Recurrent miscarriage support - tests, treatment, trying again - thread 8

[Bakingtins]

Welcome everyone, pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of company, information, moral support, tea or sympathy.

Can I suggest we start page 1 with a recap of where we are all up to, because my fuddled head can't keep track?

Oops posted too soon! Meant to say what happens after 12 do you have to wait until 20 for the next scan?

Great news baking

butterfly last time for me I was at the RMC and was scanned there at 6, 8 and 10 weeks, then my regular hospital at 12 weeks and then 20... but because it was a teaching hospital and then I got gestational diabetes I ended up with more scans first to demonstrate some technique to measure blood flow and then regular check ups for the GD...

Tiny that was lucky for you getting extra scans, my cons has said in the past I will be scanned weekly until 12 weeks which is great but it's a long time to wait between 12 and 20. But hey I haven't had my 7 week scan yet so 12 and beyond are light years away...

Hello ladies just wanted to say hi I have been offline for a little while then had to find u all again big congrats to all with progressing pregnancies I had another scan at 16 weeks baking so u can push for that I did and butterfly I had sickness on and off from 7 ish weeks but nothing before that ..... As for me I am now 42 weeks and being induced tonight this is a very stubborn little man but have decided we preyed so hard for him to stay there in the beginning till past 20 weeks now he is confused and doesn't know if he should come out lol had 4 sweeps in the last 2 weeks :( but hopefully 24 hrs from now it should all be over :)

Anyone who feels like giving up after 2 dcs then 3 mcs I have finally made it to this point with no explanation to why I lost those darling babies but it is possible to make it in the end so good luck to everyone xxx

Oh and tea 28 weeks that's brilliant it will all be over before u know it and your little boy will be here big big congrats :) xxx

Good Luck Lands! :)

Good luck Lands hope you have your little boy soon :) great to hear a happy ending.

Well first things first we have a heartbeat! But I'm behind to what I thought I was they adjusted my date anyway beacause my cycle is slightly longer so that puts me at 6w 1 day, then when she scanned me it measured 5 weeks 1 day which horrified me but she said it's fine as I ovulate later in my cycle too the sac and baby measured in proportion so it's not like it isn't developing just earlier than I thought. Has this happened to anyone else and all been ok?

Good luck Lands we will be watching for a birth announcement soon!

Butterfly a HB is good. I think that early on the measurements are so small it's easy to be inaccurate. You are talking about a 1mm fetal pole at 5 weeks and only about 5mm at 6 weeks. The HB normally isn't seen until 6 weeks so that would fit more with your adjusted dates. Bit annoying to be put back though - you must feel like you have to do that week all over again! When are they rescanning you?

I think the plan is if I get to 12 weeks ok then I go back to routine antenatal care which will mean no scan until 20 weeks. I have booked a private OSCAR screen at 13 weeks which includes a detailed scan, then it remains to be seen whether I can hold out for 7 weeks.... can see me sneaking off somewhere for a scan but DH will go mad!
I'll have additional growth scans at (I think) 28 and 34 weeks because steroid treatment has been linked with IUGR so they'll monitor for that.

I know Baking it feels like I've waited forever to get to nearly 7 weeks so to be put that far back is like starting all over again but if it all works out it will be worth it the crl was 2.2 mm. I totally over analyse things I worried that the hb was there but wasn't developing but because the sac measures for the same dates as embryo it seems ok the sac was 14.3mm. It wasn't my cons that scanned me I think the lady was like what's the problem why arent you happy?? I'm being rescanned next friday.

I think I would sneak an extra scan inbetween too if I was you! :)

Morning Ladies,
I don't know if you have seen this before, but it may be of interest to anyone who is going to St Mary's. I think it was filmed in about 2005. Warning, you may tear up at the end, so have the tissues handy.

Spotting and cramping from the IUDs this morning. Grr. Hate them. Three weeks until I get them removed. Back in St Mary's on Wednesday for bloods.

Hope everyone else is OK this morning?
xx

Hey folks,
Sorry I've been awol for a bit. Haven't been in a particularly good place. But actually have cheered up coming back - lots of lovely goings on here I see!

I got a letter through today with some of the results of my tests. Apparently I tested positive for lupus anticoagulant. Anyone else in the same boat or know anything about it? I gather that broadly speaking its a clotting thing and will involve baby aspirin/heparin? On CD2 today and was going to start trying this month but now figure we should wait to see the Dr again? Bit gutted about that - part of me wants to start taking aspirin now...

Aww Just I'm quiet at work so just watched it on my phone what a lovely ending for that girl I think we all can relate to how all of all those ladies were feeling and the emotions they were going through...it's definately worth a watch for anybody who hasn't seen it.

Booo about the spotting and cramping :( are you having bloods done on wed or getting results?

Camomile I don't know much about it but I thought it was a clotting disorder if you watch the video that Just has linked there's a lady on there who is diagnosed with it.

Lands great to hear from you! Hope your stubborn little man decides to pop out quickly!

Butterfly from what I've seen/heard, it all being 'in proportion' is the main thing - and a HB too! As implantation times vary, as do cycles, there will be beans who are a few days bigger/smaller but if everything around them (sac etc) is in proportion it proves bean is growing.

Baking I reckon if/when I get pg again I will also book private scans for that looking wait! Even though logically the early ones are the important ones, so glad you've had a good 10 week!!

Chamomile I also have a clotting thing - yes its aspirin and heparin. But told never start aspirin before bfp as thinned blood not good for implantation!

I am getting a bit frustrated with St Marys providing me with letters. They forgot to send me one (didnt realise until Mr Rai did and apologised) and now waiting for the diagnosis confirmation for my GP which I will be CCed into. Do you reckon 2 weeks then phone them is reasonable? Paranoid i'll get a bfp and my gp will be like "no one told me you have any syndrome! Begone!"

Doubt it will be a bfp this month ... Missed ov date as was just before the appointment so still being good andnot trying. Tried after but cm and calendar told me a bit too late. Also, pmt (achy boobs n back) is starting right on time for AF to arrive Thur or Fri. Not too disappointed as in my mind ttc proper will start next month!

Blimey, just that had me bawling my eyes out! Let's hope it's hormones, eh? I identified so much with all the emotions expressed. It is a tough old road we are all walking, so pleased to have found such lovely travelling companions. Hope we all get to do the gazing at the baby bit in the end.

I blubbed most when she thought she' d mced the day after 'graduation' and it was a false alarm. Oh, and from then on until her hub at the end! Mega blub.

But I laughed when prof Regan said "better out than in".

I was telling a girl I work with about it she knows what we've been through we're all very close as there's just a few of us and she watched the end bit with me she said gosh I'm filling up and I've got goosebumps- that was the bit where he came running out and said its a girl! I think had I not been at work I'd have cried all the way through! Made me feel totally normal about feelings, the anxiety, everything.

When it was on telly in 2005 I probably wouldn't have watched it and I certainly wouldn't have imagined it could be me on the screen

I was interested that at that stage they were talking a lot about immune issues, treating with steroids etc, which they seem to have moved away from?

The clexane bruises on her stomach made me cry. There's no hope for me!

Gosh didn't realise it was done in 2005 I was only 19! Wasn't even thinking about children but just assumed it. would just happen when I wanted it to how naive!
I assumed it was made more recently because they were discussing immune issues, I'm quite surprised they don't know more about it if they have been treating. people for at least the last 8 years.

BFP this morning. I only MC'd 3.5 weeks ago.

I have an RMC referral appt on 25th, but any advice on what to do in the meantime would be great.

At the moment I just want to be so cautious. All my MCs were around the 6 week mark, so the next few weeks will be weird...

Can you bring you appointment forward? call them to let them know as they might want to scan you earlier...

Morning all, Sorry if I set off a few emotional rollercoasters there! Hope it was cathartic rather than traumatic! I cried when I first watched it, and to be honest I haven't watched the end again for reasons of self preservation (emotional coward) . This time I was just thinking 'I have seen him, met her, had my surgery in there'. etc. BTW, little story about Raj Rai: when I was in recovery (and on lots of morphine) I heard him say to the nurses (one of whom had offered him a cup of tea of something) "My patients don't get to have anything to eat or drink, so I won't stop to have something to eat or drink!" Seems like a nice guy. They all do, actually. Although Squiz I agree that the admin does seem to be a bit bonkers sometimes, and they definitely 'over fill' their appointments rather than have an empty clinic day, so patients can end up waiting. I guess they want to get as many people though as they possibly can.

Hello Tanny, congratulations. Might I just add a cautionary note, however? Did you get a BFN since your MC before today's BFP? Was your MC confirmed as complete, and did you have at least 2 weeks without spotting? I hate to be the one to say this but it has happened to me twice that I had some retained products and that was why I still got BFPs several weeks after the MCs. I spent a very miserable Christmas in 2011 not drinking anything at all after MC 1 because I thought I was PG again only to be told the day before NYE that it was retained products after all. I hope that this isn't the case for you and that it a genuine new BFP, and it STICKS! But I would go to an EPU ASAP and get scanned to find our exactly what is going on. Best of luck, and warm wishes - again, I hate to put any sort of downer on things.

Butterfly I am human pin cushion again on Wednesday; IUDs out at the end of the month and then full results mid December.

Thanks for the advice! I got off very lightly with my last MC. Two days heavy and three days light and spotting. I tested negative from 5 days post MC to today. I think I am PG, but we all know that's just step one!

In that case, Tanny Massive congratulations to you, and may this be the one that works! :) :)

Omg I cried all the way through, I actually feel relieved that I can't TTC until April

Just Yes he's lovely. Thought I was bonkers lol! In the video where he shows how heparin works with his hands ... He did that at our appointment! I think i'll call end of next week. Sure it'll be ok, everything's on computer these days anyway.

Tanny big fingers crossed for you. Ring the clinic! You never know they may see you earlier.

Had a very odd night last night. Know i'm not pg, have OVed this month and AF due Friday ish. Aching boobs, hot n cold - all sorts. Got so paranoid I did a check for lumps, but the pain seems muscular. Sure it's nothing really, or maybe the muscle under the boobs reacting toa cold bug or something.