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Anyone on Letrozole?

1000 replies

rubywoo24 · 25/08/2019 21:46

Hi everyone

I have been prescribed 3 cycles of Letrozole and I have just started AF after a very very long few months. So quite excited to finally getting things going!
We're currently away and I do have my medication with me but not the leaflet that came with it. So just want to double check that I am taking it correctly:

  • do I count tomorrow as CD1 as AF only started at 9.30pm today
  • is there a specific time that I have to take the tablets, I think night time is recommended?
  • do I take both tablets together?

Any other help or advice would be much appreciated!

OP posts:
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8
TTCbabyONE · 24/03/2020 08:22

@LongtermTTC basically the same as what they said to you. We are so stuck on what to do.
I almost feel selfish for still wanting to try this cycle but we then we’ve got to this point so do we give it one last go as we don’t know how long it will be off for. In my head I’m like is it really the time but then what if I get another year down the line and look back think we should have just done it incase this is the one. It’s so many what’s ifs and I just don’t know what to do 😞 @sylva123 xxx

How are you ladies holding up? Xxxx

TTCbabyONE · 24/03/2020 08:27

@JadeS174 forgot to tag you in post above. Hope you’re doing ok xx

Sylva123 · 24/03/2020 09:04

@ttcbabyone we're trying this month and then leaving it probably for a very long time, as I'm imagining the IVF waiting lists will be massive at the end of all this. Nothings worked for the past 2 and a 1/4 years so it's unlikely to work this time, but it's our last round so I just wanted to do it rather than have the tablets in the drawer taunting us. I guess the risk is that if it does work I don't want to be putting extra pressure on the NHS, but I'd be willing to go private for scans etc if it did happen to help take that pressure off.

I don't at all think it's an easy decision though @ttcbabyone and I'm still not 100% we've made the right decision (so many what ifs... What if we miscarry, what if I get sick and pass it onto the baby, what if the NHS can't cope and something terrible happens...).

It's really hard and I do feel a bit selfish too. It's a hard decision. Sending hope your way ✨✨✨

LongtermTTC · 24/03/2020 09:43

@TTCbabyONE You’re not being selfish at all, I totally understand still wanting to try. I am stopping the letrozole but still going to do OPKs and try to conceive naturally for the timebeing. I’ve been social distancing for a week now only going out to shop for essentials and now everyone else has to do the same so hopefully that minimises the risk of me catching / spreading it anyway.

I just feel like we’ve come too far to give up now with all the precautions we’re taking to avoid coronavirus; no clear evidence that it affects unborn babies and the fact they’re not telling people outside of the fertility community not to TTC so, without the fertility support, I’m just one of them right? It may sound selfish (and I know if I did, by some miracle, get pregnant that could be a drain on the NHS but would like to hope that would be minimal and months down the line) but it’s what’s right for me - mental health has to play a part in the decision and I personally couldn’t handle spending the next few weeks / months feeling like I was doing nothing towards our goal of having a baby when we were in touching distance of starting IVF.

It’s your decision and so long as you’re not being reckless or knowingly putting anyone at risk then you don’t need to feel bad for that.

@Sylva123 how are you coping with the unmonitored cycle? Are you going to use OPKs or not (was it you who said they’d had problems with them whilst on letrozole?)

Best wishes and virtual (non-contagious) hugs all around xx

LongtermTTC · 24/03/2020 19:27

Just had a very good friend of mine on the phone excitedly telling me that he and his girlfriend are expecting. He doesn’t know about our fertility problems so wasn’t being insensitive but it still stung. I’m now the last one of a big group of friends who all grew up together to have a baby - I’m genuinely very happy for him but also makes me very sad for myself, especially with the IVF cancellation still so raw 😢. Going to have a glass of wine to cheer myself up - fear I may become a low level alcoholic during this lockdown...

TTCbabyONE · 25/03/2020 12:15

Bless you @LongtermTTC what a hard situation filled with happiness for him and sadness for you. I always find these situations bittersweet and take a couple of days to pick myself back up but harder with all the other stuff going on too. You are not alone in this, sending a big hug 💕
How are you feeling today? xx

LongtermTTC · 26/03/2020 11:51

@TTCbabyONE Thank you, I’m ok. Just feeling like giving up and thought I was tougher than that. Sure I’ll bounce back but I feel like all the last 18 months has done is made me feel horrible about myself and begin to wonder if, as much as I want a baby, it’s worth losing myself in the process. Hope you’re staying safe (and sane) through all this x

unknownscot · 27/03/2020 22:50

I feel deflated.

We were meant to have our clinic appointment on Monday. Managed to organise a phone appointment.

Long story short -
We've been on letrozole for 6 months
We are now being put on a 3 month wait list for ovulation stimulation and IUI - so 3 months from now
Three cycles of this - 6 months
Then put on the 6 month wait list for IVF - 12 months from now

Why the fuck did I get told at my first appointment that was me on the list for IVF and that my March 2020 appointment would be to discuss the first steps of IVF.

And now obviously everything will be pushed back by about 6 months from what I said above due to COVID

Feeling distraught 😩

Carleyxo · 28/03/2020 11:29

Oh gosh I'm so sorry
@unknownscot it really is so rubbish :-( irs devastating that we're the ones going to suffer due to them cutting back and helping the NHS staff (which I get) but what about the people that will just "'Magically" fall pregnant during this time - it makes me so irritated.

They cancelled our apps too but hoping for a telephone call next week so we will see x

Carleyxo · 01/04/2020 20:16

How are we all going 💓

JadeS174 · 01/04/2020 21:14

Hi @Carleyxo I'm okay thank you.
I'm CD31 today, fairly certain AF is going to arrive in the next couple of days. Very crampy! 😔
This was my first cycle of Letrazole 2.5mg. I had day 21 progesterone bloods which were 87 so at least I did ovulate, that's good news.
I've been advised I can continue with treatment but will get no monitoring for the foreseeable.
How are you? XxX

Carleyxo · 01/04/2020 23:15

Rubbish about AF but fingers crossed
It doesn't come! How many more cycles have you got left? @JadeS174
I'm all good thank you :) xx

JadeS174 · 02/04/2020 10:18

@Carleyxo I've got another 3 months worth of tablets.
Glad you're good too xxx

unknownscot · 03/04/2020 21:02

I'm CD24 - pretty sure cramping has started and I'll get my period next week. However, I have been tracking my BBT for the first time and definitely think I ovulate earlier than thought!!! Do you all track bbt?

Carleyxo · 03/04/2020 21:04

Ihhh really @unknownscot I always start then wake up walk round and bloody forgot to do it then it's to late! Really want to try so I'll try next cycle which is due end next week x

unknownscot · 03/04/2020 22:11

@Carleyxo I bought a thermometer years ago and used it about one cycle then don't know where I've put it. I bought one last month it links to an app and I just roll over when I wake and take my temp. It's been amazing to notice my temp change. I didn't really believe it initially!!! X

Carleyxo · 05/04/2020 15:13

That's so good I need to get in a habit of rolling over and doing it rather than jumping straight up 😂😂 @unknownscot

Sylva123 · 10/04/2020 09:35

Hi everyone, I've been quiet for a few weeks and wanted to check in on how you're all doing. @unknownscot I am so sorry to read what you said about the IUI and IVF waiting lists.
@Carleyxo what's the latest with you - are you taking a break whilst you wait for your partner's results?
@LongtermTTC yes I used opks this cycle and they worked so I guess it was the HCG shot that made them not work before! Due to test on Tuesday but can feel the period coming, I'm sure. Then thats us all out of meds til this all blows over and we join a gazillion people all trying to get IVF at the same time :-/
@TTCbabyONE how are you feeling now?

Sending love and hope to everyone.

Carleyxo · 10/04/2020 10:12

Hi @Sylva123x lovely to hear from you.
His test got cancelled so rebooked end July (if they don't cancel again) we have our review over telephone Tuesday but not sure what they will say considering it was going to be based a lot around his test results.

Hey ho
We have one lot of letrozole left so might try next month but to be honest I've been ovulating naturally according to ovulation tests so not sure if it is the sperm or not. Who knows x

TTCbabyONE · 10/04/2020 10:15

Hi @sylva123 thanks for checking in. I’ve not been on here either. It’s been nice to take a break from social media and try to get into a better head space. How are you?

How’s everyone doing?

Sensitive Post Warning
I was due on Tuesday, had cramps for a week before so was convinced AF was coming any day. Tested on Tuesday and had a BFP, tested again yesterday and now they are faint (almost can’t see the lines).
So worried and wondering if was false positive? Not sure what to do, I still have cramps now and feel like I may come on any minute. I’ve spoke to a nurse and she said the test next week.
I’ve tried to phone my clinic and emailed but not response.
I didn’t want to post this in our thread as I know how hard it can be to read about others people BFP xx

unknownscot · 10/04/2020 10:40

@TTCbabyONE Oh I do hope it's positive for you! What lovely news that will be during this time. I now have my partner WFH so I hope this will be our month.

I know we've been told not to try but when you've waited this long it's so hard not to!

TTCbabyONE · 10/04/2020 10:48

@unknownscot fingers crossed this is your month now your partner is WFH.

We were 50/50 to try and then just thought give it one last go as I was half way through my cycle anyway x

Carleyxo · 12/04/2020 20:37

Ohhh @TTCbabyONE I really hope it's real! When is your period due? X

Carleyxo · 12/04/2020 20:38

Just saw you said Tuesday silly me. When will you re test? X

TTCbabyONE · 12/04/2020 20:42

Hi @Carleyxo I re-tested this morning and was negative. The cramps have got worse and I’ve just started spotting so I think it’s a MC. Will phone the dr in morning or early pregnancy unit and see what they say xx

How are you doing? Xx

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