossed posts, yep 38 today, thanks baking. I will contact midwife and see if I can do the same.

Bristolian1 · 08/10/2014 15:23

Happy birthday purple! CakeFlowers

bythesea82 · 08/10/2014 16:06

Happy birthday purple Thanks
Little quiet yay for scan, hope you can maybe get something a bit sooner to help reassure about growth

Justonemoretime · 08/10/2014 16:56

Happy birthday Purple, glad all is looking ok so far. x

tannyLoo · 08/10/2014 18:29

Cat nice to hear from you, keep us posted x

Purple growth as expected is good, and happy birthday!

Bristolian hope you get answers soon...

Lifeasafish2 · 08/10/2014 18:44

Hello all, I'm really sorry to jump in and ask for advice - I haven't read this thread recently but used to post in the IVF group.

I have a question how would I be able to get the intralipid treatment privately? I've no idea how to start!

My story:

X1 Ivf x1 FET. Miscarried carried both embies: x1 chem, x1 blighted ovum.

Planning on another cycle next year after a 12 month break. Had NHS RMC investigation - nothing found, but my (NHS) IVF consultant tried to prescribe the intralipid but called today to let me know it is not allowed.

I'm based in London anything UCLH related would be great.

Sorry again for jumping in but have had shit news from the consultant today (long IVF story - I had asked for my blocked tubes to be removed years back, they didn't and now they are debating removal in a fortnight) in addition to this issue

bootles · 08/10/2014 19:25

purp!e it sounds positive. Happy birthday!

cat hello! Sounds like you have made a brave and positive move, wishing you all the very very best, and p!ease do pop back and keep us posted x

Bristol hope you don't have to wait too long for more results, how frustrating for you.

cloud sorry its not this month. Dont lose hope though, and a break doesn't sound like such a bad idea - it is hugely stressful TTC, particularly for us lot.

'Lifeas' sorry for your losses and that you've had to go down the ivf path. I think Mr Shehata (London somewhere I believe) does the intralipid treatment? Others on here will know better than I do. And you could try the TTC and pregnancy on prednisolone thread on here - I think some of those ladies are on intralipids. Hope you come to a decision re the tubes - I don't have any experience of that, but sorry to hear that you do.

I am shattered today. Treating myself to wine and bake off...

Original poster
bakingtins · 08/10/2014 22:22

lifeas as bootles said the only people I'm aware of using intralipids are Drs Shehata and Gorgy, both London based. The pred thread she mentioned is on the conception board, ladies on there should be able to give you contact details. The majority of us on this thread who have suspected immune issues have been to University Hospital Coventry to see Profs Quenby and Brosens, but they use steroids (and clexane and progesterone) and not the intralipids.
I hope your next cycle works out for you.

OP posts:
Lifeasafish2 · 09/10/2014 17:55

Thank you ladiesSmile

I've had clexane and prednisone, but will seek out the other thread.

In case it's of any use to anyone, I called my gp and apparently they might be able to do something so have made an app to discuss.

Thank you for your condolences - it's a horrific club that we are a part of. I wish you all the best Thanks

Triplespin · 10/10/2014 08:42

Hi life - I was on preds intralipids and clexane under Mr Shehata. CRGH which is a fertility clinic of UCLH also do intralipids.

twilightstruggle · 10/10/2014 09:15

Happy birthday for Wednesday Purple. Hope you had a fabulous day.

Life - I hope you find the answers you're looking for (I've no idea). I'm sorry for the experiences you've had so far and here's hoping the future is more positive for you.

Cloud - sorry AF has arrived. Only you know whether a break is needed. My experience is that a few months 'off' can make all the difference.

Hope you enjoyed the wine Bootles. I'm very jealous - still alcohol free and practically lusting after a glass of Malbec!

I made it through work the other day, though had a bit of a TLC day when I wasn't seeing clients. Lots of reading and cpd type stuff. Ended up being quite nice really. I've also bought a months supply of clearblue ovulation sticks which I'm a bit cross about as I had vowed not to give any more money to that company. But sadly can't seem to help myself. Blush

tannyLoo · 10/10/2014 12:07

You've just reminded me Twilight... I have a ton of ic opks and hpts if anyone wants them. I can't remember how much there is, but happy to send on...

There's also a copy of Prof Regan's book, and one called "Avoiding Miscarriage" by Susan Roussalot, which I can part with.

I also need to take all my leftover meds to a pharmacy, which seems a ridiculous waste.

Just PM me with your details and what you'd like

TinyTear · 10/10/2014 12:20

The annoying thing with the meds is that they will dispose of them. they won't sell them on, even though we didn't open the boxes. when i tried to return the 400mg cyclogest i got prescribed by mistake (i was taking 200mg) they said "so do you want me to destroy it?"

At least i only got left with 3 or 4 doses of clexane, so not much, but i think i have a couple of boxes of cyclogest