Pancreatic and liver cancer

[WilsonMilson]

Diagnosed today. I can’t believe it. I thought I had gallstones. The liver tumour is already 7cm, I can’t even remember what the pancreatic one was, it’s on the head of the pancreas. They did more CT scans to see further spread but I don’t have those results yet.
I just am in a blur.
My pain has been getting really bad the last few days and I’m worried this is it. I will have a meeting probably next week to discuss the plan for treatment -if any.

I’m not ready. I’m 45. I have a son and a lovely husband. I have elderly parents.

I’ve gone into hyper organisation mode. It’s madness really, but tonight I bought birthday cards for my son, husband and mum for the next 4 years. I’ve been transferring money to different accounts to make it more accessible. I’ve emailed my son’s school, I’ve started writing to do lists.

My mum is flying in on Friday and will stay with me. I’m just so devastated and so sorry for my poor son and husband. I cannot believe this.

Sorry crossed message - I'm so glad you're back OP.

I feel for you so much and the waiting must be so hard for you. But now that the wheels are in motion I suspect things will move rapidly from this point.

I am sending you and your loved ones strength and best wishes. I hope you manage to make it to the sea today. Please keep posting when you feel up to it x

I read your heartbreaking post yesterday and i have been thinking about you and your beloved family.
Don't give up hope , i am not really into religion but i do find prayer comforting and I've added you to mine.

This total stranger was thinking about you last night and feeling so furious for you. Thank you for your thoughts at the end of your update. We all take so much for granted. Hopefully you will get your plan asap so you know exactly where you are and what needs to be done. You sound like such a strong person and I'm so so sorry this has happened to you. I hope you get down to the beach today for some beautiful sea air. The weather is looking better too. Xxx

I'm so sorry you are going through this and hope you get the treatment to give you time with your family and make memories with them. My DDad passed from PC that was also in his liver but that was 19 years ago and treatments have moved on since then. Do you have a Maggie's centre nearby as they can provide practical, emotional and psychological support for you and your family. They truly are amazing. www.maggies.org. if not close by they can provide this on the phone, zoom etc. I hope you get to the beach today. Sending you all best wishes. 💐

I'll be checking in and listening to you op.
I'm currently waiting for news on my mother.

It's a huge shock, a world of questions and thoughts/feelings that are utterly unknowns.

Like you I'm a fact gatherer, you do as much as you can to inform yourself to prepare the way.

Telling your son well I can imagine that was devastating for you.
I have a child in midst of exams at uni, who I've not told yet.

You sound extremely loving and caring. Thoughtful and strong despite having to navigate this.

Sending prayers and strength to you all.
X

I thought about you during the night. I'm so sorry you're going through this. You sound so strong and your love for your family shines through everything you write.
I can only wish you the best and I hope you get a sense of what next very soon

Good morning Wilson. It's smashing to hear from you 😊

For a woman with such a devastating and shocking diagnosis you are coping so well and on top of the important things.

Hopefully you'll get some help soon with pain management. Acupuncture (they could do a home visit?) could help with both anxiety and pain

What a lovely idea to get the the beach. The rolling and crashing if waves is so soothing and grounding. Maybe you could manage some chips?(if a seagull doesn't steal then from you 😂)

Hugs from your lovely boy are just so special and will mean the world to him. Something for him to remember and treasure.

And soon you will see you mum ❤️

We MN crew are Here when you need us xxx

I'm so sorry OP. I've been thinking of you a lot. Earlier in your thread before you got the diagnosis, I commented that I've been having similar symptoms.

Safe to say I'm truly terrified now, but you prompted me to go to the GP. I went yesterday, full of anxiety, burst into tears 😭 and then explained my symptoms. She listened, had a feel around, and ordered some bloods. She says she thinks it's h. Pylori which I'd never heard of until your post. She's given me omeprazole in the meantime but they can't fit me in for the bloods for 3 weeks. Not sure what else I can do other than a private scan but wouldn't know where to start really.

You're doing so well, get to the beach and do everything you want to do. I'm sure you'll find the strength to fight. Sending you all the luck in the world x

I've been following your story and I'm so sorry for what you're having to go through. I haven't been able to stop thinking of you since your message yesterday saying it would be your last. It made me so sad for you and your family.

I was happy to see your update this morning and that you're still here and fighting. We are all here for you and will support you as much as we can. Stay strong op ❤

Oh my love I'm in tears and in awe. Go to the beach, hug your wonderful boys. You are in my thoughts x

Hope you get to the beach, OP.

I'm so sorry to read of your diagnosis. Wishing you lots of love and strength through your treatment. A big virtual hug to your son too. Enjoy the sea today - one day at a time xx

Please don't let regret spoil the happy moments you can still have. I know it's tough and we all think "what if" but that will just make you sad and angry. I too had cancer and I was told the tumour had been growing inside me for at least 18 months, and I then suddenly remembered every stomachache, every time I'd felt nauseous or had any kind of abdominal pain, and I felt angry. Angry at myself for not paying attention, not listening to my body, and then at the doctors for fobbing me off with gastritis. But that didn't help me.
I too became more religious when I was diagnosed and am praying for you and your family. Praying that you get more time and that you're well enough to enjoy it. Try not to be angry at yourself, you couldn't have known.
Give your boys a big cuddle x

Wishing you strength for the days ahead x

Still heartbroken for you but so pleased to see your post this morning. You sound like you’re doing everything you need to do. Well done for telling your son, I can’t imagine how difficult that was. I’m really glad your Mum is arriving today and that you have a plan to go to the beach. I hope you find moments of peace and joy today with your lovely family. ☀️

Oh Wilson, I'm just so sorry. I'm really pleased you felt well enough to respond though and you can count on Mumsnet to be here with you. I do hope you get to go to the beach today. Do not give up hope, as you never know what the medical team may come up with. Sending lots of love to you.

Sending you so much love and keeping you in my thoughts

I'm so sorry that this is your journey. My Dad died from liver cancer in January this year - he was diagnosed in September, and was given a prognosis of within a year.

His GP wasn't very helpful but the hospice and palliative care Consultant were amazing, and managed to get him onto drugs that helped control his main symptoms (he had chronic malabsorption, and hepatic encephalopathy). When the liver fails it can be hard to absorb medication and it's quite specialist to manage, so don't be afraid to push for this.

I'm really happy to answer any questions if that helps

@WilsonMilson I can only join in the throng of lovely people here wishing you strength and love and peace as you deal with this terrible burden. I too was so happy to see your message this morning, your words moved me to tears.

I truly wish and pray that you can be treated and that your pain can be dealt with so that you can spend as much time with your loving family as you possibly can.

May you get to the beach today and may the sun shine on all of you.

Lots of love from an Irish MNer.

Thank you. I’m in Northern Ireland, just outside Belfast.

I'm thinking of you and hoping you get some good news

♥️♥️♥️♥️

I read your post and I'm so sorry you are going through this. My brother in law was diagnosed with stage 4 pancreatic cancer with mets in his lungs and liver last year he wasn't able to have surgery and we thought he only had weeks left at that point as he had lost so much weight, was jaundiced and in a great deal of pain. He was offered palliative chemotherapy and he had 3 courses. He died in March 12 months after his diagnosis. He was able to get married and enjoyed many weekends away, theatre trips and spent time with family and friends. Pancreatic Cancer UK and MacMillan are excellent for information and support. I will be keeping you in my thoughts.

You’ve been in the thoughts of this total stranger too. I will continue to wish for positive treatment options to be available for you and that time isn’t as limited as you feel
it is.

Enjoy your day at the beach.