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Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Infertility

Assisted conception after recurrent miscarriage part 7

301 replies

brownstag · 08/10/2014 14:38

Here's the new thread, ladies.

OP posts:
brownstag · 06/01/2015 13:30

Meant to say that you can post your sample from the UK to Serum so that's not a problem.

OP posts:
brownstag · 06/01/2015 13:50

Yes, the jaw boils! Awful. I took DHEA for over a year at 75mg and although for the first 6 months my skin was fine, after that I got massive purple jawline boils, also on the lower cheeks, that have scarred dreadfully. It took a couple of months to get out of my system and now even a couple of days of 10mg of DHEA is enough to start to trigger the acne again. Although I have always suffered with acne on and off, this was the worst I've ever had it. Also in my youth I was always treated with antibiotics or with Dianette so it didn't scar then.

I have a feeling 2g of myoinositol is the recommended dose though mine is a powder and it's a bit difficult to estimate how much you're taking.

I did find that B6 sometimes added a day or even 2 to my luteal phase, but I haven't taken that for a while, so maybe that's what's helped you in your B complex. I just use Cyclogest nowadays - I only seem to conceive when using it. It takes out the worry about how long my luteal phase will be! I always have a normal luteal phase on SO, even without Cyclogest (12-14 days instead of 10-ish) and also the following unmedicated cycle is much better too. I think SO gives my eggs more energy somehow.

incidentally, I have found that melatonin has regrown my hair. I've been taking it for some months now and after having tatty see-through hair for some years, I have lots of new hair that's about 3 inches long. It's now the same density it was before it thinned. It's being investigated as a hair loss treatment and I can vouch for it working. I think it works by increasing oestrogen, in my case at least.

OP posts:
Determined123 · 06/01/2015 20:04

Wow - yes the jaw boils...this last month was a treat (still have 2 but going slowly) I was so embarrassed to see people at Xmas.

Thanks for the tip re: myo inositol I will see what I have been taking.

Also made an enquiry to Serum today about the infections testing so will see what they come back with. I will probably have to wait a month to get my latest nightmare out the way. I also made an enquiry at ZW just to see what's involved in some of the other tests/do I have to have retests etc. Not sure I can afford it at this stage but good to have options.

Best of luck for the TWW :)

brownstag · 06/01/2015 20:54

Thank you. I hope you get some answers soon about the tests.
Re. the Christmas boils, I sympathise. I wrote this 3 days before Christmas 2012:

Tis the season to be boily
Fa la la la la, la la la la
Not just glowing but positively oily
Fa la la la la, la la la la
Oxy-10, where are your powers?
Fa la la la la, la la la la
Get to work, in 72 hours
Fa la la la la, la la la la
A festive outbreak, a Yuletide flare-up
Fa la la la la, la la la la
A Santa beard's more use than make-up
Fa la la la la, la la la la

OP posts:
Determined123 · 07/01/2015 08:11

Ha ha - that's brilliant! love it! Deffo made me chuckle :)

x

lemonsherbet · 09/01/2015 09:20

Just wanted to wish you all a Happy New Year.

duggs1976 · 10/01/2015 23:49

Just popping on to catch up and hoping to het some news on pebbles and belly d next steps... Thinking of you xx

Tryingno1 · 11/01/2015 12:12

Hey girls. I was wondering if u could help me. I'm a regular on the ttc on pred thread

Quick summary. I'm 30, 3 miscarriages. hyperactive nk cells (just in high level) but normal levels.
After getting preg within a 2-5
Months I know seem to be struggling to get preg.
I've come off the asprin and took the pred for only 3 months.

I'm ovulating (normal day 21
Bloods) and my periods are regular.
I was wondering what your guys exp was? Did u suddenly start struggling to concieve?

Any advice on where I go next?! (It's been 6 months btw so I know not very long but I can't help but panic). I know mr s will prob suggest SO but I'm ovulating so not sure about that option.
I know I sound like a crazy worry wart but u guys know how hard this journey is, 2 years of ttc has taken its toll on me.

Thanks so much
X

brownstag · 11/01/2015 17:09

How long have you been off the aspirin, Trying? I didn't conceive all the time I was taking it (2.5 years) and starting getting pregnant again after I stopped it. Although I can't be sure it was just that as I did do lots of things differently, but I still consider it a singularly bad bit of advice, to take aspirin, as I'm sure my eggs would have been okay-ish during that period, but they're now knackered. So you may find things improve now.
Hi Duggs, how are things going?
Happy New Year, Lemon!
Where is everyone else?
Ari, if you're lurking. I've been dying to ask you this but it now seems kind of tactless and impertinent. But I've no one else to ask, so apologies if it is. Now that you've had the boys, can you tell me whether the experience of pregnancy and motherhood is emotionally the same as if they were your genetic children?

OP posts:
Tryingno1 · 11/01/2015 19:19

Thanks brown stag-I've been of it for the last 4. I read a lot of people saying they had trouble on it so I came st of it! Hopefully I just need to be more Patient x

suemays · 12/01/2015 12:39

trying I had massive problems on the pred but not the aspirin. I found that taking pred before a bfp screwed up my cycles for about six months and then I had to do SO to kick start it all again. Before taking pred I was getting pregnant 3-4 times a year and then after taking it I couldn't conceive without SO. Seems too much of a coincidence to me.

suemays · 12/01/2015 12:40

If it helps, pregnancy rates are lower in the winter so hopefully you will have good news in the spring.

Tryingno1 · 12/01/2015 13:22

Hi sue - thanks. I've been of the pred for 3 months now as I heard some people struggled. But still no luck! I'm going with the winter theory though ! It's all very complex on one hand I think "nk cells might be stopping me getting preg I should take the pred" then I think "some people struggle to get preg on the pred so I won't!" Who knows!

brownstag · 12/01/2015 13:26

Trying, I've been reducing my pred intake by taking only 10mg around the time of possible implantation for only about 4 or 5 days. I've still got BFPs doing this and without all the side effects. But I'm sure Mr S wouldn't agree!
How are you Sue?

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Tryingno1 · 12/01/2015 15:09

Thanks brown. I was thinking of doing that. I'm actually fine with the side effects and was starting it 2 dpo and stopping at day 10 so only took it for 8ish days but may reduce that less.
All the best for your journey! It's gets pretty tiring!

Arianrhod · 12/01/2015 15:28

brownI think we've known each other long enough now (and been through enough cr@p too) that you can feel free to ask me anything you like!

I can absolutely and positively state that it's all felt exactly as it did when I had my DD. These beautiful bundles of joy (and bl**dy hard work) with their snuggles and hesitant first smiles (and, let's not deny it, endless crying at times, especially in the evenings) couldn't feel more 'mine' if some passing fairy waved her wand and zapped their genetics to match mine and OH's exactly. I'm a big believer in epigenetics anyway, which possibly helps, but truly they've only ever felt real and 'mine' right from the word go.

How my OH feels, I don't know, but that's my tuppence worth.

How are you all doing ladies? pebbles and belly, what's happening with you?

trying I found the pred from ovulation completely messed up my ability to get pregnant. I would also say though, don't underestimate the effect stress has on your body too. How many stories do you hear from ladies who say they struggled to conceive, only to find they fell pregnant unexpectedly after they'd stopped trying? Just a thought.

/waves

Tryingno1 · 12/01/2015 17:51

Thanks Arian and congrats! I've followed ur journey for a while being a lurker. Enjoy ur well deserved twins! How amazing x

brownstag · 12/01/2015 18:52

Thanks ari. I thought that was what you'd say, and I suppose that's why I felt it would be wrong to ask - how dare I suggest that it was possible that your own babies didn't feel like yours!
That does make me feel a whole lot more inclined towards going down the donor egg route. It occurred to me the other day that in the usual way of doing things, we get to choose the father of our children; this way we just get to choose the mother instead!
I'm just fed up with things not working ...

OP posts:
Mel3062 · 12/01/2015 19:10

Me too brown :(

Mel3062 · 12/01/2015 19:17

Been on pred since day 7 and not a BFp properly since May 2013 :( having to stop Superovulation now too as too expensive x

BellyD · 13/01/2015 12:04

Hi ladies, have been quietly lurking. Good to hear you and the boys are doing so well, Ari. I am 8dpt 5dt from a FET in Spain last Monday. Tested with an frer this am but was bfn. OTD is Thursday, but not holding out much hope. Had lots of twinges to start with but no real symptoms now, just sore boobs which is prob the progesterone. My body must have killed them off again. Have had ivig, 20mg Pred, clexane, progesterone injections, aspirin. 2 grade A morulas transferred. DH being optimistic, but I am too battle weary by now I'm afraid. Also had problems thickening my womb lining so was on Oestradial and Viagra for 6 weeks before transfer,which seemed way too long, but it was 8.9 mm at time of transfer. Two more frosties in the Spanish freezer, so perhaps they will be our last roll of the dice.

Sue when are you due? It must be v soon - are you doing ok?

Sorry to hear you have had to stop SO, Mel. You never know though, giving your body a break may do the trick. Fingers crossed for you.

Duggs how are you and your little one getting on?

Brown for what it's worth, having had Donor Egg embryos transferred, I definitely felt they belonged inside me, if that makes any sense. Are you thinking of going down this route?

Waves to everyone else.

brownstag · 14/01/2015 09:25

Good to hear from you, Belly. I do hope your feeling is wrong and your DH's right and that you get good news on OTD. I can never trust symptoms personally, rarely having any.
Yes, I am thinking about the DE route. I would like to do a tandem cycle if possible, never having had IVF so I'd like to give my own eggs one last chance. But persuading my DH is going to be another matter!
Interesting reading about stress. Ths probably applies to so many of us here.
www.medicalnewstoday.com/releases/287944.php

OP posts:
brownstag · 14/01/2015 13:02

I have officially lost the plot. A double-decker bus was stuck in traffic outside our house and I've just locked eyes with a man on the top deck while I was in the process of looking at a dismantled FRER under my son's yellow and blue plastic child's microscope in the sunshine on my bedroom windowsill.
9dpo. BFN, confirmed by science.

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brownstag · 14/01/2015 14:52

Actually it does now have a very thin pink line on it, nearly two hours later. I know I shouldn't look after the test time though. Has anyone else had that with FRER?

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suemays · 14/01/2015 18:11

brown wait a few days and do the test again. I've always thrown away any bfns after 10 mins so I don't know if you are seeing an evaporation line. With regards to DE I was looking into it before this preg so a tandem cycle sounds like it could be good for you. I couldn't get enough eggs with ivf so no good for me.

belly good luck with testing tomorrow. I can never tell if its going to be an early bfp from symptom spotting so don't give up hope yet.

mel have you tried fertility acupuncture? I know its still an expense but I swear by it.

I'm being induced on Monday as the consultant wants to get the baby out before my due date with my history. I am happy with that as very anxious that things could still go wrong. They think it might happen naturally before then though as baby's head is already engaged! I'm 38 weeks on sat and that's when I had DD so it's not like its too early.

Waves to everyone else!

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