Hi everyone,
It’s been quite a tiring, to say the least, 24 hours. I seem to have hit a brick wall completely with the tiredness and it’s quite hard to stay alert and awake. I keep sending texts to mum and Jacob that end in gobbledygook as I drift off.
Halved the dose of dex today, so that has clearly had an impact. I’d quite happily stay in bed all day, drifting in and out. But thankfully, Kerr is not for that and is making me get up and walk about a bit. In fact, we went on my wheelchair to Holland Park this afternoon and I was tasked with walking holding it for a few minutes- very tiring but glad I did it as the odema has not shifted one bit and it is extremely uncomfortable.
Eating still a major issue because of the swelling, the fucking massive tumour (sorry but I’m so annoyed with it) and the mouth issues. The oral thrush hopefully is being treated with the nystatin swish, but uncomfortable. Got some pastilles from Boots to help with saliva production.
Just had a Fortisip, disgusting but doing what I am told. The jaundice is definitely worse and I’m really worried about it, but just taking taking it day by day. I have blood tests tomorrow to see where I am at. Hoping I will be ok for chemo on Wed but who knows. Sending this now with a pic. It’s taken so long to write this as I keep writing nonsense.
Thank you for all the continued prayers, wishes, love and support. Faith, hope and love.