Pancreatic and liver cancer

[WilsonMilson]

Diagnosed today. I can’t believe it. I thought I had gallstones. The liver tumour is already 7cm, I can’t even remember what the pancreatic one was, it’s on the head of the pancreas. They did more CT scans to see further spread but I don’t have those results yet.
I just am in a blur.
My pain has been getting really bad the last few days and I’m worried this is it. I will have a meeting probably next week to discuss the plan for treatment -if any.

I’m not ready. I’m 45. I have a son and a lovely husband. I have elderly parents.

I’ve gone into hyper organisation mode. It’s madness really, but tonight I bought birthday cards for my son, husband and mum for the next 4 years. I’ve been transferring money to different accounts to make it more accessible. I’ve emailed my son’s school, I’ve started writing to do lists.

My mum is flying in on Friday and will stay with me. I’m just so devastated and so sorry for my poor son and husband. I cannot believe this.

I am continuing to wish for treatment for you and a good long life with lots of quality memories. I feel deeply for you and you have been in my
thoughts a lot.

I have everything crossed for some positive news for you following the MDT today. My consultant usually calls me the same day as the MDT so I’m really hoping they do the same for you.

Sorry to drop this into this thread but can't see how else to do it?

My HPylori took 3 months of abdominal pain to diagnose. If she thinks it's that then you should have been given a stool testing kit? I would push for bloods sooner than 3 weeks. Do you have an alternative phlebotomist department outside the GP practice. Ring and ask the receptionist. We have several options here via Swiftqueue.

Please don't panic. Hope you get sorted soon.

Oh goodness this breaks my heart. I too am 45 and live in Belfast and this is breaking my heart. I am thinking about you all and will keep you in my prayers. Lots of nice beaches to visit. I’m presuming your care will be at the mater and it does good work for pancreatic cancer. Radio Ulster news covered pancreatic cancer a few months ago and there were some very positive stories. Big hugs xxx

Also I work in NHS and I would maybe call consultants secretary to ask if you could speak with them after MDT. It may not be possible but at least you would be going into the weekend armed with knowledge

Here to send you love and strength OP; I don’t know much about these types of cancer but I have everything crossed for great treatments for you, things are progressing all of the time.

Have a fabulous day at the beach, enjoy the waves and the time with you nearest and dearest xx

Oh @WilsonMilson , i admire your strength so much. Im so glad you decided to come back and document how you are feeling as and when you feel up to it. I wish you only good things going forward. Make beautiful special memories with your family because, as you so rightly say, at the end of the day those are all that truly matter.

Sending you so much love @WilsonMilson I hope that the beach brings you peace and calmness xx

Thinking of you OP and keeping you in my prayers. I would be doing everything you are - videos, letters, cards for husband and child and organising everything so my focus can then be on treatment. Sending you strength and hoping you get to the beach xx

I'm in Dublin @WilsonMilson so sending love and strength northwards xx

I’m so glad you are still posting here @WilsonMilson . I hope you get to the beach. When I was recovering from my cancer surgery a beautiful friend loaned us her beach house and it was so peaceful lying on the couch with a view of the ocean and listening to the waves.

You've been in my thoughts since I read your original post. I will continue to pray for you and your boys. Wishing you lots of love and strength. Enjoy your time at the beach xx

I hope you get to feel the sea air on your face today, and the waves help calm your thoughts, even for a minute
Sending you more love and strength

Delighted you've posted again. The first thing I did this morning was come on here hoping you'd have posted. Have a lovely day - I hope the weathers good for you. I hope your mum flying in will make all of you feel a little happier. Dad wanted the family around him, my family would come over every night (only lived 4 miles away) and we would eat together, well dad could eat very little but enjoyed just having them there as well.

Another stranger here and rooting for you.

I am thinking of you and sending you strength, hope and love.

Your situation has knocked the wind out of me so lord knows what it has done to you. Your calmness and pragmatism is wonderful to behold - like you have written off hysteria as a waste of time within 24 hrs. Already you have such clarity and insight and achieved so much (telling mum, son and school, writing letters, sorting finances, getting meds..). You are an amazing strong Irish woman and we are lucky to be able to support you in tiny ways whilst you are on this journey. Enjoy the sea and being with your mum.

Another stranger sending you love strength and peace 💐❤️

Sending strength and love here also.

You are coping unimaginably well in the face of this life changing news.

My heart goes out to you and your family.

I hope your treatment starts as soon as possible and that your pain is managed.

I'm so sorry. Such a scary time for you all

So pleased to hear from you again ❤️

Enjoy your time at the beach x

I hope you have made it to the beach.

Not giving up hope but also preparing for the worst seems to be what you are doing right now - and that is very wise.

You will be OK. And by OK, I mean whatever happens, you are loved, your family are loved and we all know that life is cruel sometimes, but still, grasp every day and every minute you have. It doesn't matter in some sense what the future looks like, every minute of life is important so go to the beach, cuddle your son and snog the face off your husband and just see where you end up.

Another Irish stranger sending you much strength, courage, and hoping for successful control of your symptoms and pain.

I imagine that most of us posting have either have, or know someone with a similar diagnosis, so we know how difficult the journey can be.

Sorry to hear this OP.
Try to have a nice day at the beach

Sending so much love and strength your way OP,
I hope the biggest hug from your mum brings you some comfort. Xxxxxx

Oh God OP, I'm so sorry.