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Pancreatic and liver cancer

1000 replies

WilsonMilson · 17/05/2023 22:49

Diagnosed today. I can’t believe it. I thought I had gallstones. The liver tumour is already 7cm, I can’t even remember what the pancreatic one was, it’s on the head of the pancreas. They did more CT scans to see further spread but I don’t have those results yet.
I just am in a blur.
My pain has been getting really bad the last few days and I’m worried this is it. I will have a meeting probably next week to discuss the plan for treatment -if any.

I’m not ready. I’m 45. I have a son and a lovely husband. I have elderly parents.

I’ve gone into hyper organisation mode. It’s madness really, but tonight I bought birthday cards for my son, husband and mum for the next 4 years. I’ve been transferring money to different accounts to make it more accessible. I’ve emailed my son’s school, I’ve started writing to do lists.

My mum is flying in on Friday and will stay with me. I’m just so devastated and so sorry for my poor son and husband. I cannot believe this.

OP posts:
Thread gallery
17
StartupRepair · 17/06/2023 12:26

Well done to your ds. So glad there is a shot of pure pride and good news in amongst so much else for you to process.

SquirrelSoShiny · 17/06/2023 12:52

@WilsonMilson love to you and yours. I'm sure you're hugely proud of your son, he sounds wonderful and so strong.

I'm so sorry the news is not what you hoped for. I hope there is a plan taking shape. Make sure someone kicks up a fuss for you in the meantime for symptom management. You need your energy for the right stuff, not coping with pain.

I'm a stranger to you Wilson but I send you a huge warm hug. I'm so sorry your life has taken this curveball so suddenly. You are working so hard to stay positive. I have such admiration for you. We are here for you as best we can be ❤️ x

Haveallthesongsbeenwritten · 17/06/2023 13:14

WilsonMilson · 17/06/2023 12:16

Hi everyone, just a very short update, promise I’ll be back next week when I’m in a better state of mind. So unfortunately the PET scan showed the liver tumour has again grown, but not only mets to
lymph, but also mets to lungs - which weren’t there a month ago.
Surgery not an option. Next step is urgent biopsy to find out exactly what type of liver or bile duct cancer it is and then chemo. Feeling obviously devastated but need to pull myself together for a fight. At every turn it seems to be bad news, but I’m keeping moving ahead. I’m just not going to give up. I have a meeting on Tuesday at 10.15am to go over the plan ahead.
Going to try to have a peaceful weekend and a really nice Father’s Day for DH.
On the positive, DS passed his driving theory this morning. Oh, and I can’t remember if I updated as my brain is total mush, but he got Deputy Head Boy, I’m just so proud of him.

Thank you for the update. We’ll be thinking about you on Tuesday morning and hope the meeting goes well. Sending hugs
x

Bluemat · 17/06/2023 13:34

Just wanted to send you a hug 🫂

notapizzaeater · 17/06/2023 14:02

Aww so proud of your son.

Once DH had a plan in place we felt so much better, this stage we was just punch drunk. Everything was bad news - once he started treatment we felt better - hated this limbo land.

paulaparticles · 17/06/2023 17:07

I've just read your whole thread and just wanted to say I'm sorry for you and your whole family. Cancer does not discriminate 😔

TwigTheWonderKid · 17/06/2023 17:55

Hi @WilsonMilson I hope you don't mind but I've sent you a DM. We are in very, very similar circumstances and if you'd like to chat that would be amazing. I have so much lovely support in real life but despite that, this is something that isolates and sets you apart from everyone else who is kind, but not going through it.

SarahSmith2023 · 17/06/2023 17:55

Your DS is a complete ⭐️ isn't he, no wonder they wanted him for head boy!!

Poor DH, such a lot of pressure & a terrible way to be realising how much of running the house & cooking etc you did.

I know what you mean about his reaction being stressful for you & how all this feels like it's changed your marriage already. It's so difficult when the dynamics change, but hopefully things will settle down & you'll find a way through it all, I'm sure you will.

have you got an Air Fryer? Game changer, seriously! I've not long had mine (I hate 'following the trend!! & wasn't sure how much I'd use it, the oven has been in once since I got the AF.

very sorry to hear about the PET results & that they can't operate, but hopefully Tuesday they'll have a good plan in place and you can start chemo to get rid of the bastard thing!

we can all focus on imagining it shrinking for you x

As I said before, other than virtual hugs, good thoughts and just being here to 'talk to' I can't think of anything else we can do to help, but if you can, please ask. If you lived near me I'd happily take you to chemo etc, but sadly I don't.

I'm sorry you're going through this, physically & emotionally it's a lot to deal with!!
xxxx

WilsonMilson · 17/06/2023 18:55

TwigTheWonderKid · 17/06/2023 17:55

Hi @WilsonMilson I hope you don't mind but I've sent you a DM. We are in very, very similar circumstances and if you'd like to chat that would be amazing. I have so much lovely support in real life but despite that, this is something that isolates and sets you apart from everyone else who is kind, but not going through it.

Thank you, I’m sorry you’re in this unimaginable position too. More than happy to offer my support and have some solidarity, I’ve replied to your dm. X

OP posts:
rachaelclaire1 · 17/06/2023 21:43

So sorry to hear your news I had a similar experience with lung cancer in January caused by gene mutation. Spread to bones. I had been going to doctors for over two years just kept being fibbed off.

I am having chemo and immunotherapy but I have also done loads of research on RSO oil which I am now taking. Not had any scans yet but worth looking into. I am trying anything but there are lots of documentaries out there on Netflix and so many groups which show good results.

wishing you all the very best❤️❤️

rachaelclaire1 · 17/06/2023 21:46

Also feel free to DM me I am a little further on in my battle but may be able to help. Have done loads of interesting research x

Judystilldreamsofhorses · 17/06/2023 22:38

so sorry to read your updates, OP - sending lots of love to you and your family.

DreamTheMoors · 18/06/2023 00:49

@WilsonMilson

I wish cancer got cancer and died.

I think about you every day and keep you in my heart.
Much love. ❤️

coxesorangepippin · 18/06/2023 01:06

You're in my thoughts Wilson

Huge congratulations to your DS

DyslexicPoster · 18/06/2023 10:40

So sorry to hear about the Mets. I hope that your treatment plan is sorted and started ASAP. That might give you some focus. It's horrible being in limbo.

Littlefish · 18/06/2023 11:08

@WilsonMilson have you had cake yet?

I honestly think that cake should be available on prescription.

If you were closer I would bake you my best, most delicious cake and deliver it to you.

adriftabroad · 18/06/2023 12:17

In my thoughts, Wilson. ❤

AutisticLegoLover · 18/06/2023 14:03

I'm so sorry you are going through this Flowers

rainbowstardrops · 18/06/2023 14:32

Best wishes to you @WilsonMilson and huge congratulations to your son!

Glitterbiscuits · 20/06/2023 10:04

I was trying to think of something comforting to say but what you really need is a magic wand.
I'm sorry the news was so crap.
I hope the meeting today is hopeful.

Brilliant news about your son. I hope he's ok.

SquirrelSoShiny · 20/06/2023 10:21

Hope the meeting helps and brings together a plan @WilsonMilson x

Andywarholswig · 20/06/2023 12:40

Oh Wilson I am sorry the news wasn’t better. I am thinking of you and hoping your meeting today goes well

DontjudgeIHaveMyReasons · 20/06/2023 21:42

@WilsonMilson my mother has cholangiocarcinoma. If you'd like to pm me we've been dealing with it for a very long time. Thinking of you.

h0rsewithn0name · 21/06/2023 19:09

Sending you all the best in the world. I hope the meeting yesterday went as well as could have.

SquirrelSoShiny · 21/06/2023 23:24

Still thinking about you @WilsonMilson and wishing you strength and peace x

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