Not a good day. leukaemia diagnosis.

[biscuitsandbandages]

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

biscuit - what an awful shock for you :( you are doing really, really well - and of course, we wont let you fall x

Blonde pip, hi! Whoop whoop for curative bmt! I'm so pleased for you! :-)

And thank you for sharing your tips and support it means a lot.. Every positive story is one more I can aspire to!

It was just a migraine. Just a migraine. Didnt even get to a proper headache. Just a migraine.

Strange how something so normal can be so scary when you are feeling so vulnerable.

Neutrophils are down to 0.9

Officially neutropenia but not yet severe neutropenia. Just had a lovely chat with one of their nurses about what happens if I get an infection. 3 blood samples, urine to lab, immediate chest x ray and antibiotics started within the hour for any raise in temperature even if I feel well. Well that sounds thorough so I'm a bit less scared.....

Don't worry about infection the nurses deal with them all the time, they'd tell me it would be unusual not to get one.they quickly get up antib's and you get a trip out of your room for an X-ray!! Like a day trip out!! Lol!

They do BMT's because they work and to be fair mine flew by. Was pretty whacked first few months but I'm 7 months out, back at work part time, looking after the kids. I was given a 30% survival stat by one t**t of a consultant! Our outcomes can't be measured by stats we're individuals with our own path not some figure! I decided my stat was 100% survival!

It's not nice what you are going through but it is doable and after you will wonder what on earth just happened but life is so much richer to me now.

Just popping by to say hello, and also that its wonderful that other posters who've experienced the same illness or similar are sharing their experiences. You ladies are inspirational! It's very reassuring to know that when life throws a piece of shit at you, there are wonderful, warm, positive people out there who have walked in your shoes and are offering hand holding right now. Mumsnet at its best.

Hi biscuits, just wanted to let you know that here is another poster to join the crowd in listening to what you need to say, wishing you peace and strength. Take care.

I'm going to be like you guys. Someone who HAD cancer.

This will not define my life. It will not define my childrens lives. Baby R will know her mummy and I will be in the playground with B+W jumping on the trampoline.

If I get an infection they will sort it. This is the reason in have avoided meds and antibiotics until now, i just didnt know it...... I have no allergies no intolerances built up... They can through the book at me and I will take it because someone else's statistics don't apply to me because I am an individual.

Thank you everyone for holding my hand through the darkest days of my life and helping me see that the light at the end of the tunnel is my grandchilds birthday cake not an oncoming train!

Just had a lovely movie afternoon with the whole family. Baby R slept n her car seat and didnt even open her eyes so is obviously learning to sleep better little by little. I felt sad we hadn't seen each other but she was getting what she needed and even asleep she would have been in no doubt from the noise laughter and gentle bollocking of small boys that she was wrapped in her family's love x

Ahhh, there's lovely!

So pleased you managed a family afternoon.....

:)

was what I was trying to say!

Yay biscuits, so pleased to read you and see that you are taking this as it comes with so much strength and practicality. Your love for your family and theirs for you will see you through this stronger than ever.

Great to read! Yes you'll be over this soon!

Don't feel a failure if you get an infection or a reaction, everyone does just remember you're young and strong, you have youth on your side.

Don't worry about what you're eating, eat what you want - just make sure you are eating, even if family bring food in. All these healthy eating things, when I was diagnosed my cancer was making me food intolerant, I was on the cleanest most natural diet it did nothing to help! The dieticians will tell you to eat cakes if your weight falls. Do you have a fridge in your room?

You'll be going home for your first break before you know it.

Are you likely to lose your hair? If you want any info re headwear just shout.

Evening Biscuits

Glad to see you pushing the storm back.

Glad for your choice of one of the only two numbers, tonight.

Baby R is with her family, you gently crept into her life over the last few months, even unborn she heard you.

I love your picture.

Set sail. x

Lovely post Biscuits. Hope your family-filled day means a peaceful night for you x

I'm so glad that you've had such a lovely afternoon with the other biscuits (I think of you all in a tin, in your room together!)

I'm loving the way that the train isn't at the end of the tunnel and that you, as an individual are ready to form your own biscuit style stats!

Keep at it lovely.

Xxx

What a lovely update biscuits. Glad you got baby cuddles.

I'm thinking of you.

Biscuits I've been a lurker since the start but after your lovely post from earlier I couldn't not say hi.

It sounds like you are doing amazingly after a huge big bloody shock.

It must be very hard and scary to be away from your normal life but there are always MNers around to listen.

One day you can come back and be the support for someone else whose received a scary diagnosis like deserttrek and others are for you. Keep looking forward to that grandchild's birthday cake

Morning Biscuits. Hope you have had a restful night and that today is kind to you- it is another step towards home x

Good morning!
I have a favour to ask.

Its been suggested that there might be other ALL survivors lurking around mumsnet and I had a search through older posts to see if I could find them.

Problem is its breaking me. I keep finding bad news and bereavement and I cant keep looking at the moment and keep my sanity.

Could some kind person please have a look for me? Positive stories only please! X

See;
Goldensunnydays81 14-04 at 06:09
Drewswife 14-04 06:13
YouDoVooDoo 14-04 07:03
Lilymaid 14-04 13:40
TabithaMcKitten 14-04 22:33 (childhood)

There may be others.

Also:

JuniperTisane 14-04 at 10:29

Probably not everyone is ALL, but some are.

Also the hospital may have a bank of ALL survivors who may be willing to tell you their story. See also Anthony Nolan - call 020 7424 6588 or email them - they can also put you in touch with ALL survivors.

Not on mumsnet, but if looking for some blogs/personal experiences could look at the following

Leukaemia & Lymphoma research - lots of positive info
Following blogs I read
Jayne Snell on caring bridge (MDS)
Glenn Swatman on Wordpress (leukaemia not sure which one)
Macmillan has a stem cell transplant forum with lots of experiences on
On Facebook is the bone marrow survivors club (this is American so every question seems to be followed by a disclaimer)
My blog hanloumac on Wordpress, mine is Hodgkin's but lots of info of getting through treatment
All of these are positive places.
I also know a couple of guys that are raising money for LLR doing portraits of blood cancer survivors, if you like I could ask them if any of their contacts would be available to buddy you?? I had a buddy through a family friend and it really helped me, I still talk & text her now but should meet up with her really, shout if need anymore!

On the wider web:

www.blogforacure.com/members.php?type=Acute+Lymphocytic+Leukemia

I know when my mother had breast cancer, we learned a lot of people we knew had survived it too. We didn't know because 10/20/30 years later it was just part of their history. I hope this helps.

Thank you everyone especially desert. . I didnt want to bug you with questions again.. you have been so kind and given me so much hope already x

That will give me some reading for today while apparently I get an exciting blood transfusion.

So today is a BIG THANK YOU TO BLOOD DONORS day. Make it a positivr one!