Hi all, I discovered I’d had a MMC last week. It’s been a pretty harrowing experience but reading this thread (in its entirety!) made me feel at least more prepared for the practical side which has made a huge difference. I thought I’d share my story in case it’s of use to anyone.
My MMC was discovered at a private scan at 10 weeks - I’d booked one as I’ve generally been very anxious about this pregnancy as it took us such a long time to conceive (I had hypothalamic amenorrhea - no periods due to excessive exercise, though it went undiagnosed for several years) and also because my mum had several miscarriages. At the 10 week scan the sonographer couldn’t find a heartbeat and the baby was measuring around 8 weeks.
I got a bit confused about what to do next - I was pretty upset and the sonographer was trying to be helpful but kept saying ‘do you know how to contact your midwife? Do you know how to contact the EPU? Do you have a GP?’ So I was thoroughly confused about who I was supposed to contact about it. This was at about 6.30pm when everything was closed anyway, but after reading everything the midwife had given me the only thing I could make sense of was ‘if anything goes wrong before 16 weeks, go to A&E’ and that my EPU needed either a GP or an ED (I assume this is emergency department) referral. I wasn’t actually bleeding at this stage so felt a bit bad about going to A&E, but trying to get a GP appointment at my surgery is a nightmare so I went to A&E first thing. They were great, saw me in 5 mins and sent me off to the EPU with a referral.
It took a while to be seen at the EPU (I was there about six hours in total) but got what I needed. A nurse explained that a sonographer would do another scan to confirm the miscarriage and if that was the case I’d have the options of surgical or medical management or getting nature take its course. Having read this thread already I’d made up my mind that I wanted surgical so she made a note of that and sent me off to wait for the scan. (This all sounds very practical in retrospect but I did bawl my eyes out every time I spoke to a new nurse.)
The sonographer did an internal scan and confirmed that she could see what had been seen previously, and brought in another sonographer to be sure (as it’s NHS policy to have two people confirm). They sent me off (bawling again) to the quiet room (I think they forgot about me a bit for this point as had to wait ages) and then a nurse talked me through the surgical management. She explained I’d need to come in on the Monday at 7.30am having not eaten or drunk anything that day, have bloods done, then half an hour before the surgery they’d give me a tablet to insert to soften the cervix (they only do this if it’s your first pregnancy). I’d then be given painkillers then general anaesthetic, they’d do the procedure, I’d wake up and have 1-2 hours in recovery before being sent home. They also asked me to fill out a questionnaire (medical issues etc) and gave me some antibacterial body wash to shower with on the Monday morning.
On Monday I came to the ward at 7.30 and was given a surgical gown to change into straight away and a bed to wait on, which was good. I also had blood pressure taken and was given some paper pants and surgical tights, and they taped up my wedding ring. A doctor came to talk me through the process and what to look at for afterwards (any clots, or needing to change a pad more than once an hour, or still bleeding after 3 weeks, give them a call). Then the waiting began! I actually ended up not having the surgery on the Monday as they had some emergency cases and ran out of time. As I had my own bed it wasn’t too bad (I got loads of trashy reading done) though was very hungry by the time I was sent home at 4pm.
I came back the next day (today) and it was much quicker - I got my own bed again and did the same surgical gown/stockings/paper pants as previously. The anaesthetist talked me through the process too. At about 10am they confirmed I’d be definitely having the surgery that day and gave me the tablet to insert with some lubricant (unpleasant but not awful).
I think they took me to the anaesthetist (who was lovely) at about 10.45 and I woke up in recovery at about 11.10, so it was very quick. It didn’t take me too long to recover - I’ve had general anaesthetic for a broken bone before and it took me much longer to come to. They brought me some water and a sandwich and after about an hour asked me to get changed and have a wee in readiness for being collected (they’d given DH a call to let him know when I’d be ready). I didn’t have any pain at all, the only slightly awful bit was when the (lovely male) nurse helped me out of bed so I could get changed and I dripped blood all over the floor. From that I thought there were going to be horrific scenes when I went to the bathroom but it wasn’t too bad, it was just that the pad they’d given me hadn’t stayed in place very well. I was really glad I’d read the posts about bringing wet wipes to hospital as they made sorting that out a lot easier.
After that they gave me some medicine to prevent infection and gave me the discharge notes, and took me downstairs to meet DH. I was home by about 1.30pm (via McDonalds for a recovery milkshake).
I’ve been in bed since then but feel OK - I think the emotional side is probably going to hit hard in the next day or two but physically I’m in no discomfort and not bleeding any heavier than a light period.
Sorry for the essay but hopefully this is useful to anyone considering surgical management after a MMC.