CRGW

[Jacky83]

Is anyone else on here having treatment with CRGW in South Wales? Just wondering what other people's experiences with them have been.

@Blueron123 I am definitely interested in contacting them. Did they do all the tests with him again or did they just have all your NHS results and how much did it all come to if you did need the tests done again?

@Cat028 aw so you've had her from a little baby then 😍 I work with animals so am a bit animal crazy haha.

Yeah in my old job I had a male manager and he just let me tell the girls on my team if I needed any time off, think he felt a bit awkward talking about it. Have a woman the same age as me now though which is nice. She is really approachable and we get on well. My other manager I get on really really well with but she is rubbish at secrets so I have not told her anything lol.

Think if it works I'm going to be sooo nervous in work though and just want to sit there and not move incase something happens. Not like we can just try again the next month. 😕

@Becbelly he was happy to accept all the NHS results. He's a really nice guy.

@BecBelly yeah! She was so tiny 🥰 she's growing into a lovely cat too. Very affectionate and cwtchy!

Haha! Sounds very much the same as my head. But I'm fairness he's been great. Can't fault him. Aw that's good. Lucky you have 2 managers so you don't have to tell the one who can't keep a secret!

This has crossed my mind too tbh. My job can be very hands on and we deal with some significant behaviours. But we have to protect ourselves at the end of the day. I'm sure everyone in work with you would understand though. It's going to be such a nerve-wracking process!!

@Blueron123 thank you for all your advise. I'm sure I will have a lot more questions in the months to come! I wish you all the luck in your journey and hoping for some good news for you soon. Please let us know how you get on.

@Cat028 we definitely need to do what is best for us. Hope work will understand. I think if it works out I'll tell them all everything then (maybe not the donor part if we have to go down that route as that's a bit personal) I think OH is really worried about the donor part. I'm still unsure how he feels about as he won't really talk about it, which makes me nervous.

Thanks @Becbelly
Good luck to you! If you've got anymore questions let me know x

@BecBelly I'm sure everyone will understand and be supportive if you do decide to tell them. You have some time to decide who you want to tell.

I totally get that. I try not to talk about our test results too much because I'm sure that DH must feel a bit upset that this is the route we have to take. Although, I'm glad it's not just his results otherwise I'm sure he'd feel worse. Hopefully once you have your consultation you both will feel better about things. Fingers crossed 🤞🏻

Do you have things to keep you occupied in the meantime? We have a week off together this week so spending it binging a few shows on Netflix.

@Cat028 DP is off in the sick at the mo, he lost his mum just before Christmas. He's doing ok though... currently decorating the house which I am very happy about lol. Our wedding was my distraction and tried to sort some bits today just incase but my head is not in it at all now.

That's nice to have the week off together. We could watch Netflix all day when we find a show we really like. Not much else to do at the moment.

There was three Facebook pregnancy announcements this weekend. I'm letting things get to me touch. I always feel like this the first few months of a new year though and then settle back down come spring.

I hope you both have a nice week off. It's definitely milder than it was last week. When did you say your appointment was again? I bet you can't wait to get started now. Mine is a month today for my scan/bloods. Think it'll come quick though!

Aw I'm so sorry to hear that! That's good he's keeping himself occupied though. What is he decorating? Love doing the house! We have had 2 boiler leaks and a roof leak recently. Money I would have rather spent on other parts of the house!

Do you have much left to organise? I'm sure those announcements didn't help with how you are feeling. Keep counting down to your tests. They'll be here soon. I have mine on Friday. I'm so ready to get going. I was on a zoom call with Wales Fertility Network and the NHS clinic earlier and they confirmed the wait was 12-15 months to initial appointment.

@Cat028 wow... that's a long wait!! It feels like forever, such a slow process. I've not heard anything from them for over a year now apart from the times I have called them... no up dates or letters even to tell us things have been postponed.

Excited for you for Friday. ☺️ and then not long until your consultation! Hope things get moving for you then.

He is painting the whole house. I'm not complaining 😂

@BecBelly It is isn't it. Are you on the waiting list for treatment or for retrieval first?

Yeah, they said that last night that they hadn't given correspondence but they were hoping to set something up to reassure patients.

I'm hoping it'll fly by! I'm so relieved DH is home otherwise. I'd be doing my own head in over thinking on my own in the house. Hopefully by our consultation we will know what our plan will be. 🤞🏻

Haha! I wouldn't be complaining either! I have 1 room I want to paint and I'm still procrastinating 😂

@Cat028 we are hoping for the retrieval first but we will see if they think if it's a chance. If not we may not do it. But if there is even a small chance we will. I'm just wishing time away now.

Yeah nice to have some time together to. Yes hope you will have a plan by then 🤞🏻 the waiting is the hardest but when you just want to get things moving!! I
Hope you don't have to wait to long x

@BecBelly hopefully they will be able to tell you more in your consultation for you to make a decision.

Thanks ☺️ the waiting has definitely been the hardest part for me. I like everything planned out and to know what's happening so I've really struggled with this whole process. I'm feeling a lot more myself and now that we have this consultation and tests coming I'm feeling much more positive. I'm trying hard to not let my hopes get too high as I know there's a chance it won't work first time.

Are you trying for your first?

@Cat028 we have no children, so yes trying for our first. I came off the pill June 2016 and finally went to my GP March 2018. It's been a longggggg journey so far and still no closer 🙄 hopefully this year or at least next year will be our year. Heading in to late 30's so don't want to wait to much longer.

Yea it is hopeful to have something booked. I can't wait for ours but also trying to not get my hopes up. If they say no point to the retrieval OH not even saying he would do donor or not. Every time I bring it up he changes the subject.

@Cat028 good luck for tomorrow! Hope it all goes ok! Another step closer 😃

@Becbelly Fingers crossed this will be the start for you both! At least you'll know where you need to go next after this. I bet it's a really hard thing for him to consider. He sounds a bit like my DH, if it's not happening at the moment he won't really talk about it. Maybe after you know if there is a chance he will be more open to having a conversation about it. I'm the same, trying not to get my hopes up either but I can't help being a little excited.

We received another birth announcement yesterday so I was in a bad mood all day. 😢

Thank you! It all went well and they were really lovely and took their time to talk to me and answer all my questions. The scan and bloods went fine. I wasn't expecting it to be an internal scan but I went prepared just in case. It all looks good for my ovaries and uterus though. I'll get my AMH results back in about 10 days.

@Cat028 I'm glad everything went well today.
Did they say how long the wait is to start treatment?

@Blueron123 thanks ☺️ The nurse said that they were booking people in to start around March/April time for egg collection and transfers in May/June.

@Cat028 Fab. Do you know if they're doing fresh transfers or frozen only?

I didn't specifically ask about that as I would need a fresh transfer as it would be my first cycle. She didn't say they weren't doing any type of cycles though.

@Cat028 glad it went well! Good news! Yeah I've had a few internal scans now... had soooo many tests done on the NHS. The worse was a dye test and x-ray to check all my tubes were clear! Wasn't a fan of that at all! Not looking forward to having some done again but I am looking forward to getting started!

Not to long to wait to start as well which is fab!

Sorry you felt rubbish about the announcement, I had two on Facebook last weekend and again my heart sank! And then my friend sent me her 4D scan as well today. I'm back on the chocolate again haha.

@Becbelly omg! I felt the same with the HSG too. Really didn't like that one.

I only had the internal ultrasound and blood test so hopefully that'll be all for you too. I wouldn't like to do the HSG again!!

Aw hun! That's rough! Too right, get that chocolate down you. My DH came back with a mini eggs Easter egg for me earlier. So I've been digging in too.

@Cat028 ah what a guy! 🥰

Yeah I think the NHS do a lot of tests to see if you are a candidate in a way and the best treatment... but I think it'll be so different with a private clinic. Yup I don't really want to have that again!! Are you sending your NHS notes to them? Have they asked for them?

@Becbelly He is a good egg!

The only testing they required before the initial consultation stage was the AMH blood test, ultrasound scan and a semen analysis. (They did accept my DH analysis from the end of November as it had been done in the last 3 months.)

They told me to have my results ready to discuss at the consultation because even though they do their own testing previous results help them to build a bigger picture of previous treatment.

@Cat028 when they say results ready does that mean you had to get your NHS test results your self? Or just the results from the tests they have done for you?

@Blueron123 how did you get your results sent over when you went from the NHS?

Been walking with two of my pregnant dog mum friends today again. Lost of baby talk again. I wish we could afforded to do it all private.... but DP would never let me spend that much money on it... he doesn't even want to pay for the retrieval private but I'm going to push for it! Why are men such hard work? Lol.

I was wondering if there was a private message I could talk two the both of you on. But no idea how to do anything on this app. I used to use the website when we first started TTC back years ago but when nothing much happened I came off here. Was much easier to use before I'm sure 😂

@Becbelly
I haven't had anything sent over yet. I've sent a form to WFI requesting a copy of my file. I have a copy of my blood results etc from a couple years back if they need to see them. I'm having my AMH repeated with them when I go in a couple of weeks. I don't know if I'll need any further blood tests with them, other than the Std tests. Maybe because we've already had a diagnoses with NHS and have had two cycles, we won't need to repeat any of the tests but I'm not 100%.
I hope you manage to convince your hubby to have the retrieval done privately, especially as WFI are training an urologist to do it. You want every chance possible of finding sperm and it would be better to go with someone that has a lot of experience. I do feel for you hun.

I thought we could send messages on here but clearly not - I've been looking for a while but can't find anything 🥴 x