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ERA EMMA ALICE testing thread 8

1000 replies

Gardenlady543 · 25/04/2023 18:23

@2021ivfagain @kerrym87 @Janefx40 @seven201 @thislittlebird @Spin101 @Enfys23
@CailinInUK @BewilderedBee @Loz2467 @Lori2022 @VenusStarr @clhiu @Faithhopelove83 @APSR @ChickenT2b @Mina209 @IVF22 @Lizzybeth1988 @AM08 @Fluffykins33 @Sar1010

Continued in from thread 7 :)

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18
Janefx40 · 27/07/2023 20:25

@Spin101 thank you. I'm actually an old thread member - I just like to check in on my old pals and anyone else who's going through it all. I got lucky and had my DS in May. Hoping for good things for everyone else soon x

Spin101 · 27/07/2023 20:31

@Janefx40 congratulations!! Hope you’re loving everything with DS ❤️ that’s very kind and sweet of you x

clhiu · 28/07/2023 09:07

@Sar1010 you’ve pretty much hit the nail on the head there! It’s really starting to feel like and impossible quest for me. As soon as you think you got somewhere and you’re clear what you need to do and roughly how much you’ll need to spend, something new gets thrown into the mix and it’s so hard to know what to do every time. So yeah, I sadly have no idea what would be the best order of treatment, but rest assured you’re definitely not alone in feeling this way.

@Spin101 I’m not even sure what the difference between hyfosy, hycosy and HSG is and to be honest it’s the first I hear of hyfosy. That one she told me is when they put foam in your fallopian tubes so they can check for blockages on an ultrasound, but also the foam cleans up any build up she said. Is that the same a hycosy? I was looking at my clinic’s price list and hyfosy is the only procedure out of the 3 they offer.

Thank you @Gardenlady543 and @VenusStarr, I think I’m gonna bite the money bullet once again and go for it, although part of me is getting really concerned about finances and perhaps I should wait to know whether I’m definitely getting an annual bonus or not this year, which would mean waiting at least till the next cycle - confirmation is usually given some time in September.

@VenusStarr ah yes, I started seeing CRP after my rather costly single IVF round with CRGH failed with a confirmed euploid embryo (after being told no reasons for recurrent miscarriage was found and therefore put down to poor egg quality because of my age). I decided to look into the immune system as I couldn’t afford more IVF with PGS anyway and however pricey Dr Shehata’s treatment is it’s a fraction of IVF and more spread over time. I’m under the care of Dr Edge and find her absolutely lovely. This is my first cycle with them, initially wanted to go full natural, but decided on superovulation instead as as we haven’t tried naturally in a year and wanted to boost my chances a little. The found elevated NKC count and high toxicity, my plan is for intralipids and Pred. It’s only one failed cycle so far, but given how easily I gotten pregnant in the past and that I’ve definitely ovulated, I can’t already help but wonder after one attempt whether the protocol I’m on, albeit probably effective at preventing miscarriage, may end up stopping me getting pregnant in the first place. Such a minefield isn’t it?
Good idea to test out the trigger, haven’t thought about it this time, but will do next month as have a lots of cheap tests.
Did the clinic say that your faint positive at 12dptrigger was definitely residual trigger? When I had my FET I triggered with 10000iu of Gonasi and was assured it would completely leave my system within 10 days. I also had an HCG infusion as part of the transfer and was told that would leave my system within a couple of days. When I got a very faint but clear line and some HGC found in my blood at 8dptransfer the clinic told me it would have definitely been partial implantation and couldn’t have been residual trigger.
I still have all my hopes up for you testing Saturday ❤️ and if it hasn’t worked out, sounds like you have a plan. Keeping going is the only thing that’s kept me going so far.

@Janefx40 lovely to hear all went to plan for you and you had your DS ❤️ x

clhiu · 28/07/2023 09:24

PS do we need a new thread? I don’t really know how it works or when threads fill up

Enfys23 · 28/07/2023 10:59

@Sar1010 @clhiu it is so hard to know what to do especially with time and money factors but it sounds like the tests will be useful info to have. I had a Hycosy as well as hysteroscopy. I was told it was important to rule out adhesions in tubes especially due to my endo and even with knowing we were going straight to IVF that blocked tubes can leak a fluid that can be toxic and impact what’s going on inside the uterus. Sounds like Hyfosy is using a different fluid rather than just saline. HSG is done under X-ray rather than ultrasound.

@clhiu sorry to hear the outcome but glad your tooth infection is on its way out and you feel positive about the next cycle ❤️. Thanks for posting the 2WW video.

@Spin101 I hope you’re now feeling loads better!

@2021ivfagain great news about the bloods. Hope all goes well with the scan.

@kerrym87 hope doxy isn’t too bad this time.

@CailinInUK I hope you’re doing okay.

I am not doing so great at the moment. Started with brown mucus/discharge mainly when I wipe, and period like cramps and lower back ache yesterday 5dp5dt. Worried it’s all over already. I had spotting in 2WW in my very first cycle but that wasn’t until 8dp5dt and ramped up to full AF within a couple of days. My usual pre period endo pains are ramping up too they’ve been there since just after egg collection, which ties in with my usual ovulation start but much worse past 48 h (anyone here with symptomatic endo and experience of what that’s like in early pregnancy?). Really trying to not let it stress me as know that won’t help but hard not to lose hope.

Enfys23 · 28/07/2023 11:01

So kind of @Gardenlady543 and @Janefx40 to stick around for us 🥰

Sar1010 · 28/07/2023 11:27

@Enfys23 @clhiu yeah its so so hard.. but I do think now that I’ve slept on it that the tests are a step towards the right direction. I just need to work out whether to do the procedures at my clinic Evewell (who recommended I wait until after another egg collection which made me worry slightly that they just want our money) OR do I go ahead with Bill the gyno and just let my clinic know that it’s happening/happened else where ?? Hmm decisions.

I think it just gets so overwhelming. I’ve been waking up so anxious recently, really struggling to breathe deeply and so panicky. I do counselling but yes finding it so consuming and forgot what I used to be like before all of this.

@clhiu Dr Smiths actually explained to me that Hycosy is just a brand name for the surgery.. like Hoover or Tupperware. It isn’t the actual procedure but the company. Thought that was quite interesting.
would you get your procedures done at your clinic? How do you feel about your clinic? Where are they based and would you recommend? I do like the evewell but my partner is starting mistrust them a little which really doesn’t help at all.

thank god it’s Friday Ey!
s x

2021ivfagain · 28/07/2023 12:26

@Janefx40 I feel better staying with CRGH at present due to microbiome issues and last time with my son having subchorionic haemorrhage which was really traumatic.

Not doing great at present. My Dad has been very ill. I begged the hospital to keep him in. They said he was fine when the next day he was rushed into hospital again with internal bleeding. The doctor called me yesterday to say he’s now very unwell and condition is critical. Feeling anxious about my Dad, my microbiome and also my Mum has she had some bad health results back which she needs to investigate further.

@Enfys23 I had spotting one day after transfer due to procedure. It was brown blood. Also, I had sharp cramps and twinges from 2 days after transfer. This continued 3, 4 and 5 days after transfer. With my son, I also had sharp twinges/cramps.

@Gardenlady543 I am taking another Vaginal swab. The canesbalance is helping and the clinic are allowing me to take one a day but they don’t understand why I need to take a probiotic with it. I’m using Flora Femme most of the time. Do you know if canesbalance treats BV or just the symptoms?

Janefx40 · 28/07/2023 13:01

@2021ivfagain I'm so sorry about your Dad. Really hope things improve for him. Must be very stressful to cope with.

I wasn't suggesting you leave CRGH just that you can do additional blood tests via Medichecks and it's cheaper x

Enfys23 · 28/07/2023 17:18

@Sar1010 is that egg collection alone they are suggesting or would you be doing a fresh transfer?

Thank you @2021ivfagain
I’m so sorry about your dad xx

Sar1010 · 28/07/2023 17:41

@Enfys23 oh good point, I guess they would try and do fresh transfer (though last time OHSS got in the way of that). But actually you’ve raised a good point- if I were to have HSG and lap before egg collection then I could potentially be in the best position for fresh transfer!

Enfys23 · 28/07/2023 17:50

Yes @Sar1010 I think if those investigations have been suggested then I would get them done before any potential transfer. Seems very odd for them to suggest egg collection first if you’d aim for fresh transfer if possible -that’s basically same as saying give it one more go and then do them - a legit plan for some but one you’d have to 100% happy with x

clhiu · 28/07/2023 18:12

@Enfys23 I’m sorry the spotting and cramping is causing you worry, it really is impossible to know if a good or bad sign so I imagine it’s just causing the 2WW stress to just ramp up even more. I hope it’s the implantation kind of spotting and cramping afterall 🙏🙏🙏

@2021ivfagain I’m so sorry about your dad, it sounds really upsetting and stressful especially at a time when you’d hope to be getting some enjoyment from your BFN and want to limits stress x

@Sar1010 ooh, I see, thanks for explaining about the name thing. I’d have the hyfosy done at my current clinic CRP in Epsom as the consultant there is the one who proposed it and said it’s minimally invasive and can be just done at the same time as my next superovulation scan without sedation etc…I’m fairly new to that clinic so haven’t got any previous experiences of procedures there. Also they’re not an IVF clinic, they’re just a fertility one, they don’t do IVF at all there, but they partner with Kings for that.
I had several procedures with my IVF clinic CRGH and was happy with all of them and definitely trust them to do a safe job (1 EC under sedation, 1 hysteroscopy D&C under heavy sedation and ERA/EMMA/ALICE//NKC endo biopsy, they’d usually do the latter when you’re awake, but I had it at the same time as the hysteroscopy so I was under). I had no ill effects or consequences from any of these procedures and felt I was in very good hands each time. How come you say your DP doesn’t trust your current clinic to do the recommended procedures? Or is he just skeptical about them in general for other reasons?

Enfys23 · 29/07/2023 08:17

Thank you @clhiu I'm feeling so anxious it’s unreal but really really trying to use some of the mindfulness techniques I’ve learnt in run up to this cycle and calm myself down. I know stress isn’t going to help. It’s not got heavier so I hope that’s a good sign.
I know what you mean @Sar1010 I think if we have another BFN with this 5th transfer, given we’ve never had a shred of hope over these years, never seen two lines, my DH will be suggesting we stop as he’s worried about what I’m putting myself through. I don’t think I’m ready to yet even though I know it’s not really living right now. It’s so all consuming. We’ve already been told time is of the essence for us because of my ovarian reserve and worsening endo so I don’t feel we can take any break.

VenusStarr · 29/07/2023 08:31

@clhiu how are you? Bfn for me today but I'm not surprised. This cycle didn't feel right. We've decided not to do more superovulation now.

@Enfys23 just wanted to send you some love ❤️ I thought my dh was ready to stop (and last year when I had my breakdown we did stop because he couldn't handle seeing how bad my mental health was). But the break has really helped me. I know with low amh and I've got adenomyosis, fibroids and the immune issues, and my age! Time is definitely not on our side. But we had a really good talk yesterday and talked through our worries and we've got a plan now. We're going to go back to ivf, thinking of a 3 cycle package to see if we can even make embryos anymore (I'm not confident based on last year), I am open to a day 3 transfer as well. And then, if it doesn't work I think I'm ready to stop. He actually surprised me with his thoughts as I thought he might not be open to doing more ivf. He is concerned about my mental health, but I do genuinely feel better in myself because I'm in a good routine with exercise. I was saying I'd contact the clinic in September but he said I should just move forward with it now, which again surprised me.
We need to save some money, so we're not officially ttc for the next few months now. If at the end of that it's not worked, we're drawing a line and will live childfree, knowing we did all we could - what you said @Janefx40 about having no regrets has stuck with me.

Sorry for the waffle, but I just wanted to share that you're not alone. I really hope this is all a moot point for you 💕 xx

Hope everyone is doing well ❤️

Sar1010 · 29/07/2023 08:32

Hey @Enfys23

I totally understand about not being ready to stop but it also being SO consuming and taking over your life.
sorry you feel so anxious… I had awful panic moments yday and what really helped was cancelling a few plans and just taking some time out to sit and breathe. I even cancelled my counselling which sounds counter productive but it was actually really nice just to have some time. Sometimes I prefer the opposite and keep as busy as I can.

sounds like your mindfulness techniques will help. Sometimes I just feel a sense of relief when I see someone has posted on here- knowing that there’s people out there that feel this same isolating pain is weirdly (and morbidly) comforting.

I had a friends birthday last night and a friend of a friend (who knows about our infertility) joked that they think I’m pregnant because of my body shape. I wasn’t actually bothered in the moment- but it’s been playing on my mind this morning. What a strange thing to say?!

Enfys23 · 29/07/2023 08:40

Thanks for the love both @VenusStarr @Sar1010
I’m glad you have a plan moving forward @VenusStarr and DH supportive - as you say no regrets💚
@Sar1010 I know what you mean. That is a really strange and frankly hurtful thing to say. I’ve got such a bloat on at the moment and am generally small framed that I’m worried that someone will say something! Hope you’re ok ❤️

Loz2467 · 30/07/2023 15:28

Sorry I’ve not been on for a few weeks! We had a 2 weeks holiday and prior to that my stitches from my lap got infected! So it’s been pretty rough and I just wanted to switch off! Not that that ever happens because it’s always just there.

@Enfys23 wishing you so much luck with this transfer! Everything crossed!

@VenusStarr I have adenomyosis also! I did a down Reg before my last FET which was 2 months of prostap and that didn’t work. So I then had a lap which I’d been waiting on for ages and no endo found so I’m currently going through more down Reg.

does anyone know the best vaginal probiotics to use? As I’ve had antibiotics for my stitches? Also my pred is only 10mg. I thought for adeno you needed higher although I’ve never had NK cells tested. I was doing okay but knowing I’ll have a transfer in maybe the next 5/6 weeks my anxiety is back and my googling!

Im not too sure what more I can do. On a down Reg. Going to add some letrozole after my next prostap to diminish any estrogen from the actual adeno not just ovaries. Got pred, Inhixia and extra lubion.

2021ivfagain · 30/07/2023 18:49

@Loz2467 I find Flora Femme to be the best especially when used with canesbalance gel. I put Flora femme in first, then use canesbalance. I also use canesflor with canesbalance as well. Vagibiom is good but can get a bit messy. I find vagibiom balances ph, but canesbalance dramatically lowers ph.

@Spin101 How are you doing?

Gardenlady543 · 30/07/2023 18:50

@Loz2467 I like flora femme and vagibiom. If you've been on antibiotics and you're worried about your microbiome elsewhere you may want to consider an oral probiotic like symprove, I hear good things about it.

OP posts:
Spin101 · 30/07/2023 19:31

@2021ivfagain I’m fount much better thank you. I hope I’ll feel back to normal in a few days. I’ve been having brown spotting/discharge which is concerning me. How are you doing? Have you had any symptoms?

2021ivfagain · 30/07/2023 20:59

@Spin101 Not had many symptoms. With my son, I had early nausea, but no nausea at all unless I am hungry. I have dizziness occasionally. I get breast pain sometimes. I get rapid heartbeat daily. I do feel tired quite a lot but that’s it. I sometimes have gentle twinges but lot less now. I’m really scared about my scan. My scan is 8th August. I’ll be 6 weeks 5 days then. I’m 5 weeks 3 days today. I’ve heard that brown spotting is normal but how many weeks are you now? I hope the covid is going.

Loz2467 · 30/07/2023 21:18

@2021ivfagain I don’t really know much about it all!

I was gonna buy the canesflor and use that? I’ve got the garden of life oral probiotics. What do you think is that okay too? @Gardenlady543 . I also think I’ve got some optibac ones left too.

Gardenlady543 · 31/07/2023 06:44

@Loz2467 canesflor is the only one you can get from the Uk, it's probably my least favourite option but if you can't get anything else it will be ok. For oral I take optibac for women, femdophilus and bio femme v.

OP posts:
Gardenlady543 · 31/07/2023 07:43

We've maxed this one out, new thread:

ERA EMMA ALICE testing thread 9

www.mumsnet.com/Talk/infertility/4861183-era-emma-alice-testing-thread-9

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