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Infertility

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Anyone on Letrozole?

1000 replies

rubywoo24 · 25/08/2019 21:46

Hi everyone

I have been prescribed 3 cycles of Letrozole and I have just started AF after a very very long few months. So quite excited to finally getting things going!
We're currently away and I do have my medication with me but not the leaflet that came with it. So just want to double check that I am taking it correctly:

  • do I count tomorrow as CD1 as AF only started at 9.30pm today
  • is there a specific time that I have to take the tablets, I think night time is recommended?
  • do I take both tablets together?

Any other help or advice would be much appreciated!

OP posts:
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8
Sylva123 · 05/03/2020 23:29

Good luck @JadeS174. Fingers crossed the bloods show that it worked. It is a weird feeling not having the scans when you're so used to them! Hope there's some little follicles in there waiting to grow.

Carleyxo · 06/03/2020 07:17

Yes I think I may book something for next month for us @Sylva123x

I say next month but I'm sure I keep doing this 😂😂 yes the awards are next weekend so at least I can have some drinks and not worry after the test OR not drink because of a happy reason.

Are you testing Thursday too? X

TTCbabyONE · 06/03/2020 09:53

Hi all, just had my blood results it was 49. She said this was a good result and I’ve ovulated FINALLY!! Will test next week

@sylva123 hope you have a lovely weekend away and are able to relax 💆🏼‍♀️

@jades174 I would wait and just have day 21 bloods. Fingers crossed you will have a good result 🤞🏼. Did you ovulate on

@Carleyxo that’s a positive way to look at it x

Hope you all have a nice weekend ladies! Xx

TTCbabyONE · 06/03/2020 09:54

@JadeS174 I just realised i didn’t put clomid? At the end of my sentence 🤦🏼‍♀️ X

JadeS174 · 06/03/2020 10:03

@TTCbabyONE thanks. Yes I did ovulate every cycle on Clomid. I was switched to try Letrazole as Clomid was thinning my lining xx

Sylva123 · 07/03/2020 22:33

Hi guys I'm having a bit of a nightmare. So I went in the hot tub for about 8 minutes, maybe less. I don't know why I did it. Came out and just started freaking out. I'm so angry at myself. I feel like after 2 and 1/4 years of trying why would I put everything at risk for a few minutes of selfishness? I only went in because I didn't want to ruin the holiday but ive now been having a panic attack for about an hour and a half, have been sick and had the runs just through freaking out. Can't calm down. Shaking and can't breathe. I'm so angry with myself - what if I get a positive preg test next week and then spend the next 9 months worrying if I've damaged the baby's brain?

unknownscot · 08/03/2020 00:38

@Sylva123 I get you're worried but that short period of time in a hot tub honestly wouldn't do any damage to an unborn baby.

Carleyxo · 08/03/2020 21:25

Please don't worry @Sylva123 if you were it would still be just a ball of cells so effectively that early it can't effect it at all x

Sylva123 · 09/03/2020 09:16

Thanks guys. What started me off was that I read these studies saying that if you go in the hot tub even before your BFP it can cause nueral tube defects if you're in the TWW. I don't know why I tortured myself after going in and knowing it was for just 8 minutes. I called 111 and they reassured me and pointed out that my mental health didn't seem to be okay, which it wasn't to be honest. Also read loads of articles which said up to 10 mins is totally fine. And I had a cold shower afterwards.
I know I'm not pregnant anyway cos my boobs have stopped aching this morning.
Mental health wise though, I think I'm having a really bad reaction to all these drugs. I've gone from bubbly, size 8, confident, outgoing & optimistic to size 14+, cut off all my friends, not looking after myself (eg the basics like showering and brushing my hair) and just really low all the time. I've looked online and lots of people that take the drug for breast cancer have reported the same. I've been having suicidal thoughts and that's just really not me. I used to love life, I mean really love it & living it to the full. Now I'm having these panic attacks which are new and my hubby is amazingly supportive but understandably worried after seeing me like that. Most of our weekend away has been lovely and relaxing but that freak out did really worry me. Dont know if I can get through another month of the side effects. I have a liver problem that I was born with & I wonder if that makes me more susceptible to the less common side effects? Anyway sorry for the long post, I'm just a bit all over the place and don't have anywhere else to put it at the moment xx

Sylva123 · 09/03/2020 09:17

Anyway let's please shift the focus. How is everyone else?? X

TTCbabyONE · 09/03/2020 09:49

Hi @slyva123 how are you feeling today? Sorry that you had to go through at the weekend but I hope you managed to have a lovely time.
Try not to worry about it (I know easier said that done) you weren’t in there for long. I would say same as the others it’s too early to do any harm if you do have a bfp xx

unknownscot · 09/03/2020 10:46

@Sylva123 I'm so sorry to hear that you've been so low. I've been to lots of counselling and CBT so always here if you need to talk.

I'm not in a good place today either, sitting in my staff room and the chat is all about kids and pregnancies. I'm sat in the corner myself just ignoring everyone.

Carleyxo · 09/03/2020 22:26

Oh goodness @Sylva123x I'm so sorry to hear you're feeling like that, so bloody rubbish but please always know we're hear to chat to or vent at any point. Hate the thought of people feeling that way. Putting that aside I'm so glad you managed to enjoy some of it still though. Where did you go?

Have you spoke to a doctor about your liver and how you can react? X

AfterGlow87 · 11/03/2020 08:27

@Sylva123 & @unknownscot hope you’re both feeling ok today! This whole journey is so bloody hard but that’s why this forum is so good - nice to get support from others

AF arrived today but I’m actually ok about it this month. I’ve decided to take a month off the Letrozole and just try ourselves, I feel the meds definitely affected me in a bad way last month

Carleyxo · 13/03/2020 07:15

How are you @Sylva123x x

Sylva123 · 13/03/2020 07:54

Hiya lovelies. Thank you for the messages and support 💕💕. I really appreciate it. Im feeling ok. Less crazy than a few days ago. Negative test yesterday. Just feel so exhausted and so drained by everything! And apprehensive about going into another month of medication & side effects. I honestly try so hard not to let it affect me but it feels out of my control. Feel like I've lost myself. Its almost like someone else takes over my brain. But... gotta find the stamina to get back on the horse for one final round! And try not to make it the centre of everything. I've booked in to get my hair done for my birthday in a couple of weeks and bought some nice flowers for the house. I'll try and get to a dance class this week to get some fitness/endorphins. Little things.

@carleyxo how was your test yesterday? Any joy???? I really hope so.
@afterglow87 good on you for taking a month off the meds. I hope it helps to have a break off it.
@unknownscot so sorry to read that you had a bad day too. How are you today???Thanks for the offer of support. I appreciate it.
@TTCbabyONE thank you. Looking back I can see it made no sense to lose my mind over it. Really it was colder than a bath at the point I got into it. My reaction was not level-headed. How are you though??

Sylva123 · 13/03/2020 07:56

Oh @carleyxo how were the awards and @jades174 did the 21 day bloods show ovulation? @TTCbabyONE did you test this week? X

Carleyxo · 13/03/2020 08:07

It definitely is the little things @Sylva123 it's so hard but it really does take over but I genuinely find trying to keep a bit more busier with fun things helps and exercise is definitely one of them although it's hard to get there once I'm there it's much better. I love yoga i find it really helps balance me out if that makes sense.
Oh they got bloody cancelled because of coronavirus 🙃🙄 everything I had to look forward to has been cancelled this month - the awards, Venice (obviously haha) and a beauty show I wanted to go to. Never mind I just need to find some other things to look forward to. Period due today or tomorrow because I ovulated later I'm unsure exactly when it will be but I did a first response test the beginning of the week and it was negative so sure it hasn't worked this month and I've had no symptoms. James has his SA end of this month and then our review for results 6/4 so may keep off letrozole one more month until we know what we're working with. Plus it's been so nice to have a break this month x

Sylva123 · 13/03/2020 08:27

@carleyxo oh no! I'm so sorry about that. So disappointing! Hope you're able to find something else to look forward to. Good shout on the yoga as well. I used to do it every day and now it's like once a fortnight. At least it's almost spring so even with things being cancelled we can do outdoorsy things now its brighter out.

I've been thinking about letrozole after a friend highlighted to me that every month I've taken it I've had 2 eggs come out instead of 1. So my eggs are going down faster than if it was a natural cycle. So if you're not 100% sure then I think a break is definitely the right thing to do to save up your eggs and just have a break from it all.
How do you both feel about the SA at the end of the month? I really hope it's good news. Sorry about the first response as well. You've encouraged me to get out and exercise xx

TTCbabyONE · 13/03/2020 10:14

Hi @slyva123 I didn’t test as AF showed up on Tuesday! But that was a good outcome for me because means I don’t have to take provera and delay by weeks on end. I’m
On CD4 and have my scan booked for CD14.
Are you feeling better? Have you managed to speak to anyone about how you are feeling? xx

@unknownscot how are you doing? Sorry to hear you had a tough day. It’s always hard hearing other people’s announcements isn’t it but I do hope you are feeling better.
My friend has just told me she is pregnant with no.4. I only managed to stay about 15mins after she said and made my excuses to leave. I’m happy for her but can’t help feel upset/angry because I know how hard this journey is for so many people and it does feel unfair xx

Sorry to hear they were cancelled. Hopefully they can reschedule before too long.
Hopefully the SA goes well and you can make a clear plan for your next steps @Carleyxo xx

Has anyone got anything nice planned for the weekend? Xx

Rac3693 · 13/03/2020 12:21

Hi did anyone on here have to take cyclogest after the letrozole and trigger?

Sylva123 · 13/03/2020 14:19

@TTCbabyONE oh that's good and bad then. Good that you can start this cycle and get on with it without the provera. Hope the scan shows some strong follicles! Fingers crossed! So hard about your friend - of course you're happy for her, but of course it hurts because just everything is a reminder. Four as well... That's lovely but hard.

Haven't managed to speak to anyone - I've been waiting months for some bereavement counseling after quite a sudden loss of a family member back in May and in the assessment they said they can also talk about the fertility as it's a type of grief. So I'm hoping that'll come through soon. Just gotta hold on til then and try to stay well.
Good luck for your cycle this month. X

Sylva123 · 13/03/2020 14:20

@Rac3693 yes I take letrozole, trigger and cyclogest. I think I'm on my fourth or fifth round of all that (getting lost with it all!). How are you getting on with it?

Rac3693 · 13/03/2020 14:27

Aww so happy to find someone doing the same. I did one round last cycle on 2.5mg letrozole but no follicles. Now took 5mg and had 2 mature follicles so doctor gave me trigger shot on day 12. Out of interest what day do you start the cyclogest? And where are you up to with this cycle?

TTCbabyONE · 13/03/2020 14:36

That’s good that you have taken the first step and hopefully the counselling will help you and you’ll start to feel better in yourself. I hope your appointments for that comes through soon. @slyva123

Yeah I found it a hard to take in.. she’s been so lucky and all were in the 1st month and close together too. I was expecting it but didn’t stop me feeling shit for a few days. She doesn’t know what I’m going through - I don’t feel like she would get it. I could be wrong but I just couldn’t face telling her and her saying ‘I understand or i know it’s hard’ cause I think I would have lost it xx

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