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Life-limiting illness

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Hand hold - DH likely to die in next few days

455 replies

Bahemoth · 17/07/2024 06:20

My DH went to hospital a month ago with seizures that wouldn’t stop. He was resistant to all medication so they had to put him in an induced coma on ICU to try and stop them and reduce swelling on the brain. This last option hadn’t worked, as they don’t know the underlying cause for the seizures and they’ve now told me he’s unlikely to survive.

We have two young children and I’m not sure how I can face life without him or how I would break the news to DS9 when the time comes. My other child is 4. I’m in bits, he’s only 39 and was fit and healthy before this.

OP posts:
Sniffywhippymum · 17/07/2024 09:12

A stark reminder to all of us of how life can change in the blink of an eye. I don't think there is anything I could say to you that hasn't already been said, other than that I am genuinely so very sorry this is happening to you and your family. Take comfort and help where you can and don't look further than today. xx

Littlefish · 17/07/2024 09:12

Apologies if this has already been suggested, but the Ruth Strauss foundation is set up to support children who are facing the loss of a parent.

It may be aimed at situations involving a cancer diagnosis, but there may be some helpful resources and information.

ruthstraussfoundation.com/info-and-support/support-resources/

Peridot1 · 17/07/2024 09:13

I am so sorry. This seems so unfair.

Sending you strength. You will get through it. It won’t be easy but you will get through it hour by hour and day by day.

And when you feel you can’t remember there is always someone on MN day or night to listen and hold your hand.

Sniffywhippymum · 17/07/2024 09:14

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Beautiful advice xx

LeroyJenkinssss · 17/07/2024 09:16

there are no words that can ease things, but I really feel for you. You can only take things one step at a time. I know we have recommended Winston’s wish for people at work - it might be worth contacting them

winstonswish.org

whengodwasarabbit1 · 17/07/2024 09:16

So sorry for you and your family. Sending a handhold and lots of hope xxx

Katherineryan1986 · 17/07/2024 09:18

I’m so sorry you are going through this. Sending you a hand hold and some 💐

A month ago today my Mum died and the people of Mumsnet held my hand (virtually) throughout, they were a great comfort.

Colourbrain · 17/07/2024 09:19

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I agree. This is amazing advice. Let them experience it with you OP. I am so, so sorry for what you are going through.

Mummyoflittledragon · 17/07/2024 09:21

I am so terribly sorry. I would ask the hospital to help you talk to your children if you are able. Involving them now may seem insurmountable. It would, however, be really beneficial for them to spend time with him. Have they visited him in hospital? Are they aware of how ill your dh is?

ShinyHappyTits · 17/07/2024 09:24

Praying for a miracle for you. Holding your hand x

Lovewine1975 · 17/07/2024 09:25

I am so very sorry this has happened, I can't imagine how hard this must be for you, sending strength and hugs to you and your family xx

pontipinemum · 17/07/2024 09:29

I really don't know what to say. I can't imagine how you are feeling.

I hope his family get down soon and with your sister you can all support each other.

He does not deserve to have this happen to him, he's so young. You don't deserve it either x

SerafinasGoose · 17/07/2024 09:30

Oh darling, how horrendous. I'm so very sorry. Sending you goodwill, positive energy and kindness for the days ahead, from a well-meaning internet stranger. ❤

mitogoshi · 17/07/2024 09:32

Hospitals have specialists usually who can help you talk to your children, or often they know which of the drs/nurses are particularly good at this. Widowed and Young are an excellent organisation I encourage you to contact, it's thankfully not common so being connected to others in similar situations is important, also your dc meeting others in similar circumstances. Child bereavement services also are dotted across the country which might be helpful for your older child

cheeseloiuse · 17/07/2024 09:32

A very gentle but steadfast handhold from me. ❤️

JoyousPinkPeer · 17/07/2024 09:34

So very very sorry. I would ask for a second opinion if you haven't already. I think it will help you to know you did this.

TicTac80 · 17/07/2024 09:35

I am so sorry that you guys are going through this, and can only echo what others have written. WAY was amazing for supporting my lovely friend when her husband died suddenly (also very young). She didn't have children, but she met many people through WAY who did have kids and were supported well. Speak to the palliative team (if they are involved), as they can signpost you to support. Winston's Wish are also amazing.

I think being honest with the children is a good bet. My kids haven't lost a parent but were very very close to my own parents. In their last illnesses (both died quite suddenly in hospital - brain bleed for one and v fast cancer for the other), I explained that they were very ill, the tests/treatments etc that the doctors were doing (might be easier for me, as I'm a nurse) and then when I knew that things were taking a downhill turn, prepared the children for what to expect. I informed my work, the schools and told friends. I let the kids see my parents (one was in ITU, the other on an acute ward). Of course, every family is different, but this is what was best for my own kids (both very used to being in and around hospitals because of my job!).

For yourself....easy for me to say this, but please please try and eat/rest and look after yourself. This is so important. Call on friends for support. For my friends in this situation, I am there for whatever they need me for: a shoulder to cry on, someone to talk things through, cooking a week's worth of meals, doing their laundry/housework, watching the kids, helping with admin, anything. Please don't be scared to ask anything. Sending you lots of love and strength xxx

CutthroatDruTheViolent · 17/07/2024 09:36

I'm so sorry. Thinking of you all.

Bubbleplumb · 17/07/2024 09:36

How unbelievably cruel and unfair life can be. Poor you and your DC. Prayers for the coming days/ weeks xx

KatharineClimpson · 17/07/2024 09:41

I am so very sorry, holding your hand.

DuckbilledSplatterPuff · 17/07/2024 09:42

so sorry for you and your dear family. Glad you have your sister with you Flowers

TheDogdidGood · 17/07/2024 09:43

I am so sorry - can't imagine how you must be feeling. A hand hold from me xxx

user1471556818 · 17/07/2024 09:44

I'm so sorry .please tell the children in simple terms what's happening let them see their daddy touch him talk to him .Most importantly say goodbye.
The nurses and staff can help here .
You take a few moments for yourself quick shower and a good cry .Thoughts with you all .

Pipsquiggle · 17/07/2024 09:46

Very sorry you are going through this. Thinking of you and your family

Dustyblue · 17/07/2024 09:46

Handhold & having a weep for you from Australia. Sometimes life just kicks you in the arse & it's too unfair.

Thinking of you X