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DH has a brain tumour

350 replies

AndNoneForGretchenWieners · 06/01/2019 15:05

I've posted before about my DH, who was diagnosed with stage 4 lung cancer in 2017. He had a lung removed, chemotherapy, and was told the cancer had spread to the lymph nodes but was dormant. His last oncology appointment in November was quite positive and he was cleared to go on holiday in Germany in December.

While we were away I noticed that his memory was quite bad, but he's always been a bit absent minded so didn't think anything of it. He had been having headaches, but was due to have his eyes tested so again thought it was that.

Over New Year he started slurring his words, drooling, and being quite abrupt and snappy. My parents remarked that his personality had changed and wondered if it was his meds.

Yesterday I couldn't understand anything he said, so against his wishes phoned 111, who spoke to him and sent an ambulance. He got very distressed and stopped speaking, so that his speech couldn't be assessed. The paramedics thought he had had a stroke but he wasn't meeting all the FAST markers. When he got to a&e they sent him for a brain scan and the results showed that the cancer has spread into his brain. He has two lesions and a tumour, which is "not small". He was put on steroids and is now going to be an inpatient for the foreseeable future.

I am devastated. I don't know what to expect, he hasn't seen his oncologist yet but she is due to come round today or tomorrow. His speech is even worse today and he is speaking out of one side of his mouth only, and drooling every time he speaks. He's in denial and is convinced he's going home tomorrow, even though I have tried to break it to him that he won't be.

Had anyone been in this position? What do I need to ask the oncologist? Any tips for what could make him more comfortable? What happens next? Please be gentle.

OP posts:
TheFuckfaceWhisperer · 05/02/2019 09:00

I'm very sorry and send love to you and your DS Flowers

PloddingOnwards · 05/02/2019 09:16

Heartbreaking news, so sorry for your loss. Thanks

1Wildheartsease · 05/02/2019 09:21

So sorry to hear this. You have both fought so hard.

The pain is over for him now . I am glad that he did get to be with you in those final days and hours.

I wish you comfort for your own pain and more of the strength you have shown in recent weeks.

This is not the end. The special things about DP- the history you have / all the love you have shown each other- these live on with you. He is in you and your family. - Even if that feels impossible now.

Fretfulparent · 05/02/2019 09:22

I am so sorry

Torvi · 05/02/2019 09:23

I'm so terribly sorry to hear this. Lean on those around you and take care Thanks

TwitterQueen1 · 05/02/2019 09:38

So sad to hear this Gretchen. You have been his rock for so long. Be kind to yourself. Flowers

HoofWankingSpangleCunt · 05/02/2019 09:44

I'm so very sorry for your terrible loss. You and your family are in my thoughts. Sending you love.

Seawig · 05/02/2019 09:52

So very sorry for your enormous loss. May comfort find you in time as you mourn x

Izzy24 · 05/02/2019 10:12

I’m so very sorry to hear this Gretchen.

Iggi999 · 05/02/2019 10:20

Such sad news, I am really sorry. Hoping you get the strength you need for the days ahead Flowers

ajandjjmum · 05/02/2019 10:41

I hope that in time your hapy memories will bring you comfort.

Dragonlight · 05/02/2019 10:49

I am so very sorry.

GU24Mum · 05/02/2019 11:52

OP, I am so very sorry to hear the news.

I know I am stranger to you in real life but I have been following your posts and had really been hoping somehow for a better outcome for you both and for your family. Be kind to yourself over the next days, weeks and months.

Loseitandkeepitlost · 05/02/2019 12:17

So very sorry for your loss x

AppleDump · 05/02/2019 12:27

So sorry x

bexcee · 05/02/2019 13:03

Sending you my best wishes, nothing I say will make any difference but know that I'm thinking of you Thanks

BettySwollocksandaCrustyRack · 05/02/2019 13:05

I am so sorry, thinking of you all xx

Paddy1234 · 05/02/2019 13:12

The love between you is all too evident
Big hugs and take care of yourself x

myrtleWilson · 05/02/2019 14:30

Am so sorry Gretchen your love for him bounces off the page. xx

TheGonnagle · 05/02/2019 14:41

I’m so sorry for your loss Gretchen. Your care and love for that man does you proud. Sending lots of light to you and your son for the dark days ahead x x

chickenfeathers · 05/02/2019 14:59

I'm so sorry. Flowers

smartiecake · 05/02/2019 15:03

I have also been following your thread and i am so so sorry. Flowers

BigApple11 · 05/02/2019 17:40

Much love to you xxx

shuthefrontdoor · 05/02/2019 17:54

So sorry for your loss x x

effiehabb · 05/02/2019 17:58

I am so sorry Flowers