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Life-limiting illness

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Still the storm

997 replies

Willowkins · 17/06/2020 22:00

Continuing the support thread - mostly for the partners of people living with terminal cancer - www.mumsnet.com/Talk/life_limiting_illness/3266385-The-calm-before-the-storm?pg=10

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notapizzaeater · 11/01/2021 08:01

He’s had a good night - blood sugars are back normal. He’s still confused and they’ve put a catherter in - (he had a full bladder which he didn’t know- so think maybe kidney as well as lung infection) which he’s trying to pull out.

Think I managed about 30 mins :(

Relaxing2 · 11/01/2021 08:42

Aww hun thinking of you all it's so hard isn't it really hard I'm still struggling to get my head around the whole thing

Relaxing2 · 11/01/2021 11:23

Does anyone no how long it will be before he's seen by an oncologist? He was told his biopsy results well in hospital throwing up blood and had a blockage of the bowel it's driving me crazy cuz I've read on cancer research he may need an op and then someone has told him he won't need one cuz it won't work my heads just all over the place

loubieloo4 · 11/01/2021 12:37

@notapizzaeater always sending hugs 💜

@Relaxing2 I don't know if I missed it, if you're up to telling us what has happened so far and we might be able to help. Although timelines will be longer at the minute due to corona.

notapizzaeater · 11/01/2021 13:46

The waiting at the start is the worse bit - they need to make sure they have all the info to make a plan. Your hubby case will be heard in the MDT meeting so everyone has a say - then they will bring you up to date and give you treatment options

Relaxing2 · 11/01/2021 13:53

He had biopsy to check for liver cancer and in the mean time waiting for results he was taken into hospital throwing up blood and blockage in the bowel a doctor told him he got gullbadder cancer before surgery he wasn't surpose to have been told and over heard a nurse said she was a cancer nurse and asked if she could give him some information and she told him that there was nothing they could do for him it's spread from gullbaddler to liver he shouldn't even no this yet cuz they haven't even called him for his results yet but a doctor slipped

notapizzaeater · 11/01/2021 18:25

I’m at the hospital / he’s on a syringe driver and finally not in pain. They trying to get him home tomorrow but talking possibly hours/days.

DS been to see him today - my mum enroute to look after him, my best friend enroute to sit with me

Relaxing2 · 11/01/2021 18:41

Oh thinking of you hun xxx

loubieloo4 · 11/01/2021 19:06

@notapizzaeater glad to read dh is finally pain free, I will be thinking of you xx

chinchin77 · 12/01/2021 03:53

@notapizzaeater my thoughts are with you.

echt · 12/01/2021 04:30

I've seen your posts on Bereavement, notapizzaeater, many Thanks. Thinking of you.

joystir59 · 12/01/2021 04:36

@Notapizzaeater
Sending you love

Frikonastick · 12/01/2021 06:18

Hope you’ve had some rest, are being lived and supported and know you are not alone, but in our thoughts @notapizzaeater xxxx

notapizzaeater · 12/01/2021 12:10

Still at hospital / Just had a meeting with everyone - they’ve stopped all fluids - we are getting him home in the morning and expect DH to pass in next couple of days. I’m staying with him at the hospital and will be going with him tomorrow. He can’t talk now so heartbreaking

Relaxing2 · 12/01/2021 13:43

Thinking of you hun here if you need a chat

Willowkins · 12/01/2021 14:45

I'm so sorry it's come down to this. This awful disease takes absolutely everything.

Tomorrow though. Back in familiar surroundings, comfortable and with people who love him close by. Maybe the puppy will snuggle. He will be home.

OP posts:
loubieloo4 · 12/01/2021 20:46

@notapizzaeater I'm always here if you want to talk, rant etc. I hope the next few days are peaceful for you all 💔

iwantavuvezela · 12/01/2021 23:14

@notapizzaeater big love ❤️🙏

Frikonastick · 13/01/2021 09:12

I am carrying you in my thoughts @notapizzaeater xxxx

Diangled · 13/01/2021 19:39

Sending love @notapizzaeater. Hope he’s home & settled very soon ❤️

notapizzaeater · 13/01/2021 20:20

We're home thank god, he's non responsive but he's here and that's all that matters.

iwantavuvezela · 13/01/2021 22:44

@notapizzaeater ❤️

Willowkins · 14/01/2021 00:08

So glad he's home Brew

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Frikonastick · 14/01/2021 01:49

All the love @notapizzaeater xxx

bloodywhitecat · 14/01/2021 01:57

Thinking of you all @notapizzaeater