Still the storm

[Willowkins]

Continuing the support thread - mostly for the partners of people living with terminal cancer - www.mumsnet.com/Talk/life_limiting_illness/3266385-The-calm-before-the-storm?pg=10

@Willowkins

Coming home - the two best words in the English language I reckon. Every single day is important.

Absolutely priceless days x

And he's home. Christmas dinner as soon as turkey defrosted. Decorations still up. 🎄🎄🎄

@notapizzaeater Merry Christmas 🎄 so glad dh is home 💜

We've had Christmas today, DH slept through most of it and picked at his food (it's his favourite meal in the world) he's had his full dose of meds today, don't think it will be many days before I'm calling the district nurses in for the syringe driver
😢

Oh @notapizzaeater I was hopeful that dh would be able to enjoy the day ☹️ is he still struggling with pain?

Yes he's had everything I can give him. He's currently snoring (this is new - never snored sat up before?)

We are on a 3 week camper van trip around the South Island of NZ. Just me DH and DD. We nearly didn’t get to come as the week of Christmas DH was very unwell, but we have been planning this trip for nearly a year and he was so determined to make it. So he has. And we are doing it. So far it’s equal parts wonderful and terrifying!

The camper van means we can stop and rest anytime pretty much anywhere, so that’s good, and we can skip things or just park and look out the windows if it’s a bad day. But so far DH has been mostly invigorated by the trip and we have done way more than I thought we would.

It’s so fantastically beautiful here. I wish you could all see and experience the sheer wonder of it. It’s very very good to be out in the mountains and the sea and forests.

@Frikonastick please post some photos! Sounds amazing.

@notapizzaeater I'm sorry he is still in pain, dh has also started snoring recently. Strange!

@Frikonastick that sounds amazing !

I'm struggling trying to get DH out of the house for a Costa drive through - yet alone an adventure - wonderful memories xx

I'm shattered today. DH got out of bed and got fully dressed at 4.30 this morning, letting the puppy out of her crate as he went. Cue puppy joining me within seconds ! I came downstairs to find him 'up' for the day trying to make a drink but couldn't remember where the cups where. He was in loads of pain so I gave him his meds and suggested he went back to bed ! Luckily he did but I couldn't get back to sleep, finally fell asleep about 8 and he woke me up at 8.30 wanting meds. He's really struggling with pain today .... I really hate hate this disease.

Hi I started a thread yesterday as I'm in a total mess about my partner and was told to come here thanks for having me

Hi @Relaxing2 welcome to the club no one wants to be in.

We're all hear to support you, hold your hand and listen to you x

We had a shit day - it didn't get any better ! DH slept for about 22 of the hours, dozing off all the time. Wouldn't eat anything - I eventually nagged him enough to eat half bowl of Tom soup. Was drinking well. And in so much pain. Was really really wobbly and 'old'

He had DS (18) up in the night as he decided he couldn't get out of the bedroom ?...

Spoke to the hospice today, they are sorting bloods out for the morning to check for infection, calcium etc

Not looking any better today 😭😭

Aww thank you very much for the welcome I'm struggling so much we are waiting for him to be seen my the oncologist to no more but we just no he has months and don't no how many months and chemo prob won't make any difference it's so hard to be strong around him but I have too

@Relaxing2 do you want to tell us more about him ? What sort of cancer ? I found some amazing support groups on Facebook for my DH cancer (stage 4 lung cancer with brain, bone mets)

Hi sorry it's gullbladder that's spread to his liver and possibly his lungs how are you coping with yours hun

As requested 🙂

A couple more

@Relaxing2 sorry you find yourself here, we're a friendly bunch.
My dh 40 has bowel cancer with mets to lungs, liver, chest wall, abdominal wall and lymph nodes.

@notapizzaeater it's just all so shit 💔

@Frikonastick OMG those pictures are amazing, I'm so jealous! We love travelling (well, we did fucking corona and cancer🤬) very lucky that we have managed to see some amazing places. Our favourite so far has been Norway where we saw the Northern lights, truly mesmerising. I think at the last count we have been to 40 ish countries! It the one thing I really miss.

In other shitty news, I have a breast lump 🥺 I know the chances are pretty slim for it to be anything serious and we probably have more chance of winning the euro millions. Spoke with my gap last Tuesday and she has sent a referral under the 2ww. I had a letter on Friday asking me to ring the breast unit. They can't give me an appointment date at the minute and the current waiting times are 8 weeks 😱. I'm not overly concerned or convinced it's an actual lump and not just normal tissue, I've lost a lot of weight so my boobs are a fair bit smaller!
Doesn't stop ones mind worrying in the middle of the night though, surly the chances of me and dh having cancer at the same time are impossible?! It seems like my life is just one big rollercoaster of cancer 😡

@loubieloo4 that's shit 😢

@Frikonastick the pictures are amazing - wonderful memories. @loubieloo4 we loved travelling too ....

In even shitter news - he's just been 999'd to hospital with a Glasgow score of 7 .....his sugar levels are through the roof

notapizzaeater I'm sending you a hand hold ... And a big ol' hug.

@Willowkins ty, need hugs x

I'm still here and I hope you get the news you need soon. If you can, get some sleep; even a 20-minute nap will help.

@notapizzaeater I’m so sorry internet very intermittent and slow I didn’t see your posts before I put up pictures. It sounds fucking horrendous and I wish we could carry some of your worry and upset for you. Sending you all the strength and endurance, light and love xxx

@loubieloo4 I hear you, and the worry is perfectly legitimate. Wait times sound outrageous and certainly no help for worrying. I’m sorry loubie it’s shit x