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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

When can investigations resume? (Scotland.)

782 replies

theotherfossilsister · 07/05/2020 13:53

Just that really, I know it's a difficult time for so many people, but clinics shuttered just as DP finally agreed to get his semen analyisis done. My progesterone was normal, and I have regular periods, so I don't think Clomid would be an option for us. We've been trying for a year and a half, and I am 35 on Saturday.

If we do get a referral, and need IVF, how long will that take? So many questions?

Thanks

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BeHereNowx32 · 18/08/2020 07:26

@RonRon1 @Daisz yeah, definitely need to focus on one stage at a time. I had a couple of moments where I started to feel desperate to be pregnant again. But I don’t want to think like that. It will just cause stress. I’m back at the hospital again tomorrow.

@RonRon1 it’s nerve wracking waiting for the updates from the hospital. Hopefully you aren’t waiting too long, and everything is developing well. Feel better xx

@Daisz not too long until your scan now. It’s such a long wait. Hope everything goes well. Keep relaxed until then ☺️☺️ Xx

BambiOnIce80 · 18/08/2020 08:15

I definitely understand that "just need to be pregnant" feeling @BeHereNowx32 💙 I was sat on the gynae ward waiting to be taken to theatre and I was on the phone to EFREC making sure that they'd gotten me on a list for a FET before they went into lockdown! 🤦‍♀️ I'm the kind of person who feels better when there's a plan in place (thus why I'm not coping particularly well with the lack of comms from EFREC at present 😒) - do whatever it is that gives you some comfort.x

Good luck today @RonRon1 🍀 You should be pupo by the end of today! 🤞🤞🤞

I hope your bubble holds until Friday @Daisz 🤞 I'll be thinking of you 💓

BeHereNowx32 · 18/08/2020 13:49

@BambiOnIce80 hope you’re ok. Have you had any update on when you can start treatment? Must be a stress. Each day is a day closer though ❤️

I’ve started to bleed lightly. So, hopefully that will be me, without any medication. Felt so fed up this morning, but it’s because I’m so tired and unwell. Need this all over so I can move on.

@RonRon1 hope you’re doing ok today! Xx

RonRon1 · 18/08/2020 16:29

Thanks to u all for ur kind words. I had never heard that before @BambiOnIce80 Pupo but I like it. I now feel weird it's like we have been building uo to this for months and it's finally at post transfer. I just gonna take the next two weeks easy (I always do lol) limit time on social medial and googling things ivf related. I had my Mcdonald fries too and pineapple core smoothies. Please implant little embryo. They don't think we will get any frosties.

@beherenow32 I hope ur OK and ur body gets back to normal soon.

@DAISZ good luck for ur scan please let us know how u get on xxx

Daisz · 18/08/2020 16:51

@RonRon1 wishing you the best of luck for your Bfp. 🤞🍀. Thank you it feels like an eternity since I got my confirmed beta results, can't believe scan day is almost here.
@BeHereNowx32 hope you feel better soon, you must have mixed feelings about the bleeding, in one way it is a symbol of what should have been, but in another it is a chance for you to heal as quickly as possible. I hope everyone around you is being supportive. Thinking about you tomorrow as well which I know will be hard.♥️

BeHereNowx32 · 19/08/2020 13:21

@RonRon1 the 2ww is so hard. Relax as much as you can and def stay away from google!

I’m waiting another 10 days to see if things happen naturally. The sac is still there. I think I’ll take the medication next week. I’m not feeling very well today, and was feeling a bit emotional, but kept that hidden.
Just want to work on feeling better.

Hope everyone else is ok x

Daisz · 19/08/2020 14:20

@BeHereNowx32 so sorry things are dragging yet again for you. It just seems so drawn out, the last thing that you would have wanted. I hope there is some light for you soon.x
@RonRon1 I hope your getting plenty of rest, wishing you all the best.xx

RonRon1 · 19/08/2020 15:44

@Daisz I hope u got on well today? Smile

BeHereNowx32 · 19/08/2020 16:42

@Daisz I’m thinking about phoning tomorrow to ask for the medication actually. I’m feeling quite unwell 😔
I might be in the hospital on Friday then. Strange thought!
Wishing you all the best ❤️

BambiOnIce80 · 19/08/2020 17:54

I'm sorry you're feeling so unwell @BeHereNowx32 💐 Absolutely call them up for the medication if you think it will help. I hope you don't have to go through this for long.x

Get your feet up and watch plenty of comedies @RonRon1 - laughter is supposed to correlate to better IVF outcomes, apparently! 🤓

Still nothing to report at my end, unsurprisingly 😒 I'm going to force myself to be 'the good patient' until at least the end of September and then I'm allowing myself to phone them if I've still not heard anything at that point. It's a real shame because they had been so good at updating their Facebook page at least every 10 days or so, but there's been nothing since mid July now... it's really frustrating/upsetting 😔

willithappen · 19/08/2020 19:43

So Aberdeen put out 'patients who had not started treatment but are on a waiting list for treatment will be receiving appointments throughout the last week in August and September'

Am I reading into this wrong - would it be all people on the waiting list or those who were on pre-Covid?

LouScot · 19/08/2020 21:56

Hi all, hope you're all okay.

@BeHereNowx32 hope you get the medication if it'll help. @RonRon1 I hadn't heard Pupo either, it's lovely! @daisz hope scan goes well.

I'm trying to be patient like @BambiOnIce80 - have stopped googling as reading stats for my age and amh level really brings me down.

Anyone else got friends or colleagues doing the "thank goodness the kids are back at school" thing?!? Sad xx

LouScot · 19/08/2020 21:57

@willithappen - that reads like everyone on list to me?

BambiOnIce80 · 20/08/2020 07:36

I'd agree @willithappen that it sounds like they've caught up with the freeze alls from when covid struck and they'll now be sending out appointments to patients on waiting lists for treatment 🤞Do you know which months treatment list you were put on? I hope you hear soon.x

I'm trying and failing to be patient @LouScot! 😂 Hope you're doing OK?x

Daisz · 20/08/2020 09:15

Wishing you luck today @BeHereNowx32. If you are called in tomorrow my appointment is at 11.00am.

willithappen · 20/08/2020 09:59

@BambiOnIce80
I was put on the list in May but was told at the time it was 6 months usually and then they had a four month backlog. So I'm not expecting to be getting anything soon

I had a counselling session with them and the counsellor and I decided we'd set a date as March 2021 where we'd know something was happening because I was getting so anxious about the wait and the not knowing part of it.

I remember being told back in May also that they had the facilities to get through more people than usual but I don't know how accurate that was.

Guess I will have to keep waiting and see though!

BeHereNowx32 · 20/08/2020 11:59

@Daisz thank you. I’ve started to bleed again today, so will hold off for now. Xx

Scirocco · 20/08/2020 14:13

I'm at my wits end. Seriously can't cope with this. I've been told I'm still looking at "at least 12 months" before any treatment will be available. I honestly feel like just going off into the wilderness and lying down in a hole somewhere. Nobody I've spoken to seems to understand how hard this is, that "unexplained" infertility matters too. I've given so much of my life to the NHS and asked for nothing back, except this, and they just smile and say "thank you for your patience". I'm not being flipping patient, they've stuck me on a shelf indefinitely.

BambiOnIce80 · 20/08/2020 15:17

Fingers crossed the worst of the physical bit will be over soon @BeHereNowx32🤞It's so bloody hard 😔💐

Sending positivity to you for tomorrow @Daisz 💓

That's how I try and cope @willithappen - set myself some target dates and then if I haven't heard from the clinic by then, then I'll be on the phone to them (regardless of them telling us not to! 😬). I know they don't know what's going to happen with covid and can't go making promises that they might not be able to keep, but the lack of comms about what's going on is getting ridiculous 😤

I hear you @Scirocco ❤️ I've worked in the NHS for 24 years (started on the bank when I was 16!😳) and I think if you cut me in half it'd say 'NHS' in the middle, but this wait is just brutal 😔 It's so f🤬king soul destroying when the organisation you're passionate about is currently letting you down. I hope you get an update soon.x

willithappen · 20/08/2020 15:28

@Scirocco unfortunately I know exactly how you feel :(
With Covid too it just feels like it's whack after whack coming at you doesn't it :(

theotherfossilsister · 20/08/2020 17:25

@beherenowx32 I am so sorry that things have been so rubbish and I really hope it gets better soon, both emotionally and physically.

@Ronron I hope you get good news soon.

@Daisz I hope your scan goes well.

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theotherfossilsister · 20/08/2020 17:41

Our news is, it turns out we're not on the waiting list after all and cannot be until dps sperm analysis which might be as late as October. Once we are on the list the wait is huge as post Covid, so realistically we'd be looking at maybe eighteen months before starting IVF, March 2022. Possibly. I am hoping this wouldn't be the case.

I am furious dp put off getting his analysis done for just another month so many times, but I guess it's just one of those things. I would love to go private, but not sure if we can afford it and if I am in the right headspace now anyway.

I'd like to try some acupuncture, because even if it doesn't help us conceive it might keep me a bit calmer and saner. Take the edge off ttc. I actually made an appointment at a clinic near where I live but feel a bit weird about it. The receptionist was a bit snappy with me on the phone when I said that I have a lot of trauma which is maybe causing a blockage, and she said it was up to the practitioner to suggest things not me, asking if I was a doctor, which I'm not. She also booked me in for Wednesday first, but I just realised Tuesday is the first. I did actually say that on the phone and she told me I was wrong so having second thoughts.

There is another clinic in the west of the city where I have previously been for counselling and the practitioner there seemed really nice. She answered my email after the second one had given me an appointment. I don't know whether it's better to cancel the first and go with her or not. It will be a lot of money, but not as much as private IVF which I have heard can get really expensive.

Saying that, do any of you know how long the private clinic waiting lists are, as am thinking of gcrm, and also whether there are any IVF savings plans.

Thank you, just feeling down today but reading a big fat novel, and trying to do healthy mindful things, and not play the when will my period come, game, it's due on weds.

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BeHereNowx32 · 20/08/2020 18:45

So sorry that you’re having to wait so long ☹️ @Scirocco @willithappen @BambiOnIce80 @theotherfossilsister
It’s the hardest thing. I remember always counting down the days until my next appointment, and that was way before lockdown made it all even longer. I hope you can get a plan sorted soon.

@theotherfossilsister could you just go private for the sperm analysis just now? Do spire do it?
Before Covid, the waiting list for private was only a few months. And I paid just under £5000 for ICSI. We had 2 nhs cycles before our private.

I would change to the other place for acupuncture I think. You want to feel completely relaxed when your turn up there. Hope it all goes ok, and you enjoy it. I’ve never tried.

@Daisz hope everything goes well tomorrow.

Thank you everyone. I will be ok. Just looking forward to feeling better. Really need a spa weekend, when they also give you lots of nice healthy food, and if I could get my hair done there too- it would be perfect! 🧖‍♀️ xxx

Daisz · 20/08/2020 20:22

Thank you everyone. I think everyone has been feeling a bit "off" today by the sounds of it, me included as the reality of tomorrow hits. I have been feeling very nauseous for the past week or so, which certainly has not helped matters and definitely not with my mood.
@theotherfossilsister ah the dreaded medical receptionist, what are they like? I swear it must come with the job requirement to be as obnoxious and as patronising as humanly possible, why else would the vast majority act this way? I think you need to go with who ever makes you feel more comfortable. I made the mistake of going with an acupuncturist that made me feel awkward and uncomfortable, and I really wish that I had gone with someone else in the end, even if it was a bit further away from home. It is so important that your happy, afterall your spending good money, and there is a lot of competition out there, so it really does not make sense that they are rude. I get why the NHS receptionists think that they may get away with being so snappy, but in the private sector you've got to wonder?
Sorry for all you guys that are not seeing a light at the end of the tunnel yet. I think that is the best advice to set yourselves little goals and hopefully that will speed the time away.
Will update tomorrow, hopefully everyone will have a good evening.xx

theotherfossilsister · 21/08/2020 09:46

Thank you @Beherenowx32 and @Daisz. It sounds ridiculous but I'm actually scared to ring and cancel the acupuncture even though the other practitioner seems far clearer and more willing to answer my questions.

The one in Leith which I booked with actually had a really good recommendation on here a few years ago, I looked through old threads, but I get a better feeling from the one in the west end. My stupid phone autocorrected her name to Joan from Jian in my last email and I was mortified but she was so lovely about it, which she didn't have to be. It's also the same place I've had counselling.

The one in Leith advised that I come in on specific days of my cycle while as Jian says she will work with whichever cycle day I am on, which seems better for work and stuff (sorry I'm taking a mornings annual leave because I am cycle day x might not be great.)

I guess what puts me off going further away is the need to walk a long way back as I'm avoiding public transport and not sure how good walking is after needles in feet? It's only three miles though.

Whoever I go with I feel like I've wasted someone's time.

I really hope it goes well today @Daisz.

@Beherenowx32 thank you for telling me how much your treatment was. Please can you tell me who you went with? Looking at GCRM.

We thought about getting the analysis done privately but apparently the Edinburgh place is issuing a new electronic referral form at the same time their lab opens and cannot take us without that, so very little point. Was thinking of getting my AMH done privately however just to know how urgent this is.

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