Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Hi Cloudjumper (love the name, btw), I have been advised to lay off the monitoring (even the two times I have taken my temp this week have been 'naughty') as it was stressing me out. If stress from monitoring was one of my problems, maybe this strange body behaviour is the result of 'letting go' a bit?! Weird!

Bootle, yes, we've dtd again yesterday and I guess we'll just keep going until we can't keep going any more!!! :)

Hmm, a bit of googling suggests PCOS can cause false positive OPKs. I guess I must have that - Mr Rai suggested I probably did. Grr for a number of reasons - the symptoms it lists aren't a whole host of fun and grr also because I have asked my GP about my weird cycle etc so many times and always drawn a blank.

Think I will stop taking ac actually. Mr Rai said it was fine to take but apparently it can make PCOS worse.

Cloud- sorry your body is weirding you out too. really good luck! I should probably name change as well - haven't been a lurker for a while now - but I'll give everyone a chance to get their head round your name change first.

Longest, hope you do get some answers. I know that PCOS can make things more difficult, but I know quite a few people who have it and who have had children. Thinking of you, and will eagerly await your news after your appointment; I am vicariously enjoying anyone getting some answers, since I have precious few of those myself...

Longest on the Miscarriage association site they are looking for people to review a book about pcos and fertility

www.miscarriageassociation.org.uk/phpBB3/viewtopic.php?f=11&t=5917

Counselling was ok...

As it was the first session there was a bit of form filling and she asked me to do one thing I am a bit sceptical about - watch some relaxation videos on youtube before bed

i might give it a go, but not sure it will help...

so tears and talk and hopefully things will be better...

next session will be the day before the scan so let's see how it goes...

bootles If AF doesn't show, the earliest I would test is CD27...which will be Saturday. I can't deal with an 'unsure' BFN anymore, so I won't test earlier than that.

just It's hard to find a balance, isn't it! Damned if you do, damned if you don't kinda situation.

longest I also find that trying to talk to my GP about ttc is useless - let's face it, but now we are hardcore experts, they can't keep up with that! Although I can understand that as a GP, you probably only know a little about a lot of things, I do find it so frustrating. They are the first port of call in so many situations, and it's annoying when you get fobbed off with unsatisfactory answers. I'm dreading the situation when/if I get my next BFP, to go and ask them for heparin and progesterone. They will always give it to me, I don't doubt that, I resent the fact that I have to make an appointment, go there, explain for the 100th time, wait until they go through my records and find the letter from the consultant. Urgh.

tiny You never know! I used to listen to relaxation tracks when pg with DS (you know, plinky music, with someone talking rreeeaaallllyyy slowly ), and I don't think that I ever managed to get to the end of the CD!

Might just listen to my own music... (droney post rock Godspeed You Black Emperor)

I am willing to give it a try... put the phone by my bed and let it roll...

ha my GP was googling Professor Q while I was there probably to see if she was legit

Tiny I love Godspeed. We should definitely do that lunch! Will let you know when I am over this cold as it's the last thing you need right now.

PS Tiny is your name a reference to the Tindersticks song? I assumed the doll until you mentioned Godspeed.

Yes, tindersticks
People usually assume the doll which is annoying as we didn't even have those dolls where I grew up

And what a coincidence lurker!

I was 14w pregnant last time I saw them live (at Ally Pally)

Godspeed, not the tinders who I last saw at ATP

Cool. I have it going round in my head now though! Beats the Frozen soundtrack which it has replaced anyway. Who knew power ballads would appeal to three year olds so much?

Heh heh - At Butlins Minehead? We were probably bopping away together.

Yep. Thats the one... It was the one Godspeed curated, right?

I was a bit down as I was supposed to be 8 months pregnant from my mc1

Hi everyone
Thanks for your kind words/thoughts. I stayed off MN over the weekend to try to stay chilled.
ERPC yesterday went as well as it possibly could. I'd recommend UCLH to anyone - the docs and nurses there were all terrific. It was quick - arrived just before 3pm, into surgery around 5.30, awake by 6.30 and allowed to leave at 7.30 or 8. Had two wobbles when I had to change into the gown then again when the anesthesiologist was about to knock me out. Have been feeling a bit slow today, a bit sore and some bleeding but nothing I can't handle. I think I chose the right path in the end.
Even though this was only my 2nd MC we paid to send the baby off privately to have the chromosomes tested, I know there's a decent chance that there will be no result but it's something both DH and I are happy to pay for.
Planning to take a break until AF shows up then start TTC but will take it easy - no tracking, no temping, just DTD every 2 days. FC!

Charlie - so glad to hear that all went well and you are happy with the choice that you made!! Didn't NHS offer to test for you? Why did you have to pay? Very helpful that you described everything as mine is on Friday - so I have a bit of an idea too!!! I have a busy Saturday planned too, hope I can keep up with the activities, which also includes visiting a new baby in the family - apparently it was an accident and the couple have too busy working life so the child will be shipped off to grandparents in another country! It annoys me that such people become parents so easily. Why is life so cruel?

Thanks everyone. It wasn't too bad at work but also some of the important projects were taken away from me whilst I was on holiday! I had mentioned my impending miscarriage before I left and I wonder if that had something to do with this. Part of me is unhappy as I want to do the high profile stuff and part is like sod it as I don't really have much motivation to do anything these days - so maybe it's a good thing!!

Jbrd - Loving the new name.

Tiny - when is your scan booked?

Cat, bootle, longest, just, tanny - hope you are keeping well. I need to scroll down to read the news but currently on the phone on train.

Longest - re pcos, mr rai thought same for me as I failed the TEG test. He said as I was getting pg it's not really an issue. Dr shehata though gave me metformin. It hasn't helped really as I miscarried anyway, but it did help curtail my appetite and I was able to fit into my trousers!! So maybe it's a diet pill.

I am going to try to get the GP to prescribe it to me.

I was on metformin in my viable pregnancy because of gestational diabetes. It helps settle blood sugars

Scan is a week tomorrow
I will be 5+6

Charlie, so glad it all went well. They are good, there, aren't they? The last time I had an ERPC it was there and I got my AF 28 days later exactly. Glad they're testing, too. It's so frustrating that the NHS don't automatically test until you've had 3. I was so frustrated after my 2nd as we would have happily paid, but were fobbed off. It takes about 6 weeks for the results to come back from UCLH and they will probably phone you directly to tell you and follow it up with a letter so you have it in writing.
Tiny, good luck tomorrow!
Triple, glad work was semi-OK, hope you get back into the swing sufficiently to not hate it soon enough. Crazy about that couple and their baby!!!
I'm still Ov-ing. Going for a world record attempt, I think. I have now had EWCM for about a week. Maybe I am metamorphosing into a snail...
I have 'broken' and done an OPK, which was positive, so another (nudge nudge) early night tonight! Ov pain is so bad, I am beginning to worry it may actually be my appendix... Crazy times!

Tiny, just re-read. Sorry, good luck for a week and a day

longest hope you don't have pcos..but if you do, its not something that has stopped you conceiving at least, but sure its a gynae issue you could do with out!Hope Mr Rai clarifies tomorrow.

charlie glad it went as well as it could of. Hope you are on the mend soon.

cloudjumper you are very restrained and sensible to wait for day 27 to test.

triple what's the link with pcos and TEG?

tiny hope you staying relatively sane in the time leading up to scan.

At least my scan today showed everything is gone from the mc..so sort of draws a line under this one. Other than waiting for chromosome results.Much more anxious this time about that.

As per my post earlier today, has anyone else forgotton a due date? The guilt is lingering.. There are so many dates to remember. Due dates, dates of mc, dates when found out all that was wrong with no.2.. 4 lots of dates, I can't keep up. Also in my defence, I tried not to let myself think due dates by the third mc. I wish I didn't have such a desire for neat order and could just stop trying to keep up with dates. Is that bad?

I remembered my due dates the first year but not subsequently except for MC1 when the EDD is my birthday so difficult to forget that one, and as MC had never entered my head I'd done plenty of imagining sharing a birthday.....
Chances are in a successful pregnancy baby won't be born on due dates, we attach more importance to them than they deserve. Don't feel bad!

Bootles not bad at all. Didn't someone else post something similar a few days ago? I honestly couldn't tell you without working it out what my due date was for mc1. If I am really honest I grieve more for the fact I don't have a baby yet than for the ones I have lost - the most recent mc is always the most painful for me.

Tiny I don't think I went to that one but can't think why not. I went to the mogwai one and the dirty three one and the original one in camber sands. It was all pre pregnancy and dcs though so a while ago. Have started trying to go to more gigs again recently though. Makes me feel more like me. How are you feeling? I am silently cheering you on here but know it must be nerve wracking.

Hmm, I think I would try and make a fuss triple, however much you don't feel like it. Is a rotten way to treat you and you might feel differently in a couple if months. Unless they did it in a nice way temporarily to give you a breather while you recover?

In a weird move dh has started work in my office this week. It's pretty huge so we don't work directly together but has been kinda nice having lunch together and commuting in. Bit strange having my worlds collide like that though.