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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

990 replies

bakingtins · 02/08/2014 10:39

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
cloudjumper · 13/08/2014 10:07

Hi aoife! JBrd here - I've namechanged. I'm in the same boat as you, AF is due any day now, but so far a no-show... I don't want to have to deal with an 'uncertain' BFN, so my plan is to wait with poas until at least CD27/28. Do you think you can just stick your head in the sand and continue for a few more days, ignoring any signs and symptoms? That's what I am doing (or trying to...).

Thinking of you today tanny

Charlie I'm seeing a counsellor that specialises in miscarriage/stillbirth, which is a big help - I don't have to explain anything, and she knows so much. I would definitely recommend it.

Catlover2014 · 13/08/2014 10:28

Welcome Aofie. As AF is due I would take a test, it can't do any harm and it could be very good news!! How long have you been trying for a DC? This is a hard journey, heart goes out to all the ladies who find themselves on here.

longest fingers crossed you get the go ahead today. Make sure you let us all know how it goes.

Got some more spotting so fingers crossed we start a fresh tomorrow with proper AF. See my consultant Saturday to see if I can change progesterone as I really didn't like the crinone gel. X

Catlover2014 · 13/08/2014 10:30

Love the new name cloud glad the counselling is going well and is helping. I'm keeping my fingers crossed you get your BFP this month.

Catlover2014 · 13/08/2014 10:31

Tiny my friend had spotting all through her pregnancy but had a healthy baby girl so try not to panic. We're all holding onto good vibes for you! X

Aoifebelle · 13/08/2014 10:44

Thanks all. I am on thyroxine, my tsh came back moderately high, but that is it. Freaks me out that you all seem to be more medicated than me!

TinyTear · 13/08/2014 10:48

thanks, still pregnant (did a second test just now... couldn't resist) and no more spotting at all since last evening... and it was a very light pink tinge...

i am just too paranoid...

tanny hope all is ok with you, sending you positive thoughts

TinyTear · 13/08/2014 10:50

Aoife I am on thyroxine as well... what is your dose?

i take 125mcg/150mcg on alternate days regularly, and I'm afraid to say i self medicated up to 150mcg every day now after bfp as I had some extra 25mcg tablets at home...

TinyTear · 13/08/2014 10:51

cat try cyclogest... ok, don't like putting it up the back passage, but at least there is no leaking...

Aoifebelle · 13/08/2014 10:52

Oohhh get you JBd and your fancy new name. We do seem to synchronise somewhat. I might try to hang on til Friday. Due to go out for drinkies, so will have to know either way.

tiny hang in there. For most spotting is a normal part of pregancy, we just don't have that particular experience to draw on.

Aoifebelle · 13/08/2014 10:56

Hi tiny, I am only on 50, waiting the latest the latest tsh results. How regulalry have you been tested?

TinyTear · 13/08/2014 11:00

Ah I started like that 25, then 50 then 100 and so on, but I have been on it for 2 years (was diagnosed because of exhaustion, not pregnancy related)

I was tested last week when i went to the GP with the BFP but haven't seen those results yet... i need to pop by the surgery today to get a letter to take to the EPU for the scan so will see if he left anything else for me...

tannyLoo · 13/08/2014 13:21

And breathe....

Thank you all for you kind thoughts. I really am becoming a proper nutjob.

The scan showed a baby(!) measuring 10+4 (am 10+1 by ov) heartbeat and wriggling about. I have cried bucket loads of tears this morning, both with anxiety and then relief. Today I am pregnant!

Back into summer holiday madness at home, so will catch up again when it's a bit calmer.

Grin
TinyTear · 13/08/2014 13:29

Hooorray!!!looking goooood!

longestlurkerever · 13/08/2014 13:33

Yes!!! So pleased Tanny xx

Triplespin · 13/08/2014 14:03

Yay!!!!! So pleased for you.

Justonemoretime · 13/08/2014 14:17

Tanny, so pleased for you!!!! :) :)

Original poster
bakingtins · 13/08/2014 14:49

tanny Grin

OP posts:
Catlover2014 · 13/08/2014 15:18

Whoop tanny that's great news!!! You're on the homeward stretch to 12 weeks now :) xxx

cloudjumper · 13/08/2014 16:25

Yay tanny! So pleased for you!! Smile

Aoifebelle · 13/08/2014 16:36

Go Tanny go!

Great you have a sympathetic EPAU as well. With histories like ours I think we should be able to self refer as and when. Only a mere few days til the big 12 weeker.

bootles · 13/08/2014 17:53

Woohoo Tanny !! Brilliant news ! X

longestlurkerever · 13/08/2014 19:04

Bah, normal! Well I do apparently have PCOS but not the symptoms that cause miscarriage (clotting and insulin)so no treatment prescribed. And the thin blood thing is apparently nothing to worry about though I should avoid aspirin and heparin. All he said was that I would have another TEG in early pregnancy in case I have any of the clotting things that appear only in pregnancy and that he will have the results of his progesterone trial in the autumn so I might be prescribed that depending on the results and when I get pregnant. So, good news is I have the go ahead to ttc, bad news is there is nothing new to try. Bit depressing really but don't really want to have nk cell testing just yet. Guess I am ttcing again. Hurray (she says with zero enthusiasm at all, despite it being what I wanted this morning). Have to go back on ties for nhs appointment so that I can be in the system for my next pregnancy but other than a scan I am not sure there are any more tests to be done.

charlieis30 · 13/08/2014 19:32

Yay tanny so pleased for you!

enlightenedbunny · 13/08/2014 19:48

Hello ladies. Wanted to join in if I may. Have been reading through the posts in this thread & the rest of the forum - sharing experiences has helped me feel less alone (especially when all around are pregnant/new mums). Earlier in the year some lovely people on here have been so supportive, and more recently too, though I have to admit that I'm really struggling this time.
I've been pregnant 4 times now. In 2009 we found ourselves unexpectedly pregnant (contraception failure) and faced the difficult decision (radiation exposure, partners mental health issues, recent difficult bereavement) to terminate the pregnancy. At the time seemed the 'right' thing to do, though the scary excitement of pregnancy and the sadness of our ultimate decision still feels raw (perhaps more so given what has happened since?). We then found ourselves trying for just over a year before we were pregnant again - 2012. This time however I thought the nausea and exhaustion were because work was so busy at that time - it only clicked that I could be pregnant as I fell asleep one night. Sadly, woke up later that night with bleeding and cramps - nearly passed out with the pain and sensation of passing what I nnow know was the sac. It was snatched away before I had even shared the joy with anyone. I don't think I dealt with it particularly well. Having to tell my partner that the morning was just awful. We didn't make an active decision to 'stop trying' after that but I think we just fell into a difficult patch and only really started trying again last year. Last Christmas we were on holiday and after nearly a year of trying found out we were pregnant again and were so excited - it felt like something was finally going out way. Sadly, it was not to be as we found out at our 12 week scan that this was an anembryonic pregnancy - a devastating shock. We struggled to get past this and stopped actively trying. It was a great suprise therefore when we found I was pregnant again this summer. Perhaps this was going to be our year after all? We tried not to get our hopes up too much, trying to get beyond 12 weeks, but when we saw the heartbeat we couldn't help but get excited. Sadly this pregnancy ended 2 weeks ago, with yet another erpc. Am currently tryng to get back to normal, trying to keep going at work, but keep crumpling in tears. Some days are ok, others less so - and sleepless nights are not infrequent. I suppose I'm finding it difficult to be 'me' (if that makes any sense?).
Anyway, we now find ourselves waiting for a cytogenetics result and referal to the recurrent miscarriage clinic. I guess some of my emotional frailty at the moment is not just about how to move on from here but anxiety about what happens next - I find myself searching for reasons why this has happened to us (like convincing myself i have pcos/antiphospholipid etc) yet also hoping there are none and we were just unlucky!?
Sorry bout the rambling...

longestlurkerever · 13/08/2014 19:56

enlightened Hello. Sorry to hear your story. A lot of what you say sounds very familiar- especially the anxiety about what happens next and the double edged feeling of wanting there to be a cause and not wanting one at the same time. I too found my third mc the most gruelling emotionally. I think it is when it kicked in that something was really wrong- though according to the Dr today there isn't and I am still finding the idea if ttc again very scary.

On the upside I am feeling a lot better than a few weeks ago when I had my mc so I can say life won't always feel quite so bleak. Can you take some time off work or go away at all? I have found that to be very therapeutic. Others on this thread have found counselling helpful.

It sounds like you already know a bit about rmc. I am glad you have your referral. Between us we can tell you mist things to expect. Where in the country are you?