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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

990 replies

bakingtins · 02/08/2014 10:39

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
Catlover2014 · 07/08/2014 19:57

charlie hugs and sympathy to you. If I didn't have work I would come and keep you company. I know just how you must feel. Hope it's all sorted soon and you can start to feel better. I certainly counselling might help. I've been having some and it's really helping me.

tanny f**k em!!! I would have given the exact same advice. Don't let those idiots get to you. You're in safe company here hehe. Will you be having a 12 week scan in a few weeks?

Welcome back triple hope you've had a nice break. Thanks longest fingers crossed!

Also thanks sparkling for sharing your story. Gives me much hope.

Weirdly after all my negativity I am feeling much better. Not sure why but I feel like the cat off the 02 adverts haha. I hope it's a sign of good things to come!

Xxx

Triplespin · 07/08/2014 20:13

Hi everyone.

Thanks tiny - yes I am veering towards erpc this time too. Might just go on my own and take a taxi back home.

Sparkling - what wonderful news, I was also on Mr S plan and didn't take aspirin. It didn't work for me though.

Cat - I already have the blood NK cells not uterine NK ones. So given that I have already tried the steroids, I am wondering whether it's worth it. The benefits from the scratch are tempting though.

Tanny - how awful. I would've suggested the same - can't bl people turned on your for being helpful.

I had a wonderful family holiday which kept my mind off things, but now being back home on our own the feelings have come back. One thing is for sure that I want to enjoy my precious DS at least and thinking of making some work lifestyle changes so I can be around him more - until of course he becomes a teenager and doesn't want to see the sight of his parents!!

Original poster
bakingtins · 07/08/2014 20:24

sparkling lovely to hear from you! Hope everything goes v well for the birth. come back and update us when she's here?

triple glad you had a nice holiday. In your shoes I'd go for ERPC and genetic testing. It may be that there was another issue with this one, not a treatment failure of the steroids etc. Dr S seems to start on intralipids, IVIG etc if steroids alone don't work. The Coventry protocol was our 'last try' and as far as we were prepared to go in terms of time, travel, £££ but who's to say we would have stuck to that plan if it hadn't worked? DH would have nailed me to my seat to stop me going to London Find out if it was an NK issue or a genetic one then you can decide what to do next.

OP posts:
Catlover2014 · 07/08/2014 21:41

triple I think it's worth trying the scratch. I would if I were you. Hoping you get a lucky sticky bean next time xxx

bootles · 07/08/2014 22:46

triple, hello there, nice to see you back. The management oc a mc is so so personal, only you can decide. ERPC neater, cleaner, guaranteed to get products. Natural/medical management I guess can range from fine to hideous. Personalmy I sort of found natural and medical sort of cathartic, but am aware I may just be weird.

charlie thinking of you tomorrow. I have only ever had to go home with someone post erpc..staying 24 hours never mentioned to me.

tanny I wouldn't worry about it. The trouble with posting is that it can be like texting - open to interpretation and lacking in the finer details of verbal communication. I totally get what you were saying, and in my opinion services for early pregnancy on the NHS (I love the NHS but its far from perfect) are sadly lacking. Try to relax don't let people get you down.

On phone can't read back, but hi to a, and thank you sparkling for popping in to bring hop - good luck with yohr imminent birth! Would love to know when he or she is here.

tannyLoo · 08/08/2014 06:10

Thanks everyone, you're all lovely Blush

Triple lovely, pleased to hear from you. So sorry things aren't resolved yet, but it sounds like you have benefited from some time away.

I'll do a proper catch up later on...

I've worked out why I'm struggling. I started reducing my prednisolone a couple of days ago, and I think this is all linked to withdrawal symptoms. I'm experiencing insomnia, extreme tiredness, stomach knots, feelings of low mood and hopelessness and am sprouting a whole new chin of spots.

What fun!

So, basically, it's something that should sort itself out after a few weeks (eek), but it he meantime I think I'm going to keep my head down and just hang out here. The world is a bit scary Sad

Sorry for the me post, I promise to try and cut down on those...

Catlover2014 · 08/08/2014 06:47

Hugs to you tanny xxx

TinyTear · 08/08/2014 07:02

Nothing wrong with me posts... We all need to do them once in a while.

Triplespin · 08/08/2014 08:50

Thanks baking, cat and Bootles. I know I thought this was my last attempt but I think we may try again. I did also have intralipids so it would be Ivig next time as you say. I am seeing Mr S in 15 mins and will discuss. Most likely though I may move to Dr G as I haven't progressed at all beyond my previous mcs under the steroid plan - so the plan didn't work in entirety in my opinion. I am lucky enough to be able to be able to afford it (for now) - but basically it means no monthly savings.

I will go via NHS referral route too. If they refer me to mr S then I could keep him as an additional support.

TinyTear · 08/08/2014 12:44

Arse just went to get my cyclogest and they gave me 400mg ones...
I am on 200mg twice daily so don't know if this will affect it..

Might have to email the GP to ask what should be done...

Justonemoretime · 08/08/2014 12:50

Tiny, I'd do one once a day until you get the right dosage, or maybe chop them in half? Keep the other half sterile, though. Hope you can get it sorted. Smile

TinyTear · 08/08/2014 13:08

Fortunately as I got pregnant on the second cycle after Coventry and they had given me 4 boxes, I still have a box and a half of the 200mg dosage, so hope this will give us time to sort things out...

Just emailed the GP, so let;s see how it goes

Triplespin · 08/08/2014 15:37

Oh that's great. Hopefully GP can sort out the rest of the meds in time.

TinyTear · 08/08/2014 15:46

I also emailed Prof Q to double check as well... in case i need to forward an email clearing it up to my GP

tannyLoo · 08/08/2014 15:52

What a shame! I've got boxes of 400mg going spare!

TinyTear · 08/08/2014 15:55

Tanny what was your dosage?

GP just called me and he thinks that from the letter it seems 400mg morning and 400mg evening...

he said he will wait to see if I hear from Prof Q and then to let them know if I need a new prescription of if this one is ok

tannyLoo · 08/08/2014 16:01

Yep, that's what I was on. Maybe that's the dose they want you on? It was fine, but I've taken myself off early...

TinyTear · 08/08/2014 16:11

You were on 400mg morning and 400mg evening.
Then should be OK...

Confusion was that on the phone she said continue the cyclogest so I assumed same dosage.. Now I shall worry I should increase the dose straight away
Ahrgh non stop worry...

tannyLoo · 08/08/2014 16:48

I decreased to one 200mg in the morning and one 400mg in the evening before going down to 200mg morning and evening before stopping, so I guess you could do it the other way round, and increase one dose a day for a couple of days before going up to 2x400mg.

I found all the medics a bit laid back about the whole thing tbh, and ended up making it up a bit.

TinyTear · 08/08/2014 16:56

Just heard from Prof Q and it is 200 + 200 my dose...

I now will have at the back of my mind if 400 would be better ahhhrghh

I wonder if I shall have to return the unopened boxes of 400 or if I could self medicate... NASA shall leave it at 200...

Don't think lack of progesterone was my issue as my body always hung on to the babies and in the medical management had to take tablets to stop it...

charlieis30 · 08/08/2014 20:32

Hi everyone
Had my pre-assessment today which went as well as these things can go! Scheduled for ERPC Monday. DH has changed his trip so he'll leave Weds so hopefully that will be enough. Took whole of next week off work. Struggling as still have MS, although it's getting better. No appetite at all - ate a Solero for dinner! Feeling completely knackered. Cramps as well, about as bad as my worst ever period pain. Hoping MC starts naturally over the weekend when DH is around so I don't have to have ERPC which scares me. ARGH!

Catlover2014 · 08/08/2014 21:26

Office pregnancy has been announced (1 of the 2 I had suspected). Crying in a slump. X

Catlover2014 · 09/08/2014 05:01

BFN for me this AM. Day 26. Not sure I can stick the meds for many more cycles :( x

TinyTear · 09/08/2014 07:17

So sorry cat... It's always terrible. And then you need to see those people every day...

tannyLoo · 09/08/2014 07:26

Sorry cat, I wish there was more we could do or say to help.