Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Bootles - well done on the clockwork cycle!!! What were the known reasons for two of your mcs? I also know of someone who was diagnosed with NK cells and mc on the treatment, fell pg next time and didn't do the treatment and now nearly at her due date!! So really a lot depends on having a good egg and it implanting properly!

Just 8 dpo is far too early - 10dpo is usually a good starting point for me. I have always registered a bfp then. I am not in the waiting for AF camp!

Wow this thread moves fast! Thanks for the welcome everyone. Hi all and sorry I can't respond to everyone. Had family visiting so not checking in that often at the moment.

Brummiegirl sorry for what you're going through just now. 2nd in a row does start to make you question whether it's more than just bad luck doesn't it. But statistically only 1 in a 100 have 3 in a row, so numbers are still on your side. I've also just had two mc's in 6 months. My GP had been pretty strict about no more tests til 3-in-a-row, but did do basic fertility tests - FSH, Progesterone, Thyroid, etc as we'd been ttc for over a year and I'm over 35. I'd be interested to know if how you get on. Good luck.

I am thinking that we will just start ttc after my next AF, rather than push for private tests just yet. But anything I can get on the NHS - at least to rule stuff out would be good. GP's so far have been useless unless I tell them exactly what I want and why I should have it. I really feel for patients who aren't able to be confident or articulate with their GP as they must get fobbed off all the time.

Wondering whether I might have an infection - possibly un ttc related as (tmi alert!) I'm still having sporadic brown discharge that doesn't quite look like blood. I've never had thrush or anything so perhaps it could be that rather than continuing mc bleeding.

Charlie I was on the pg after mc thread, with a due date of March 2015. Were you on that one too? I didn't join any ante-natal threads as too shit scared. Sorry you're really feeling it at the moment. I do think that these emotions are part of the healing process, painful as it might be, and it's good you're getting some counselling. I found counselling (for non-ttc/mc issues) very emotionally painful and tiring at first but it helped me enormously in the long run.

bootles it's not called the wtf AF for nothing! But good that it's returned quite quickly, must mean your body is healing well.

Hope you're all looking after yourselves and doing whatever makes you feel good right now xxx

Hey ladies have any of you ever been tested for celiac's disease? I sometimes suffer with IBS which has been better while not eating gluten. I went for a curry last night and my tummy is killing me. Just wondering if it could be connected to infertility and mc. Might ask my GP for a test! X

cat not ttc related but my friend is on the fodmaps diet for digestive issues and has had a lot of success with it... i dont know the details but google it!

Thanks charlie I'll take a look at that!

Oh dear cat hope you feel better soon.I think there is some sort of possible link between coeliac disease and mc, maybe linked to lack of absorption of some nutrients. Give your GP a visit and see what they say.

Triple yes I am impressed my messed up reproductive system has managed to sort out AF at the right time! (albeit a WTF sort of an AF effin!). My 3rd mc was due to Trisomy 22, and my 2nd was a tfmr, which was given a 90% chance of death in-utero due to a number of problems that were picked up on the 12 week scan. Chromosomally she was found to be normal, so the conclusion was that it was a developmental problem. No-one can give me any further answers than that. I have wondered if high NK cells could have caused a problem, but it doesn't seem to fit the picture. I am waiting very impatiently for the results of no.4.

Now that's very interesting about the person you know and the NK cells. Do you know why she didn't do the treatment?

Cat I don't know but I have a couple of friends with food intolerances/IBS and they reckon that if it's not under control it causes havoc with their immune system and they get all sorts of other illnesses, so if that's true and not woo then it would make sense that it impacts on fertility and miscarriage so worth getting checked out. I also know someone who had years of infertility and failed ivf then got pregnant naturally and she swears it was because of a fertility diet where she cut out meat and all sorts. No idea how scientific that all is though.

Have dipped into Prof Regan's book and there is a whole chapter on PCOS/hormones and miscarriage so I am still a bit annoyed that no one has checked my hormone levels. Will read in detail and then speak to GP or St Mary's.

Hello all, I'm back in the world of WiFi, still smelling of campfires and with weird tan lines. DS has camping comedown, which means he covered his cheeks with nail varnish and now looks like Heath Ledger's Joker!

Still pg (I think) and am 11+4 with my 12 week scan on Tuesday. A normal scan! Who'd have thought!

Two people asked me if I was pg on holiday, so I am officially massive, thanks to prednisolone.

I have been naughty and come off the clexane. It was a freezing night and I'd wrestled myself into 3 layers of clothing and into the sleeping bag before realising I still needed to inject myself. Decided fuck it. Tsk...

A break from thinking about it all has helped massively, my head is much less riddled with anxiety, so we are happy in Tanny Towers just now.

Tiny yay for the good scan news! So nice to come home to!

Just sore boobs? Check!

Brummie so sorry you're here, I recognise you from another thread. We are lovely here. I hope you find us useful.

to everyone, and very jealous of coffee meet ups!

Welcome back from holiday Tanny. Yey to being 11+4, you've made it!!!! And looking pregnant?! Well whoop whoop whoop

Longest and Bootles I shall ask my GP then. I know it's a long shot but can't harm to get a test done to rule it out.

Longest what does the book say about PCOS and mc? Are there links between the two?

XxX

I skimmed Prof Regan's book last night. The thing i picked up on was how she said there was a huge difference between mcs before and after a hb. Since mine were one of each I'd definitely be interested to know more. Guess i need to wait for results of private chromasome analysis. Makes me think it was perhaps bad luck rather than a longterm problem. Fingers crossed anyway.

Difference betwem causes of mcs pre and post hb i mean.

charlie that's interesting. I had one without hb and one with too. Gives me hope it's bad luck too! Xx

Whoops I typed this earlier without sending...

Thanks everyone for the nice words.

lurker where are you going in Oz? I'm from there :)

bootles I often find it quite reassuring when AF arrives. You feel like you can start with a clean slate. I can't wait until mine turns up!

effin I had my ERPC almost 2 weeks ago, and was having (ewww tmi) brownish CM which tapered off until the end of this week. I assume it's just the last whatever from the procedure. I think unless there's a smell, you're all good :/

Hello ladies :) Thread is moving so fast, have tried to keep up with everything but not posted in a while, so here goes...

brummie & charlie (hugs) how are you are both feeling? Hopefully a little stronger than on Friday charlie. I found that every day was different - some days good, others less so. Just had to give myself the time/space to cry - and stop feeling guilty for not being at work (had to shelve the silly 'must cope' mentality). Gp was brilliant and supportive - listened to my ramblings and crying, got some sleeping tablets to try and help me rest. Going back again next week but feel more like myself again, a bit more rested and a bit more resilient. The sadness is not any less, but is no longer overhwleming and a little more manageable. Hope you are both well supported x

Nice to hear some good news tiny & tanny :)

longest, tiny, triple & charlie (did i miss anyone out?) Am also working in London, near farringdon so would love to grab a coffee sometime...

Morning Ladies,
Good to hear from you Tanny, hope your scan goes well next week. How exciting! Glad you enjoyed your holiday.

I'm in the Chilterns (Chesham, so on the end of the Met line), but I'm a teacher, so can't do week days after next week - and I'm in the Lake District next week. Enjoy it when you do get to meet up.

Cat, I got my GP to do a Coeliac's disease test (which was neg), but there is an association with MC, so worth asking for the test. Maybe also get your Vit D done while you're there? Good to check that it's all OK.

Well, I'm now on CD30/10dpo. Not poas again yet as I only have one left and I'm saving it for tomorrow (we are supposed to be going to a beer festival, so I need to know. I don't like beer, but people will notice if I have nothing at all. I'll need to come down with a sudden uti if the test is +ive!). Boobs still sore (can't run without wanting to hold them ). I attempted to participate in a sea swim event yesterday and had to get out after 1.25km as I was so exhausted (I'm a regular long distance swimmer - the sea was rough, but I joust could not keep going). Temp still high, no spotting etc. Not getting my hopes (fears?) up, but my suspicion is strong that 'something' is 'up'. Will be gutted if AF arrives on Tues or Weds next week :/

Just had some spotting. FFS.

Its not over yet just, until AF arrives. But I know that feeling well, when you are sure that you are and then spotting or AF starts. Maybe run out and get some more tests today? I know it may be too early to get a reliable result, but possibly may give you some clue?

Glad you are feeling a little better enlightened, and effin i have often had brown d/c after thinking bleeding has stopped..usually just the last remnants of old blood.
charlie what does the book actually say about the significance of mc before or after heart beat?
tanny hooray for camping and scan next week!

Cat It basically says a lack of progesterone and high LH levels lead to thin womb lining, an underdeveloped corpus Lutherans failure to implant. Unfortunately it doesn't give an outright cure - Prof Regan seems to think progesterone injections are too little too late. Losing weight and care in early pregnancy seem to be my best hope!

'Luteans and', even

Just sorry re spotting. Could still be implantation but is torture this rollercoaster isn't it?

hehe longest, it shall remain the corpus 'lutherans' in my mind now!!!

just i've no idea about timing but as longest said, could it be implantation? thinking of you x (ps: its easy enough to get to chesham at the weekend...)

cloud hope you get your 'datenight' this weekend :)

bootles Thanks. Wishing you an un-busy couple of days at work

Also I took away that once the HB starts to beat it's much less likely to be chromasome-related (that the ones with chromosomal problems tend to finish before they get to the beating-heart point).
It's a good book - I like her matter of fact tone. The problem for me is just that I've had no investigations done yet so until I get the chromosome results back from MC2 I don't think anything much helps, as I don't know what my problem is (or whether I'm just in the "two lots of bad luck" group)

It will be really interesting to see the results of the PROMISE trial (that's the progesterone one right?) as like lurker says, Prof Regan didn't think it was that useful.

Looking back at my med records the doc didn't see a corpus on MC1 (at 7wks, measuring 5w4d) but there was a visible one on MC2 (found out HB wasn't right at about 8w, measuring 6w5d).
It seems to me that the 2nd can't have been an implantation issue as surely the pregnancy would have ended before the HB started (following my reading of Prof Regan). That makes sense to me. But it doesn't help me better understand what could have caused it, other than something like an infection or something. Around w5-6 I was in Asia and it does make me wonder if I picked up something there, I have done in the past, just some bug that knocks me out for a week then I'm fine.

I don't think I've got me head around it all yet...

Had more acupuncture and a head massage at the chinese dr this weekend, he wants me to bring the DH in as well. Not sure DH is too keen though!

Just sorry to hear about spotting. Could it just be implantation? If it were me I would wait a few more days and then take a test. Certainly stick away from the beer!!!

Longest thanks for explaining. I have low progesterone levels so is interesting to hear that. My LH is actually a little lower than average too. I take progesterone from 2dpo to help me get pregnant but as I've only mc'd so far I'm not sure it's a real solution to my corpus lutean problem.

Can't recall if I have shared with you all but if this and next cycle don't work I plan to start IVF. Should be around October time. Scared but hopeful too!

XXX