Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Lurker, that was what I got from Mr Rai too... All normal, go away and come back when pregnant for more blood...

That was the day I conceived E so get shagging

Ha! I have to say that is absolutely the last thing in the world I feel like right now. Cough has gone to my chest, eyes and nose are streaming, first post-mc AF horribly heavy and shattered from a tricky day of dd shouting at friend's dd all morning. Can I crawl under a rock and come out in a week?

Hey enlightened I have had 2mc, and one medical termination. Currently thinking I may be pregnant again (holding off testing for now).

I know the terrible mixture of emotions from having chosen to end a pregnancy, yet having no children and trying to conceive and then going through repeated miscarriages. Looking for medical answers, but none are fourthcoming. It can be so paralysing and confusing.

It is crappy ending up here, but The ladies here know, they understand and can advise. Welcome to the club.

I'm off on hols for a few days. Be kind to yourselves over the weekend! x

enlightened I was sorry to read your story and to hear all you've been through. Heart goes out to you.

We're all in similar situations on here and it seems that so often we can't get to the bottom of why we mc (longest sorry you have no answers either).

All I can say is that there is always hope. A few ladies on here have suffered the pain, fear and headache of mc but somehow they've had a baby. I am sure it will happen for you too.

The first few weeks after mc are so hard and I would suggest taking some time out from work if you can. One of my biggest mistakes was going back to work 1 week after my 2nd mc.

We will all be here for you as you move through the journey so keep in touch.

Let's hope 2015 is a good year for us all! X

just have a lovely time!

Welcome enlightened I'm sorry you have been through so much, you must feel wrung out. I hope the testing brings you some answers. Even the process of finally being taken seriously and having some investigations can be quite healing. I think the majority of us would prefer for something to be found, even if statistically you are better off in the "no diagnosis" group. It makes some sense of previous losses if you know why they happened.

Sorry to hear your stories ladies and thank you for listening to mine. Sad that we are here, but comforting to be able to talk to you all and know you understand ... Very much appreciated

Now would be the worst time to go on holiday/take a break from work - despite a sympathetic boss I already have to make 'adjustments' for the time I've been away (yay, more paperwork...) so it doesn't seem an option. Having said that, will see my GP and see what she says - am not sure the random crying/disturbed sleep is normal (makes me feel v Jekyl/Hyde).

longest - I'm in London - you? Hope your snot/phlegm settles and you can snuggle up to your partner soon..

^ random crying and distrubed sleep is very normal from my experiences x

Thanks for the messages of support. Sorry I'm not around much, I'm a huge ball of conflicting emotions and any 'requirement' to do anything sends me into a flat spin

Hugs Daisy we're all here and totally understand how you feel. Keep fighting, I'm told things DO get better xxx

Enlightened. Me too. My local RMC is the Whittington but I managed to get a referral to St Mary's in Paddington.

Daisy Hugs. Be kind to yourself. Is hard just keeping trying to battle on as normal.

Daisy - go easy on yourself. These are all natural emotions and we are all going through the same. What keeps me going is success stories like baking (and hopefully soon tanny) that we can all get there some day. For some of us it's just a longer journey.

Longest- at least the consultation is out of the way and you can now start to TTC. You won't change your mind about nkc testing? It may be worth it to have a full picture - hopefully it will be clear too.

Just enjoy your hols!

Btw for those that took time off work - did you need to get a letter from your GP?

Triple I think it might just confuse me at this point to have two different sets of advice. Did the rest of you go straight to Coventry after an all clear from st Mary's or did you try again first?

I only took a couple of days off so didn't need a letter, though think my boss would have been ok with me taking more.

Have fun Just. I prescribe holidays for everyone. It is the only thing that has made a difference for me so far.

enlightened a few Londoners here. My local is the Royal Free but I was also referred to St Mary's for investigations

lurker I had my DD after st Mary's then 2 more mc and only then decided on Coventry

Morning all. Still no AF here but I certainly don't have the unmistakeable pregnancy symptoms I have had before. If I am upduffed I reckon I might find that a comfort.

What about you cloudjumper?

aoife Nope, no show here yet either, but my temps took a massive dive this morning, so I think the arrival of the red wave of doom is imminent This cycle is really weird - I ovulated earlier than usual, around CD11, and now I am having a much longer luteal phase than usual. I'm on 14DPO today, normally it's only around 10 days. Who knows what is going on!

Daisy One day at a time, be kind to yourself. It is such a rollercoaster, you never know what is round the corner.

enlightened Welcome, and sorry you find yourself here. I think every each one of us will recognise herself in one or more of the things that you are feeling at the moment. Picking yourself up again after an mc and making the decision whether to try again or not is the hardest thing I have ever had to do. Hope that the tests will give you some answers.

Just Hope you have a lovely break and that you can get away from it all!

longest Yeah, being normal sucks, doesn't it?! Getting NK cells tested would have been my next step, but since my mcs seem to be caused by chromosomal abnormalities, I am no longer sure that this would help much at this point. For now, I will keep trying, hoping that we get lucky.

Love the NHS but yesterday was amazed at the wastage...

So I had the boxes of cyclogest 400mg... yesterday got the correct prescription for the 200mg...

At the pharmacy asked if they wanted the 400mg box as it was unopened and unused and most definitely not tampered with... and they said "we can dispose of it for you but we can't reuse it"

I hope it's not expensive... in the end i said i would keep them in case my prescription changes, but I was a bit - why dispose of something that hasn't been opened?

Hi ladies, can I join you please? I'm 29, married to DH who is 34 and we have a five year old little boy, I had one miscarriage before him at 5 weeks pregnant.

We have been trying to conceive number 2 since January and I'm currently having my 3rd miscarriage since then. One in February at 7 weeks, one in April at 5 weeks and this one now at just under 5 weeks. BFP last Thursday and heavy bleeding since Tuesday. My doctor prescribed me low dose asprin, an antibiotic gel and progesterone suppliments on Monday but it was obviously too late.

I've now been referred to a recurrent miscarriage clinic and I'm just waiting for the appointment to come through. I'm scared of what they may find but I think I'm even more scared that they'll find nothing. Surely four losses out of five pregnancies has to be more than bad luck? I'm terrified to try again, I don't even know if I have to wait until after my tests to try again? Although I'm so blessed to have my little boy I'm feelingso disheartened and terrified that this might mean I can't have another one.

Hi Finnsmum

If you are being referred for tests i would wait to ttc... some tests really need you not to be pregnant...

good luck

Thanks TinyTear, we'll hold off until after the tests then x

Glad you decided to join us finnsmum
Def have a break from TTC, some tests need you not to be pregnant but also if something is found you want to be on the appropriate treatment in your next pregnancy. It would be awful to lose another and then find out it might have been prevented. Hard enough if you get a diagnosis and with the benefit of hindsight think your losses could have been prevented, but not our fault you need to go through a certain number to access testing in the first place....
It does you a power of good to step off the roller coaster for a bit anyway.

Hmm. So the going to work is not really going. I get ready, but only seem to get as far as the door before crumpling in a teary heap. Oh well.. seing gp next week.

finnsmum Sorry to hear what you've been through. We're also in a kind of limbo, waiting for the clinic appointment and wondering what will be found (if anything). Emotions cons tantly changing as to whether 'normal' would be good or not. Sigh.

bakingtins Hadn't got my head to the ttc stage yet but good point, thanks.

longest & tinytear i think my clinic appointment will be local (chelsea&westminster). Theyve been really good so far (mostly). Hadnt even considered st marys (prof regans clinic?), now wondering whether i've done the right thing.

enlightened i think you could be able to ask your GP to refer you...

For me it was my GP who sent me there, it was Prof Regan's clinic but I saw Mr Rai