Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Hey brummie !! I pushed based on my age and the consultant agreed to see me due to that. My dr was also very positive and said to come and see them if I don't feel anything is bring done. If you don't ask you don't get. Good luck x

Thanks for the advice. I have posted, and hope it is OK. No, doesn't feel jinxy now I've done it.

Brummie good luck with the pushing for tests, I wish I had!

Tanny this sounds very positive, you're doing great!!!

Personally, I would never post on FB, I would just share with close friends and family. Others will catch on as you get bigger anyway!!

Hugs to you and family. It's a happy day!!! XxX

Ah posts crossed over hehe. Hope you get lots of likes on the book of face xxx

Tanny, good news indeed. your post is very sensitive and appropriate. Its the blasé here's a picture of my internal organs, or, worse, 5 weeks #excited #nursery that most of us object to. We need to do what we need to do.
Welcome Fergie, sorry for your losses. You'll get good support here.
On my phone so can't type much.
Hugs to you all. xx

Woohoo tanny - you are now a graduate of this thread!!!

Next one up tiny! - when is your next scan?

Brummiegirl hope all goes well with your GP. Don't let them send you away without some help set up, be firm!! X

Well done tanny congrats, I for one am always happy to see other miscarriage survivors (!) graduate, it gives the rest of us something to aim for!

In other news, I realised I would have been 12 weeks today. I think to "realise" is a good thing, I obviously haven't been obsessing about it all for a week or so. AF should show up in about 2 weeks time if things are returning back to normal as hopefully they are. I dusted off my MaybeBaby microscope a couple of days ago and showed ferning right around the time I should have been ovulating, all being well. While it's possible that it's the last of the pregnancy hormone leaving my body, I'm choosing to believe that things are back to normal, given pebbles this morning, not a fern to be seen. Positive Mental Attitude for the win!

Charlie - hope things are getting back to normal!! Well done on the positive mental attitude!

I am still getting brown blood 2 weeks post erpc - so I think I am long way away from AF - sigh.

Honestly triple, I had brown discharge (eww tmi) until about 9 or 10 days after the erpc. I did an old ov test a couple of days ago which showed positive, and there's the ferning, which should be right around ovulation (2 weeks after erpc). But the hormones being picked up could be either. Pebbles only today is a good sign either way - either I've ovulated already (which would be awesome) or the hormones have finally left the building. I don't have any preg tests and I'm abroad on a work trip so don't fancy running around to find one but I'm hopeful either way.

Miscarriages really really suck states the obvious

Not necessarily triple this mc and the last one I was still spotting brown blood 2 weeks after but still got AF about 4 weeks after the event. Hoping things get back to normal quickly for you, you too charlie.

It happened with me Charlie - I took an ov test which was positive 2 weeks post mc and I thought I was ovulating - took a pg test a week later and got a strong dark line and realised the hormones hadn't left!!

Good news though that no ferning - hope our cycles return to normal.

Bootles - well done on clock work cycles! Mine have always been all over the place, so I am not expecting much.

Wouldn't mind AF arriving later - but I need to get some hormone blood tests on cd2/3 - so anxiously awaiting AF.

At least it's a nice sunny morning today

I think that is why places like Coventry ask for 2 cycles after MC as it takes quite a while to get back to normal...

I have a scan a week today, but will only be 7+6... it will still be a long long wait until I feel i am out of the woods...

religiously taking the clexane and cyclogest and hoping that will be the magic potion...

and tanny - woohoooo!!!! hooray!!!

We're all keeping everything crossed for you Tiny. I have a good feeling for you xxx

tiny you're doing well... bet you can't wait until the next scan!

I'm in a weird mood - nearly told a colleague's wife at bfast that we'd had MCs, when she asked if we had any kids. She only had one (15yo), and I can't help wondering if she had had MCs as well.
Another colleague asked me at dinner the other night when we were having kids (the one who asked if I was pregnant 2 weeks after my first MC: no, just been comfort eating but thanks for asking mate). Don't know why I don't just tell them, it just seems a bit too much to blurt out at a work conference breakfast. Ugh.

When people ask me if I want children I just say we can't have them. I hope it won't transpire to be true but it's amazing how quickly it shuts people up! X

Charlie - I was before not saying anything and pretending we didn't want another child.
Now I am open about it - we want another child but it's not happening. Most people will just keep quiet after that !!

Hmm, I had an insensitive friend stay at the weekend who asked if I was thinking of having children. She doesn't want kids herself but I don't like the way ttc and mc is treated like a taboo subject, so I said we'd been trying for a while and I'd had two mc's. She responded with 'ooh, better change the subject, I'm sure it'll happen, I think things happen for a reason' . Now I know she was basically just flustered and didn't think about what she was saying, but I kind of thought we were better friends than that. I guess the whole thing just sort of scares people a bit.

Charlie I know what you mean about wanting to tell people. I have to keep reminding myself not to tell my tutor. Normally if you'd been ill enough to be in hospital or had some other life changing event you would tell people, and it's weird this is so taboo.

Tanny great news. So lovely to have positive news here, please carry on keeping us updated. It helps with the PMA!

Triple I've only just stopped having brown discharge and am still testing positive. I had a massive emotional hormone crash about 5 days after the bulk of the mc, so was hoping hormones had left the building, but apparently not. I have until next Fri to get a neg before I have to go back to the clinic. I'm taking advantage of the fact to live a lush life and have lots of lovely booze before my cycles start up again and I start to be clean living again

Welcome Fergie. I'm in the same situation - 2 mc's, but at 36 they won't see me for tests. Let us know how you get on - and good luck with your GP wrangling too brummie.

tanny so relieved to see your post. I ran out of data after posting last night and couldn't check back until we got home to rainy Bristol. congrats!
The FB thing is difficult, I didn't post anything in the end and a lot of people either didn't realise I was pregnant until v late on ( must just think I'm fat normally ) or didn't realise until we posted a birth announcement, and then were a bit surprised/aggrieved. You can't win.

I didn't tell many people about the MC when I was in the midst of them, it was too difficult to talk about. I'm happier for them to know in retrospect, don't want to seem like a smug-married for whom popping out the sprogs has been a walk in the park. I do think it's important to try to break the taboos surrounding miscarriage, but an individual's right not to talk about it until/unless they are ready obviously trumps that.

Hi all...I'm new to this so sorry if I don't have all the terminology quite right ....but very thankful to have found this/you.

This morning my husband and I went to the epc at st marys for an 8 wk scan and were told again that our pregnancy would not be viable. 2 weeks ago the scan showed the heartbeat and we were thrilled to be told it was a twin pregnancy and all was going fine. Today there was nothing and yes..that awful silence in the scan room and once again we were put in a separate room, told to sign a stack of forms and booked in for an ERPC...which is tom :( We were both so devastated..no words left to say.

This is my 6th miscarriage and tbh I'm really starting to lose hope.

For the 2nd time (pregnancy 5+6) I was advised to take low dose aspirin and Clexane..my husband and I religiously went through this injection ritual every night. Now to be told we need to wait again 10 weeks post-ERPC for the results as to why it didn't work.

I feel so deflated with the same question running in my head all day..why?

I think you all are very strong and every day Im finding a new found respect for women and what we have to go through..often without being able to speak to the people who are around us everyday.

I'm wishing you all luck for your journeys and hope to find my physical/mental strength again to hopefully try another time.

Dreading tomorrow!!!

survivor I am so sorry you are going through this again, but glad you found us, this thread is a lifeline. I'm guessing you've already had RMC testing and nothing was found? Did you have genetic testing on any previous losses? If the embryos you are losing are normal and your tests are normal and yet it keeps happening I'd suggest once you have had time to regroup you look into NK cell testing, which many on the thread have now done. I really hope tomorrow goes as well as it can, and that you are treated with respect and kindness.

Thanks for that baking x

Yes - I've been tested at RMC for over a year now. At MC5 a chromosome abnormality was found but it was put under the 'random/desperately bad luck' category.

Will start looking into NK cells (thnx again) and the really nice consultant today also mentioned adding progesterone + increasing the heparin dosage (was on 20mg prev) but studies are still being done apparently..I see some have already have experience with this..??

My successful pregnancy I was on 20 mg clexane, 200mg progesterone twice a day, 5 mg folic acid, but I think what really made the difference was the steroids (20 mg pred a day) as I have high NK cells. All for first trimester only.

I can add to Baking's experience. I attended the implantation clinic in Coventry and got pg before the results came back, and my nk results were normal. I was put on a "just in case" treatment that was essentially the same as Baking, but 400mg progesterone twice daily. Am off all meds now and currently 13 weeks.

Telling people on FB has worked well so far. I found it hard to talk about MCs at the time, but am happy to do so now some time has passed. I still don't deal with sympathy very well, I just want to be able to explain without the "poor you" eyebrows.

DH went and posted the scan photo this morning. Doesn't get why this is such a problem, and I haven't got the energy to explain...

Thank you all for being happy for me, it is all helping me feel more relaxed. Let's get some more thread pregnancies soon!

Yeay Tanny! So pleased. Congratulations. Please feel free to shout it from the rooftops on behalf of all of us.

Hello Fergie and survivor. So sorry to read your stories. I hope you find some comfort here. It has been a life saver for me.

Charlie Could you explain the ferning/pebbles references? I have not heard those before.

At my sister's house in Cambridge tonight. Sharing a room with snoring dd. Good old sis is taking her out for the day tomorrow while I work as nursery is shut.