Hi everyone, things not great today, very sleepy and quite a lot of pain and sheer lack of energy and continued swelling. Thanks for the message about my feet - skin all intact, it’s my bum and coccyx which seem to have taken a more uncomfortably hit, but Kerr massaging as much as possible. It’s almost funny that I have so much swelling but my actual bum has totally disappeared. No Kim K here!
The swelling is so bad now on my abdomen, back and legs that it’s hard to do anything at all, and yet my arms and chest are totally emaciated. Had a bit of a night with pain again, but hopefully that means tonight will be better. Just so bloody sore.
Been feeling quite faint and my hearing has gone totally wonky, so had to go and get bloods taken this afternoon, and my haemoglobin levels have fallen quite a bit, as have my platelets. In need 2 units of blood tomorrow urgently, which puts my chemo into severe doubt for Wed which is a big blow.
Speaking to Prof B tomorrow to see where we go from here. Gutted.
Grandma travels next Sunday, which in many ways I think will be the best thing to have them all be together at this time. A bit stressful for her, but there is lots of room for them to be together in NI, and maybe this is for the good.
I am quite scared now. We went to a wheelchair walk after bloods to try to clear my head. Hate the way people just gawp at me with that sort of self pitying long, I known it’s human nature, but it’s quite hard. 3 months ago is was one of them striding out.
Thanks for all the pics, messages, art, Namibia, dog pics, flowers, prayers and healing. These messages now take a while to write as I keep drifting into gobbledygook.
Hope better news tomorrow, worried though. Miss Jacob so much.