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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
itssquidstella · 23/03/2017 18:11

What lovely photos of you both. I'm very sorry for your loss Flowers

WelshMoth · 23/03/2017 18:13

Sending love to you Chasing and to your family.
May John rest in peace now. Flowers

JunosRevenge · 23/03/2017 18:21

So very very sorry to hear about John's passing, Squirrels. Your photographs are beautiful. Your love for each other shines like a beacon.

Wishing you and your family peace and love. RIP John.

Findingthissohard · 23/03/2017 18:25

Oh Squirrels, I am so so sorry. Rest in peace, John.

What beautiful pictures. It is lovely to put a face and a name to him. You have both being in my thoughts a lot and I'm glad that he passed peacefully with you there.

I'm so sorry for your and the boys loss. Take care of yourselves xx

dontbesillyhenry · 23/03/2017 18:38

Oh I'm so sorry x rest easy John xxx

MsJuniper · 23/03/2017 18:43

I'm so sorry for your loss.

The pictures are beautiful and show such love, affection and humour between you.

Wishing you love and strength.

Lalaloopsyscaresme · 23/03/2017 18:52

John looks like a kind man, a good 'un as the phrase goes.
This life is so cruel, gone much too soon,I hope time will heal a bit but I know the pain will never disappear xx

brianbennettfan · 23/03/2017 18:52

So sorry chasing, rest in peace lovely John. Thank you for showing us the photos. As my Dad would have said, you and John are a couple of 'bobby dazzlers'.

TheFallenMadonna · 23/03/2017 19:00

Rest in peace John. Thinking of you and everyone loved by him.

Hooleywhipper · 23/03/2017 19:15

Your love and adoration for each other shines through in your photographs. Thinking of you so much Flowers

PiggyPlumPie · 23/03/2017 21:24

They are beautiful photos, you both look so happy and in love xxx

McButtonwillow · 23/03/2017 21:35

I'm so very sorry for your loss, beautiful pictures, you both look so very happy Flowers

Chasingsquirrels · 23/03/2017 21:46

Thank you for your posts and so sorry for others who have lost loved ones.
Teawaster, I'm sorry about your DH - was that the end of January or do you mean my initial posts last year? I hope you are coping x.

OP posts:
GiddyGiddyGoat · 23/03/2017 21:58

Have followed your threads a little Chasing but not posted before. Very very sorry to hear your sad news about John. Be kind to yourself and your boys. Take care.

Startoftheyear2017 · 23/03/2017 22:07

Such lovely photos chasing, thanks for sharing your story. Stay strong.

JuanPotatoTwo · 23/03/2017 22:09

squirrels I'm so so sorry that you've lost John. The two pictures you posted are beautiful, and it's clear to see from the way you are looking at each other that you are very much in love.

Life is very cruel sometimes. If you want to pm me at any time please feel free. I will keep you, John and your family in my thoughts xx

JillJ72 · 23/03/2017 22:11

I have followed your story with John since hopping onto this board as a supporter. Thinking of you all, and sending gentle hugs. Xx

CoolCarrie · 23/03/2017 22:13

Lovely photo Chasing.
There is a poem that I think is very beautiful by Leo Marks

The Life That I Have

The life that I have, is all that I have,
And the life that I have
Is yours.
The love that I have,
Of the life that I have
Is yours and yours and yours.

A sleep I shall have,
A rest I shall have,
Yet death will be but a pause,
For the peace of my years
In the long green grass
Will be yours, and yours and yours

mineofuselessinformation · 23/03/2017 22:17

You are lucky to have had him, and he you.
Don't rush to do anything, it will come in its own time, when you are ready.
I'm so glad for you that yesterday was as good as it could be.

ChippingInLovesWoollyHugs · 23/03/2017 23:13

That photo is lovely Chasing, you can feel the love between you 🌹

Teawaster ((xx))💐

Teawaster · 23/03/2017 23:13

Thank you Squirrels. My Dh (Also John) died a few weeks ago on 13 Feb ,just less than a week after this post started on 07/02. I hadn't seen your previous posts. I also have 2 boys aged 15(twins). I hope you are doing ok. I have to say the last few weeks of his life were the worst and whilst i would give anything to have a husband that has a quality of life, I am glad that I don't have one that doesn't

Chasingsquirrels · 24/03/2017 02:02

I'm so sorry Teawaster, for you and your boys. I must have misread your post as the week before not the week after.
And yes - as much as I want John back, I didn't want him to have to live as he has been doing for the last few weeks. I'm glad he no longer has to endure what he was going through.

I went to say goodnight to ds1 3 hours ago and after lots of tears and talking things through I've just left him, and now I want to get into bed with John and cuddle up to him and let him make my world right again.

Life can throw an awful lot of shit at you sometimes.

OP posts:
Twinkie84 · 24/03/2017 02:39

I'm so very sorry for your loss. RIP John

HelsinkiLights · 24/03/2017 03:55

Your photos are beautiful Squirrels
I'm so sorry for your loss.
John sounds like a lovely man.

Nix32 · 24/03/2017 05:09

Sending love Squirrels, to you and your boys.