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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

990 replies

bakingtins · 02/08/2014 10:39

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
Catlover2014 · 25/08/2014 15:18

Hugs and sorry to hear this just xx

bootles · 25/08/2014 16:11

Sorry just. Its so gutting when you think you are..then get AF. Will read your blog later, but it already sounds like me..I do loads of bin fishing and can identify the most microscopic hint of a line.

cat that's great you will be having ivf. Hopefully it will speed things along.

longest so is the conclusion that PCOS has resulted in a thin womb lining and implantation failure? Sorry I've lost the thread a bit. You think Mr Rai would prescribe metformin?

I've also been on a bit of a downer. This business about heartbeats..2 of mine definitely had heartbeats..one definitely didn't (anembryonic, and T22). The first wasnt scanned/tested but i suspect that it did have a hb as it looked like a 7.5 week embryo, so it must have done to get that far. I just want to know the chromosome results of this last one. I had kept on telling myself if I just keep trying I will get there...and now I'm thinking duh..why should it ever work! Grr.

charlieis30 · 25/08/2014 16:17

Sorry just xx

charlieis30 · 25/08/2014 17:14

just been flicking through your blog, well done it's great :)

I personally find that getting drunk in the 2ww sods-law-makes-me-pregnant. And very guilty, obviously.

tannyLoo · 25/08/2014 18:14

Had a sneaky afternoon kip, and just dreamt that Just was coming over to come and see a Tracey Chapman concert in the rain! Did we plan this? All a bit woozy... lol

Catlover2014 · 25/08/2014 20:24

^ haha how random. Good luck for scan tomorrow Tanny. V excited for you!!! X

longestlurkerever · 25/08/2014 20:47

Oh, I am sorry Just. Gutted for you. Here's to next month.

Sorry you've been down bootles. The pcos/implantation diagnosis is my own personal diagnosis, based on prof Regan' s description of the role hormones play in fertility and miscarriage in her book. Makes sense to me and I always thought my dodgy cycle was linked somehow. Not sure what to do about it other than try and get slimmer, but has given me a bit of hope that although it is likely to be a difficult road I can get there in the end.

What a miserable day eh? Hope you are all somewhere cosy.

Tanny When is your scan? Excited for you!

tannyLoo · 25/08/2014 21:00

Longest I have no history of PCOS, but I do think I have had implantation issues, even though all my hormone levels were normal when tested. I would have some faith in self-diagnosis, I think it's a good starting place!

My scan is at 5.30 tomorrow, so I have all day to whittle! No childcare this week so DS will have to come too. I'm feeling a bit down about it, like I'm just waiting for something to go wrong. I know it's quite normal to feel like this though so trying to rationalise my emotions.

Really glad I don't have to go and see Tracey Chapman at an open air concert. It's pissing it down here!

Justonemoretime · 25/08/2014 21:45

Tanny, I love the sound of an impromptu concert in the rain...:)
Thinking of you tomorrow.
Thanks for all your kind words. I'm OK. The closest I think I've got in months... Oh well.
Waves to all. xx

bootles · 25/08/2014 22:38

Tanny 5.30...what torture! Good luck, will be thinking of you tomorrow.

longest as no cause is so often found, we may as well try to figure it out ourselves. I am going to put Prof Regan's book in my Amazon basket right now..

DRSLondon · 25/08/2014 23:03

So sorry for all your losses. I know about the pain of a pregnancy loss. So horrible and consuming. You can read my story at www.wakeupsurvivesleep.com

It will get better. Good luck to you all x

longestlurkerever · 26/08/2014 07:56

Good luck Tanny! Will be thinking of you.

TinyTear · 26/08/2014 08:39

Good luck today tanny!!

Justonemoretime · 26/08/2014 08:41

Good luck Tanny! Smile

tannyLoo · 26/08/2014 11:28

Thanks, killing time at soft play hell...

Fergie11 · 26/08/2014 13:07

Hi ladies hope I can join your group...

i am 41 and trying for dc1 and I have had 2 mmc this year. The 1st was in April ( I was 8 weeks but baby only 6 weeks)where I went down the medically managed route and the second one a week ago where I had an ERPC. For the 2nd one I'd had successful scans at 6.6weeks and 8.1weeks and everything was looking brilliant then at 10.1 I had very slight brown blood when wiping so I contacted my local epu. Thinking everything would be okay I went myself and I was told baby was only measuring 8 weeks. As you can imagine I was hysterical and had to drive home. Poor dh at work got told on the phone through my hysterical crying. Since then I have felt quite numb and although the hospital have agreed to carry out tests I am not sure what I should be making sure is tested. Any advice would be greatly appreciated? Also am I silly to start ttc already or would it be better for the tests to be completed. We are getting our blood taken on the 25th Sept.

Good luck for your scan tanny x

tannyLoo · 26/08/2014 14:15

Thanks Fergie and welcome, so sorry for your losses. Have you miscarried yet? Have they offered to test the foetus for any chromosomal abnormalities? Some places offer this, but others, like mine, are much slower off the mark.

Blood tests should include tests to look at your hormone levels, which are done mid cycle, any underlying health issues, clotting issues, and a chromosome test for you both. A detailed scan can be done to check your lining and check for any other uterus problems. I'm sure I've forgotten some, others will fill in any gaps I'm sure...

Personally, the best thing I did was to force us to have a break from TTC whilst we had tests done. It not only gave time to decide on next courses, but also time to grieve and heal, to have some acupuncture, and to evaluate how many goes I had left in me. I totally get the need to keep going, just to fill the hole, but it really can help to take it easy for a while.

Between us, we hold a lot of knowledge, and will help as much as we can.

Catlover2014 · 26/08/2014 17:03

Hi Fergie welcome to the feed.

So sorry to hear what you've been through and I know just how hard it is - my 2mmc just broke my heart.

There are lots of lovely ladies on here who will offer lots of help, support and advice.

My suggestion would be to push for as much help and information as you can and ask to see a mc specialist. The NHS tends to not be so interested until a 3rd mc, which is good because it shows how many will still be successful but also hard because we don't want to risk it. Hugs to you.

GOOD LUCK FOR TODAY TANNY xxx

TinyTear · 26/08/2014 18:27

Yoooohooo Tanny!! How did it go?

bootles · 26/08/2014 19:34

Hi Fergie sorry you find yourself here. So very hard with your recent one that you had positive scans only to find out it was another mmc.

Chromosome tests on the 'products of conception' can certainly be useful, but would have to have been sent off for that at the time of the erpc. I think Tanny has outlined the main tests. Your GP can do basic tests (eg thyroid, possibly hormones) or your local RMC can do more (eg more in depth clotting tests - TEG - and the other things Tanny mentioned). There is then the private route where they no doubt do all the above, and some places look at Natural Killer cells in the uterus - eg Coventry. The NHS won't do that. Others can tell you more, I haven't any experience of the NK route.

At my initial St.Mary's appointment (I think they won't start any tests if you are pregnant at that one) I was told it wouldn't be the end of the world if I got pregnant during the testing time (for me that was just 6 weeks). Personally I have never been able to wait after MC's before TTC again, (just one month once to get my vit d up) though there are arguments both ways. I definitely see Tanny's point about taking time out to recuperate. Each time I have slightly bonkers to be trying again straight away, but still have.

Hope you are getting plenty of support in RL x

Original poster
bakingtins · 26/08/2014 19:49

I've been away so long you've dropped off my "threads I'm on" and written seven pages! We've had officially the wettest holiday ever, it has rained every single sodding day. Shorts and sun suits unworn, thought I'd be worried about keeping F cool enough, but in fact have had to keep washing the few coats/cardies I took for her. Windmills working extra hard to stop the whole country disappearing in the deluge....but had a good time despite it all.
Hello to newbies, tanny hope your scan was all good today? Will catch up properly later.

OP posts:
tannyLoo · 26/08/2014 20:11

So...

We seem to have a baby growing.

Heartbeat, small enough nuchal fold to satisfy the sonographer, measuring a whole week ahead of dates, so puts me at 13 weeks, and no visible problems.

The placenta is lying low, so I might experience some spotting, but she was hopeful it will move up.

I was such a complete nervous wreck that I was shaking at first, and am still feeling a bit flat to be honest.

Am wondering if I can announce on fb or if that is a jinx too far. I want people to know that I'm pg but not out of the water. Am I being selfish?

Fergie11 · 26/08/2014 21:00

Thanks for all your advice. I will need to read up before our appointment at the end of September. Due to my age a consultant agreed for testing and tissue was taken at my ERPC for testing.

Fantastic news tanny. Personally I would tell people through text message and refrain from posting on FB just due to how much I have read how this has impacted others when they are trying or having problems but it's all a personal choice x

bootles · 26/08/2014 21:01

Tanny everything going well then! Can totally see where you are coming from in terms of jinxing and Facebook and so on. Abso!utely NOT selfish, don't even think that for a moment. Hmm..you need to find the right phrase with which to present your pregnancy to people... Nothing you say or post or don't post of think or don't think is going to make any difference to the outcome. So just do what feels right to you. (Am quietly excited for you but shhh...you didn't hear that!)

Brummiegirl15 · 26/08/2014 21:48

Great news Tanny really pleased for you. Hi Fergie welcome to this thread - you are like me, doing 2 threads! This thread is comforting in that everyone knows the pain of 2+ mc's.

Right, I've booked a docs appointment for next week. I know I could be sent away as only had two mcs. Can't believe I've said only.

Anyway little sis is an obs & gynae registrar and she said "be prepared to be told no, but push your age and if you don't ask you don't get"

So fingers crossed.