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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
TheVeryThing · 23/03/2017 14:39

You look so happy and in love in that photo, thank you for sharing it with us.

Rosa · 23/03/2017 14:40

keep strong , ask for help and support when you need it and may your happy memories live for ever

Procrastinatingpeacock · 23/03/2017 14:41

I'm so sorry you have lost John. I have followed your threads for a while, posted a couple of times, and it is lovely to finally put a name and a face to someone who brought you such happiness. You did so well to support and cherish him throughout such a difficult time. Thinking of you and your family. Xx

Stitchosaurus · 23/03/2017 14:45

That is a wonderful photo of you and John. I'm so sorry for your loss, my thoughts are with you and your family xxx

Occadodo · 23/03/2017 14:49

Chasing.... a beautiful photograph !

You should be proud that you have wonderful children and step children who have coped well and been so very brave!
The bravest of all though is John, the fighter !!! With a wonderful wife who has held him until the end.
I am thinking of you all .. sleep well John

PUGaLUGS · 23/03/2017 14:58

What a lovely photo.

I am so sorry John has passed away Flowers xx

CakeUpWall · 23/03/2017 15:05

What a beautiful photograph squirrels, thank you for sharing it. I'm so very sorry for your loss. You are often in my thoughts. Thanks

Blossomdeary · 23/03/2017 15:05

That truly is a picture that encapsulates what love is all about. That sort of love will never leave you - it is part of who you are now. Flowers

OpalIridescence · 23/03/2017 15:13

Thank you for sharing your beautiful photograph with us.

Wow, real love and happiness in that moment between you and John, it made me smile to see that xx

Chasingsquirrels · 23/03/2017 15:30

This was the other photo I was looking for earlier - from the garden party we had a month after our wedding when John was feeling a bit better. I wore my wedding dress for it again.
He was still very unwell on our wedding day, you can't really see it on my earlier photo as it was side on of him but most of the other shots show how drawn he was.

There is going to be so much to sort, but I'm ignoring most of it today - it can wait.

DH's cancer progression - DH has died [title edited at request of OP]
OP posts:
Sidge · 23/03/2017 15:39

He has such a kind face and looks at you with such adoration Smile

Those pictures must be so precious Chasing Flowers

EweAreHere · 23/03/2017 15:39

It's a lovely photo of you two. The happiness just shines out of the picture.

I'm so terribly sorry for your loss.

Cancer really, really bites.

x

Stuffofawesome · 23/03/2017 15:43

So sorry for your loss. Thinking of you and your family.

bialystockandbloom · 23/03/2017 15:55

Oh chasing what beautiful pictures, the love just radiates from them. I am so, so sorry x

ALemonyPea · 23/03/2017 15:55

So sorry for your loss Squirrels 💐

I remember your wedding thread last year. Beautiful photos of you both, you both look so in love with each other.

Haribogirl · 23/03/2017 16:02

Bloody cancer takes hold so quick!

So glad he was at home with you my his side, having you there and not in hospital
Love and condolences to you and your family at this very sad time.

NootNoot · 23/03/2017 16:09

That 2nd photo is pure love. Hugs xx

AliciaMayEmory · 23/03/2017 16:12

I'm so sorry to read about John. It must have been a great comfort to him to be at home with you by his side for his final days. The photographs are beautiful and show the love that is so obvious in your posts. I hope that you and your DC and family can continue to support eachother through this. Sending you all love and strength. Flowers

KittyMcGeorge · 23/03/2017 16:25

So sorry for your loss. Your thread breaks my heart as we lost Dad to oesophagal cancer and it mirrors what my dear Mum went through.
Be strong, accept the support that others will offer, and cry as you need to.. Love and prayers to you and your family Flowers

Teawaster · 23/03/2017 16:41

So sorry for your loss. I have been following your story for a few weeks. My DH died a week after your first post here from cancer also. Feel free to PM me if you ever want to chat to someone who has gone through something similar.

HelenaJustina · 23/03/2017 16:49

So sorry for your loss Flowers

UnbornMortificado · 23/03/2017 16:50

Chasing I'm so sorry for your loss. You and John look so in love on those photos, sending love Flowers

BusterGonad · 23/03/2017 17:47

What gorgeous photos Chasing, You both look so happy. John looks like such a lovely friendly person. 💐

Rowgtfc72 · 23/03/2017 17:58

Chasing, sorry for your loss of John. You can see the love you had for each other so clearly in your photos. Flowers

Horsemad · 23/03/2017 18:09

So sorry to hear about John, your posts have conveyed your love for him and your photos bear witness to this. Flowers