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Total bowel obstruction and Ovarian Cancer - advice?

139 replies

LadyFlumpalot · 07/06/2018 19:55

Hi all, my Mum is in total bowel obstruction caused by advanced ovarian cancer and has been in a hospice for 3 weeks tomorrow. The last time she ate a proper meal was the beginning of April. Does anyone have any experience of this? Her doctors are being very vague and telling me they can't give a timescale.

She is still in symptom control mode, not end of life care but she is slowing down, getting sleepy, slurring her words and getting a bit confused.

I suppose what I want to know is - can anyone give me even a rough indication of how long? I'm so tired, the hospice is two hours from my house and I'm visiting every day as well as working and doing the childcare. I want to take a couple of days to myself but I'm worried she'll slip away and I won't be with her if I do that Sad

OP posts:
LadyFlumpalot · 10/07/2018 14:40

She has such tiny hands.

Total bowel obstruction and Ovarian Cancer - advice?
OP posts:
Floradoranora · 10/07/2018 14:46

Lady, im just posting to acknowledge both you and your darling mum. Your love for each other is obvious.

autumnboys · 10/07/2018 14:51

Wishing you both peace and strength. Flowers

Namethecat · 10/07/2018 15:28

Bless you both. Keep holding her hand 🌸🌸

heatwavelou3 · 10/07/2018 16:32

god bless you both x

BryanAdamsLeftAnkle · 10/07/2018 21:50

Huge hugs and love from me.

kalinkafoxtrot45 · 10/07/2018 22:09

Sending hugs from afar. 🌸

Eve · 10/07/2018 22:29

I’m really sorry, it sucks. I know it’s life, but I wish we didn’t have to let our loved ones go.

DrMadelineMaxwell · 10/07/2018 22:42

Awww, Lady, I have the same photo of me holding my Dad's hand when he was in the same situation.

His was bladder cancer, then malignant obstruction. He became confused due to the build up of toxins and wasn't completely 100% aware of what was going on when he was admitted. I do remember him looking at Mum and saying something along the lines of 'I can't believe it'.

Dad's morphine driver kept him out of pain, but quite sleepy and sedated. It was a horrible time to sit there with him, but I was glad to still have him at the same time.

When he finally passed away (about a week after stopping eating and drinking) which happened peacefully one night, it was sad to lose him, but I was glad he was no longer in pain.

Thinking of you at this very difficult time. Flowers

LadyFlumpalot · 10/07/2018 22:57

I stayed at her side until 7pm, but was horribly missing my own babies so as she was fast asleep I gave her a kiss and said I love you and goodbye. My stepdad is staying over and has faithfully promised to phone me if anything happens, whatever time it is. The hospice staff confirmed this is active dying now.

Thank you all for your words and reading my ramblings. Thank you.

OP posts:
waterlego6064 · 10/07/2018 23:02

This thread is very moving- I’m glad you are able to spend these precious moments with your mum- the photo of your hands together is beautiful!

My mum had a 9 month battle with stomach cancer, right in the middle of which, my dad had a 6 week fight with melanoma. They died 10 weeks apart, in the same hospice (though they weren’t in there at the same time). They had wonderful deaths. I hadn’t known such a thing existed, until it happened. Death truly is a part of life, and a ‘good’ death can be something that loved ones keep as a very special memory. I hope that doesn’t sound too bizarre. Obviously, I still feel that familiar pull in the middle of my chest when I relive their last days. But I feel so very honoured to have been with them as they left the world, just as they were there when I came into the world. There is a circularity to it which feels ‘right’.

I don’t think it matters whether or not you are there when a loved one takes their final breath. Death from disease is a process, not a singular moment, and so you have already been by her side as she dies. I hope your mum remains peaceful and pain free, and that she moves on gently when she is ready.

I strongly believe that people can have some control over their moment. My brother and I sat in vigil overnight with our dad, sharing a couple of beers and reminiscing about our childhood camping trips and outdoor adventures, which were always instigated by dad. We listened to Dire Straits and Huey Lewis; some of dad’s favourites. Dad hung on quite a lot longer than anyone expected; the Dr said he had a strong heart ❤️ The morning after our vigil, we stepped outside the room while the nurses were providing care and moving dad. We were only gone a couple of minutes before the nurse appeared and called us back in. Dad had died just after we left the room! I think he chose that. He was quite a private and dignified man in life, and I can believe he would want to be alone at the end.

Mum’s death was also a peaceful end, though a little sadder as her suffering had been so prolonged and so great, and she was so emaciated.

Sorry for rambling- it is so cathartic to talk about it, so I often end up sharing it. I’m sorry that you are going through this.

As for being able to enjoy moments- that is normal, and really good. I remember a moment during that horrendous year. Mum mum had just been released from hospital after a 10 day stay and was at home, and my dad was in the hospice. I had barely had time to breath in the preceding few weeks, and had been surviving on little sleep. One sunny Saturday afternoon, with arrangements in place for visitors/carers to look after our parents, my brother and I, along with our spouses and children, went and sat in a pub garden and had some food and a few ciders. It was bliss. Do enjoy those little breaks when you can.

Sending you love and hope 💐

ParisNext · 11/07/2018 06:19

Just logged on to see how you are OP. Will think of you today and hope for peace for you and your lovely Mum.

Eve · 11/07/2018 08:40

I feel the same as you waterlego, my DM died 2 years ago of ovarian cancer also. I haven't really talked about it til I met someone at a party yesterday who had recently lost her mum, we spent the entire party in a corner talking and sharing our pain. It hugely helped to talk about the process, experiences and how much we miss our mothers.

Its good to share with someone who understands.

Hope she is peaceful Lady.

MollyHuaCha · 11/07/2018 10:14

Thinking of you both.

LadyFlumpalot · 12/07/2018 18:08

She's still hanging on, by her fingernails it seems. She was conscious, just, this morning but fell asleep about ten minutes after I got here and hasn't stirred since. The doctor tells me this isn't sleep, this is unconscious-ness and he says he doesn't think she'll wake up again. I know she can still hear us so my stepdad and I are taking it in turns to sit with her and just chat to her.

Sorry for not name checking anyone. I'm so grateful for all of your replies and wishes. Xx

OP posts:
Slightlyjaded · 12/07/2018 18:27

What a peaceful state that sounds. Hopefully she will eventually drift away to the sound of your voice and I can’t imagine that she could think of a better ending than that. Bless you - your love for your mum shines through with every post.

viques · 12/07/2018 18:37

LadyF, it sounds as though you and your mum, and the hospice have worked well together on helping your mum, and you, through this sad time. I hope you have built up many positive memories of your mums last few weeks and days of life and that you have both found the strength to say the things you needed to say.

Go peacefully LadyF's mum.

LadyFlumpalot · 16/07/2018 05:06

She's gone. 1:30am this morning.

OP posts:
crabb · 16/07/2018 05:13

Hugs to you LadyF.

ParisNext · 16/07/2018 05:40

With love to you. I hope you feel a calm relief for both of you and allow yourself lots of time now to adjust. Bless you both.

Namethecat · 16/07/2018 05:51

So sorry to hear that. Sending you my thoughts and hugs to you.

GinisLife · 16/07/2018 06:10

So sorry. She's out of her pain and misery now and hopefully in a better place. Sending hugs. An awful time x

MollyHuaCha · 16/07/2018 07:17

What a lovely daughter you were to her. She must have felt so loved. You did an amazing job.

BryanAdamsLeftAnkle · 16/07/2018 08:45

Gentle hugs xx. You did her proud

L0UISA · 16/07/2018 09:51
Flowers
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