Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

Thinking of you today digital I think you are doing the right thing so the embryo can be analysed and try to answer the questions about why. I'm glad that you are also making an appt with Dr Shehata as I know if I was in the same situation, I would need to know that I had tried to get an answer from someone as to why this horror keeps returning.

I've seen comments from Lily Allen this week that miscarriage changes you. She is so right. You feel panicky, paranoid, and like you have lost your innocence and hope about pregnancy.

Thinking of you and hope you make a speedy recovery.

Thinking of you today digi. I also think you're doing the right thing. Getting answers is very important for your sanity at this stage. I'm going to see Prof Quenby next Friday and also thinking of seeing Dr Shatheta as Quenby has no funding at the moment so can't do testing. I hope everything goes as well as it can and they treat you kindly.

Lots of love.

I'm on my first work trip today since the miscarriage and it is reminding me that on the last trip, I started to get signs that I was going to miscarry. A painful reminder and of course, a pregnant woman is setting next to me on the plane. I'm being mean and not offering her my aisle seat. I'm hopeless, really.

digigirl Just to say I am thinking of you today. You have made the right choice. I hope today goes as smoothly as it can for you and you get some answers. That is the hardest part - going through this absolute nightmare and having no bloody reason why.

I am so glad you are going to see Mr Shehata. I am under his care and I have just started following his plan for raised killer cells and raised ATA's. He is brilliant, very sympathetic and understanding. You need to know that you have "covered everything" and he is one of the best.

LAF77 that is so true what Lily Allen says. It really does leave permanent mental scarring in some way or other. Miscarriage is truly one of the most soul destroying and heartbreaking experiences to go through. I am currently on the 2WW - will know anyday now - I just can't afford the luxury of getting excited though and if I do get that BFP and I will be living on my nerves.

Love and strength to everyone xx

digi I've made the same decision - well, I still need to find out about insurance coverage. But assuming we can afford it, we're going for NK cell testing too. I want the information. Did the ERPC go ahead?
I hope you're ok. Well, as ok as you can be in these horrible circumstances.

digital, I saw this y'day and I've come back to it four or five times, trying to think of the right thing to say.

I still can't think of anything, because of course there isn't anything. Apart from that I am so, so sorry.

Thinking of you lots and hope the ERPC isn't too harrowing and brings you some answers.

Digi still thinking of you and hope you're OK after ERPC.

Back home and in bed now.

My procedure was the last of the day and unfortunately they didn't realise when they called me into the ward that dh was allowed to wait with me. But I had a really big book to read so I kept myself distracted as much as possible. It was only just before I went into theatre that I started to cry. They'd put a tablet in me to dilate my cervix which was really starting to cramp by that point. It's awful how miscarriage cramps and labour contractions are so similar.

I woke up fine and they wheeled me back to dh. The doctor came to see me and assured me that a sample had been sent off for karyotyping. They also tried to book me a follow up appointment with my consultant but couldn't get anything till November. Dh will call today and hopefully get me something for next week. The doctor was so kind, saying how grieving for four lost babies would really take it's toll and that I may want to take more than two weeks off work. Which I may do, but at the moment I'm only planning on taking a week off.

Thought I was recovering well till I came back from a trip to the toilet while still at the hospital. Got myself dressed and then started to feel weak and dizzy. I think the anti-emetics had started to wear off. Got home and lay on the sofa completely unable to do anything as I felt so weak and groggy. Dh had to spoonfeed me dinner. Which made me cry at how useless I'd become.

My thoughts this morning depressingly turn to how we'd improve my experience of an erpc next time: make sure dh is allowed to wait with me, bring slippers, ask for more anti-emetics and see if a family member can pick us up so I don't have to sit in the back of a cab making my nausea worse.

glad your home digi. I can completely identify with the morbid forward planning for future erpc's. hopefully you'll get a quicker appt than november.

look after yourself for the next few weeks.

digigirl

Glad your home now. Nothing anyone can say will make this moment in time any easier for you - nothing at all. Unfortunately we all know the pain you are feeling at the moment. However you must go easy on yourself. Please don't ever think of yourself as useless - your body has been through a lot. People are all different and only you know when you will be ready to return to work but please don't rush back - give yourself plenty of time. I had effects from the anaesthetic for almost a week after the erpc I had last time - groggy and occasional dizziness.

Take extra care of yourself. Big hugs x

Oh digi there's not a bit of this that's fair. I can completely relate to the misery of mc pains being like labour, but worse because it can be more painful physically and then there's the mental agony of no happy ending. I can also relate to feeling weak and groggy and just bloody angry at the way this whole process makes you feel defeated and broken. So very well done to you for getting through it and I'm pleased they were sympathetic to your losses. Take as much time out as you need and just try to focus on getting through one day at a time. A big hug for you and your DH. Thinking of you. Xxx

LAF Really hoping your work trip wasn't to Japan.

digi Hugs to you, take time for yourself xx

digi what a horrible thing to have to go through. You have reminded me that even when an ERPC "goes well" its an awful experience. I'm so sorry you had to go through it. Taking time off work seems like an excellent idea. Any reason why you dont want to take the doctors advice and go for more than two weeks? Take care xxx

coconuts I went to Spain this time. I'm home now and safe, thanks for thinking of me. I'm horrified by the images I've seen in Japan.

Thinking of you digital I understand the completely physical breakdown and inability to do anything after miscarriage. I had to accept that I needed my husband's help to do simple things that used to be easy.

Big hug

LAF I know, it's terrible. I have had the news on for the majority of the day. I remember you went to Japan last time so you were the first person I thought of when I heard about it and came here. I have no RL connection to Japan. I am glad you are well and safe :)

digi Hope you are doing ok, I remember how awful you will be feeling, both physically and mentally. Let your DH look after you, and don't rush yourself with anything xx

mattsmama just wondered if you could tell me a bit more about your experience with Shehata. Will pm you if that's ok.

mattsmama I just saw your thread in pregnancy - you got a BFP congratulations! xxxx

mummmyabroad Thank you! VERY nervous though (maybe a teensy bit excited)

mattsmama, I found the first few days the worse for nerves- worrying that AF will just show up and it will be all over. I am feel a bit more relaxed now though (6+1), having HCG tested three times helped, but also I think I am saving up really worrying for later on as my mmc was detected at 14 weeks. (baby measured 9 and a half) I think (unscientifically) that my body is OK at doing the early bit. How are you getting on with Sheata's plan?

Congratulations mattsmama, sending sticky vibes

Congratulations mattsmama :)

Congratulations mattsmama. I understand the nerves completely. Keeping fingers crossed for you. How are you doing Mummy?

Hope you're holding up okay digi and LAF..

Waves to frazzled. Hope your gorgeous little man is getting nice and chubby.

Hello to everyone else. Hope everyone is as well as they can be. Got my anomaly scan and appt with consultant on Wednesday, so will hopefully find out the sex. Nervous as hell, but feeling a little less mental than I did at 12 weeks. I'm enormous. Hope all is well in there. I can't entertain the idea of anything being wrong, so I'm just trying to be positive.

Congrats Mattmama :)

Glittery - Can't believe you are at 20 weeks already! It's a lovely stage, not too big to fit through a door sideways and the beginning of definite kicks. I remember it well and can only hope I get that far this time.

I have my 12 weeks scan on Thurs, although I will only be 11+4. time has flown. I am still so nervous. But I look visibly pregnant. In fact, whilst visiting ILs today, some relatives were there who we haven't seen in a year. One of them actually turned round and said to me "looks like congrats are in order" I was holding it in as well and hiding under baggy clothes. I am in maternity jeans already, awaiting another ebay delivery this week.

HG is under control I think. Still have bad days if I do too much or don't rest enough after taking my meds but the cyclizine don't really make me drowsy or dizzy anymore so slowly beginning to catch up on housework and washing, but still going steady.

mummy Hope you are doing ok too.

Much love to everyone xx

Congrats to mattmama. Understand you're extremely anxious, but you're now one step further. fingers crossed this is your turn.x

digi thinking of you.x

coconuts and Glittery glad to hear everything is going well with your pgs. will be thinking of you on your scan days. Glittery it will be lovely to find out the sex.x

AF started yesterday (would make cycle 27 days), or so I thought. It has now changed to brown spotting! Not sure now whether it is the aspirin or AF (arghhhhhh - what is going on!)

Congratulations mattsmama

Good luck with scans coconuts and glittery

Day one of my two weeks off - ds is at childminders. I have 7.5 hours to myself.

Dr Shehata appointment booked for next Thursday.
Follow up with my nhs consultant booked this Friday. Will ask about progesterone supplements and whether I've actually had a thyroid test.

Dh is back on the zinc. I suppose I should continue with the folic acid and dig out my thermometer for when I stop bleeding. It's like groundhog day and I know the drill without thinking. I even know what kind of pg tests to stock up on. Pack of Internet cheapies, 1 x FR and 2 x CBD.

It will be difficult holding out for test results. But hopefully I'm not looking at a 3 month wait this time.