Pancreatic and liver cancer

[WilsonMilson]

Diagnosed today. I can’t believe it. I thought I had gallstones. The liver tumour is already 7cm, I can’t even remember what the pancreatic one was, it’s on the head of the pancreas. They did more CT scans to see further spread but I don’t have those results yet.
I just am in a blur.
My pain has been getting really bad the last few days and I’m worried this is it. I will have a meeting probably next week to discuss the plan for treatment -if any.

I’m not ready. I’m 45. I have a son and a lovely husband. I have elderly parents.

I’ve gone into hyper organisation mode. It’s madness really, but tonight I bought birthday cards for my son, husband and mum for the next 4 years. I’ve been transferring money to different accounts to make it more accessible. I’ve emailed my son’s school, I’ve started writing to do lists.

My mum is flying in on Friday and will stay with me. I’m just so devastated and so sorry for my poor son and husband. I cannot believe this.

So nice to hear your sense of humour can't be constrained. We're all here with you - you're never alone.

You rant away!! I know what you mean about the water- I was right on the highest limit in my bloods for calcium and sodium and doctor asked if I drank a lot of bottled water- I did- around 2 to 3 litres a day - he told me to dial it back a bit.

Your son sounds a gem !!

Ah it's lovely to hear from you, so glad you're being seen to and of course we are all here for you when you want to talk. You definitely need a fan, it's so warm at the moment, the nurses sound lovely and good that you and your dh have both eaten, even if not a great deal xx

Just dropping in to say that I think you are doing brilliantly and I hope the drugs bring you some relief.

Thinking of you Pamela xx

We’re all with you if you need some company when your DH goes home.

Yes, we are!

Hi Pamela!

I've never heard of St Peregrine. He was Italian and born in 1260, I just asked Alexa to tell me all about him.

I hope all the new meds help you turn a corner and you can make more apple crumble soon.

My mum had pancreatic cancer and she had a stent put in to help bile drainage, she was yellow but after the stent went back to her usual colour.
Although this was 25 years ago.

If we can help distract you in any way then we will certainly try.

Thinking of you Pamela, I have been praying for you (practising Catholic) and I will also start the st Peregrine novena. Hope you feel better soon

Dear Pamela
All your family and friends, known and unknown to you, are praying for you, as am I. My sister also admitted today with exactly the same, and we are standing with you even as you read this in hospital. Peace on your mind, on your home, with your family. Sending all my love. Chris xxx

I'm 11 years post malignant pancreatic tumor. Mine was operated on (distal pancreatectomy). One of my friends also had pancreatic cancer and had the whipple procedure also with a good prognosis. You will be surprised how many different types of tumors there are and the different treatments. I felt the same as you at the time. My only advice would be to do everything in your control, for me it was to start eating very good protein to help to heal after surgery. You might want to consider sleeping pills to help you rest. Wishing you the best

Thinking of you Pamela. I have been following your story since your original thread. I hope the hospital can help you and you can get back home soon x

Hi Pamela,

Witter away, we're here listening x

DH has just left and is picking up DS on way home. A long day for DH, he’s looking so drawn and I worry about him. He is the most selfless man I have ever known, he puts our family above all else, I don’t know what he would do without me, I don’t want to think about it. He’s lost more weight than me since the fateful day of May 17th, a combination of worry, many extra chores along with still having to work, and frankly my mother’s cooking which would test the strongest of appetites (sorry mum).

Lots of intestinal pain tonight and so bloated painfully so, the pain is lower than it was which is new in the past day or two, I guess it’s all connected though and my insides are just totally messed up. Was given a couple
of paracetamol which seems a bit paltry, but I really don’t want that codeine again, was a complete space cadet. Also had a pee that looked like Diet Coke, probably a combo of limited sips of water and the obvious bile duct issues. I have to pee into a dish and leave it for the nurses as they are measuring my output and I imagine colour. Keep waiting to turn into a Minion, bit yellow but not yet luminous.

Going to give DM as quick phone as she’s been alone all day at mine and no doubt worried. My D grandma is 97, she usually lives with my mum in Aberdeen but has been staying my aunt and uncle there for the last 5 weeks, thankfully they are retired and have lots of room for her. Poor D Grandma is so worried about me too, we have always been very close as I am a only child and was brought up by my mum and grandparents, so she’s really like a second mum to me. She has her church and all her church friends praying for me too.

Going to call DM now for a quiet chat.

Know that you are loved

Sending you Love , Strength and Hope
Pamela ❤❤

Hi Pamela, I’ve been following your thread.
I’m so so sorry to hear about the situation you are in.
I really wish you all the best and hope that you can get some good treatment soon.
lots of love xx

Hi Pamela. So sorry you have landed up in hospital. I hope you get home quickly xxx

Wishing you strength and healing Pamela. The hospital will take good care of you, hope you get home soon ❤️

Thinking of you, lovely Pamela ❤️

What a lot of love you have around you, family, friends and this little virtual group.

Pamela I really hope you are asleep now. Am sending you my love and prayers for a comfortable night. I hope the amazing love you are getting from your family is keeping you strong and focused.Xx💕

To echo what someone else said further up the thread, a friend of mine had bile duct cancer and had a blocked duct. She felt absolutely dreadful and they put a stent in and it made an immediate difference. Fingers crossed it's something simple they can do if it turns out to be that.

I’m so sorry to hear you’re in hospital. I hope today they can work on making you more comfortable (and that the food is better today- probably too much to hope for though!) Keeping you in my thoughts.

Morning Pamela 😊

What a horrible few days you've had. That pee situation sounds a bit grim. I remember once having pink pee and being rather alarmed, before realising that I'd eaten a ton of beetroot the day before 🙄Wishing that yours was as straightforward as that.

I was in hospital once for about 10 days after an emergency admission. I remember how noisy and disorganised it all seemed to be. And the food was awful (mind you I wasn't allowed to eat either). They gave me some full nourishment drinks that were prescribed by the dr. Might be worth asking for those if you are struggling with eating. They can be frozen too and eaten like an ice cream. I had a nut flavoured one which was lovely.

Maybe you could,get DP or your DS to make up a mini picnic to bring in and enjoy with you ? A few nibbles of things you enjoy and a glass of fizzy water in a plastic champagne flute to make a bit of an occasion if it? Eating alone is rarely fun, so to share might give you a better appetite.

A good mate of mine has had all sorts of complications related to his pancreas and it's amazing what they can do to manage symptoms. And most of it is done in shortish hospital visits so he can lead a normal life for the rest of the time.

Hospitals never like to keep you in for any longer than they have to, so I'm sure they'll be working on a going home plan as soon as they can.

Lovely that your boy got you a present to keep you occupied. Do you have an iPad ? There are millions of mind numbing games on there that are highly addictive and keep your brain occupied with little effort😬. Or audible books with lovely voices to take you to another world as you lie there and let your body heal.

Sending you good strong healing vibes 😎