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Storm Part 3 (for partners of people with cancer)

995 replies

Willowkins · 27/01/2023 19:27

Continuing the thread, mostly supporting partners of people with cancer - just in case it's needed.

The previous thread is here

[Title edited by MNHQ at OP's request]

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notapizzaeater · 20/11/2023 21:33

@Willowkins fingers crossed for you. I think you get numb tbh or you just realise that you can't 'do' anything about it and we've already lived through the worse.

My mums op is tomorrow and I'm in a really important meeting all day so will be on tenderhooks waiting, but at least I will be distracted.

Willowkins · 20/11/2023 21:44

Thanks @notapizzaeater . Hope all goes well tomorrow.

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WobblyLondoner · 20/11/2023 22:11

Thanks both. Fingers crossed for you @Willowkins and your mother @notapizzaeater. I've always been awful at waiting for things so this really isn't my forte at all! But DP is coping well and that's the key thing.

Frikonastick · 21/11/2023 06:13

@Willowkins crossing fingers and toes for you, but I do hear you, I’ve had melanoma and just found a second one. I’m not bothered at all. The doctor even asked if I understood what they were telling me as I seemed so blasé. @notapizzaeater hope your mum goes ok xxxx

ButtonMoonMrsSpoon · 22/11/2023 12:44

Hello, is this the thread for partners? And is it only for terminal?

notapizzaeater · 22/11/2023 17:31

@ButtonMoonMrsSpoon yes it's for partners of poorly people. Grab a chair, pull up and have a coffee and a hug x

seethebeauty84 · 23/11/2023 17:49

Well my amazing husband died 9 days ago, at 39. I am broken. How am I going to raise our 2, 4 and 6 year olds without their amazing dad? It all feels impossible.

FutureUncertain · 23/11/2023 18:39

@seethebeauty84 I’m so sorry Flowers

FormerlyPathologicallyHappy · 23/11/2023 20:20

It’s not meant to feel possible this early on, you don’t have to try and be brave right now. Have you got rl support.

Willowkins · 23/11/2023 20:24

That's so sad @seethebeauty84 Do you want to tell us about him?

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Circlingthesun · 23/11/2023 22:28

Hi I want to join this thread as DM been diagnosed with stage 4 peritoneal cancer. I'm so scared and in shock. How do you cope with all these feelings and emotions. I'm so sad I feel so sick.

Circlingthesun · 23/11/2023 22:38

I can't eat, sleep, concentrate. All I can think about is my DM dying and I love her so much. She's done so much good in world, everyone loves her. Going to be taken before her time. I'm crying typing this. It's not fair! Why do the good die young and the bad or horrible people still keep living. I hate this 😭

WobblyLondoner · 23/11/2023 22:48

@seethebeauty84 I'm so sorry to hear your news. It's so shocking and so wrong. Do you want to tell us about your lovely DP?

Hello @Circlingthesun and I'm sorry to hear about your mum. I don't know how others cope - I am at a very early stage of this and the only thing that works for me at the moment is to stay very focused on here and now, what we can do and control. If I start thinking about the future and how different it's going to be to the one I imagined, or how my darling DP must be feeling, or our DS, I crack - so at the moment I don't think about those things. I will need to some day but I'm not going to do that yet, while he's still feeling ok and we can focus on doing nice things together.

In DP's case we still don't have a full diagnosis or treatment plan - once we are clear about that then I'll feel different I suspect.

CopperSeahorses · 23/11/2023 22:55

@seethebeauty84 I am so sorry. It does all feel impossible in the early days, you get through one minute at a time. There will be times in the future when it feels impossible too but those feelings do become manageable, have you got people to lean on?

@Circlingthesun in the early days of diagnosis it felt all encompassing and so very scary but I think you learn to turn the worry on its head and focus on the things you can control. There is always someone here to listen (and usually someone with wiser words than me).

Willowkins · 23/11/2023 23:00

To everyone who is new to this thread, you're welcome and we're sorry you're here.

The thing is @Circlingthesun cancer does not discriminate between good or bad people. It just takes them, or bits of them.

Those of us who love its victims bear the pain of wanting to help but sometimes we just can't.

I wish I had some peace to offer you. You'll find support here from people who understand and you can be honest with us.

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Circlingthesun · 23/11/2023 23:33

Thank you. I know you're right and in my head I know that it affects everyone but my heart is screaming 'it's not fair'. She was diagnosed this morning and no treatment or prognosis yet so no idea what to expect.
I think I'll be back here often as all my family are looking to me to be the strong organised one, and I'm not sure I can cope.

I'm sorry we're all in this boat and it would be worse if it was my DH rather than my DM. And I'm sorry if that offensive to those in that situation. It just shit

I sometimes wake up at 3-4am - is there usually someone around then-? im nee to MN and this thrrad.

anyway tganks for listening to my rants

Circlingthesun · 23/11/2023 23:33

And excuse my bad spelling!

Circlingthesun · 23/11/2023 23:35

Yes not thinking ahead and staying in the here and now is probably what I should be doing

seethebeauty84 · 24/11/2023 08:05

Is there a bereavement thread anywhere for those of us who have lost our partners? I've been searching for a widow section and can't find one. My 6 year old is so sad and my 2 year old keeps saying 'miss daddy' and I am just so sad and angry and can't cope. I need him back.

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Willowkins · 24/11/2023 16:17

The last post made me think.

I really struggled with whether to continue these threads when MrW died because it seemed a bit harsh to remind the newbies where their journey may be ending (I say 'may' because one poster's DH went into remission bless them).

But you know, I remembered when I started the very first one there were all these gracious people who were obviously a lot further in than me including those who were bereaved and yet freely gave their support.

I have heard some of the wisest, kindest words right here.

So of course this thread supports those who are bereaved (we've been there) and those who've struggled to support our loved ones through illness (we've been there too)

But mainly I think this thread is a place where we can say the things that our friends and family would not understand.

Also, I believe that beyond pain, beyond death, beyond more pain, there is hope and joy and having a wonderful life.

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WobblyLondoner · 24/11/2023 16:29

Thank you @Willowkins, that was beautifully put. I was very grateful to find this thread when DP was diagnosed and have found it so helpful.

One of the challenges of a thread like this is that - of course - we all join at different points and may well not have read the previous threads. I didn't know your situation and I'm very sorry to hear about Mr W.

notapizzaeater · 24/11/2023 22:01

I totally agree unless you've walked this path in anyway at all you have no idea of the thoughts, hopes, dreams and nightmare roller coaster that you are on.

Here is a safe place, a place to share all your darkest thoughts, we've all been awake in the night with the what ifs, and the 'how' but if nothing else it shows that actually even when life is totally shit you can and will survive.

bookwormcrazy · 26/11/2023 22:31

I honestly wish I had found this thread sooner. After 4 years and being inoperable and palliative, to we think we can cure, to being "cancer free" and moved on to monitoring mode, then back to inoperable and now back to monitoring phase. It's been a rollercoaster of a ride.
Most of the time I have had to deal with it on my own. No one understands what we go through, no matter what phase it is at. I wish I had found people before now who even slightly understands what we go through.

Willowkins · 27/11/2023 14:15

Hi @bookwormcrazy Ah yes the rollercoaster of hope, know it well. Sorry you've been on your own through this.

People on here get it.
I should add that I've seen your other thread and I'm ridiculously invested in The Dress.

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