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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Assisted conception after recurrent miscarriage part 5

999 replies

Mel3062 · 14/09/2013 19:37

Hope this is right ladies ...

OP posts:
Arianrhod · 08/11/2013 10:11

duggs - yes, they can do that, that's an OE/DE cycle. brown you wouldn't, but most ladies don't seem to mind. Remember that the rules for the UK and for other countries can be very different. I can, if I want, choose to have a mix of OH's and a donor's sperm fertilise donor eggs - the thought being then that you wouldn't know, and therefore the child could still be your OH's. Some people want that psychological possibility. It isn't an option for me personally, as I would know - my body kills off anything with OH's DNA in it anyway.

Arianrhod · 08/11/2013 10:12

I believe you can do it either way - both you and the donor are cycled and the best embryos are chosen. The clinic know which is which, obviously, and you are always involved in the choices so it would never be unknown to you as to what would be put back.

brownstag · 08/11/2013 12:52

Interesting. *Ari8, how much did your total IVF cycle, accommodation, flight, etc. cost at Serum? When we last saw my NHS consultant, he recommended IVF. DH still hasn't agreed by a long chalk but I really want a single go and am saving like mad. Presumably they are prepared to put back more embryos than in the UK? i.e. 3 instead of 1 or 2?

Arianrhod · 08/11/2013 15:20

Yes brown, I had 3 embryos put back myself. I'm at work at the moment but I'll dig out the costs tonight - although bear in mind that different people need different meds, and that changes the total pricing. The base cost for DE IVF is €5000, then add on for meds and airfare/accommodation. If you have an aquascan, which Penny usually recommends to see what the state of your uterus is, that's €200. If you have to have an hysteroscopy (with implantation cuts, they always do those) that's another €1500.

brownstag · 08/11/2013 16:13

Thanks, Ari. As it would probably be only the one go, I'd like them to shove as many in as they feasibly can. I can't decide whether to go to serum would be best, or my local clinic in Tunbridge Wells. I'm sure it's relatively much more expensive at the latter, but I'm thinking so much less stressful to hop on the bus than a plane.

Buzzybee123 · 08/11/2013 17:36

brown I found clinics in the UK were around £7,000 for DE, I'm pretty sure that is what Care charge, my overseas ivf + all costs for travel accommodation etc cost us £5200, they do DE/OE/DD and embryo adoption, they don't actually do immunes but will support you with your immune protocol, they will do intralipids for 100 euros

brownstag · 08/11/2013 17:41

Thanks. That's a big saving. I would try my own eggs though. I'm interested to see what happens, eggwise, if anything. Probably nothing at all. Had you had 'ordinary' IVF before using donor eggs?

Buzzybee123 · 08/11/2013 19:41

no I didn't, I looked into it, it does vary from clinic to clinic here but around £5-6000 is about average for oe ivf here, not sure where you are in the country

Arianrhod · 08/11/2013 21:27

Just a quickie, brown, OE cost at Serum is €3000.

Mel3062 · 09/11/2013 04:31

Good luck brown
Apparently agate says I have low lad so yey looks like lit treatment ;( and high nk cells which surprised me as uterus is ok so wonder how it compares to last years. Umm time to see mr g I guess and see what he suggests though then with steroids I risk uteris going high again unless I stay off the vitamins, having a awful time at school too parents are slating me on a public forum :(

OP posts:
brownstag · 09/11/2013 08:35

Thanks Ari and Buzzy, I just emailed serum and they replied. Ari, will you be eligible for a reduced fee for a second IVF? Serum say €3000 for one cycle but €4000 for 2 if within a year. Also they can do immunes incidentally.
Mel, how very stressful. Are the parents naming you? Couldn't that be slander?

Mel3062 · 09/11/2013 10:00

Yes got named but not my Christian name. I'm really upset by it all :( in fact I get referred by just my last name at times :(

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suemays · 09/11/2013 10:31

Mel thats so rude of the mums! Even though I have issues with one of the teaching staff at DDs school I would never publicly slate her! I would stop reading the forum if I were you - not worth the upset as they sound like bullies.

Brown a lot of the UK IVF clinics won't charge you for a full IVF cycle if it's cancelled due to poor response (as in my case). Not sure if the ones overseas do the same. I just paid for consultations, scans and the drugs plus IUI which was my choice. I can't see the point in trying IVF again in my case if they only get 1 or 2 eggs as that would be no different to a super ovulation cycle or clomid. We don't have any known probs with DH so that would be a different scenario if we didn't conceive naturally. Remind me again, have you tried SO?

I found IVF a total waste of time and money but then at least you know you would have tried it as everyone responds differently to the drugs. I mistakingly thought IVF would be the answer to all my probs as would have gone for CGH testing so was shocked when I didnt respond well. They can generally tell how well you will respond by the AMH and antral follicle count so I dont know if you have had those done?

brownstag · 09/11/2013 10:34

I'm sure you are upset. I'm finding the start of school for my son stressful enough so I can't imagine what it's like for you, with all the responsibility, and so little appreciation. Are you being supported by your fellow teachers and union if necessary?

Mel3062 · 09/11/2013 10:47

Thing is I've had these children last year too and had parents eve this week and none of this was mentioned they were lovely ! Sue I understand that we get disagreed with and talked about its part of the territory but if I slated the children or parents like that I'd get sacked! We all main to others ;) And Im sure you take your concern out with those involved not as a public view :( yes head supportive, may have to get union in but I think if they know I've seen it they may just be embarrassed! Some nasty things said and untrue things also :(

OP posts:
Mel3062 · 09/11/2013 11:49

Hi ladies your help is invaluable just got these can anyone help as to what it means and treatment?
Dq alpha 0102, 0201
Kir
Inhibitory 2dl1
2dl2001/2/3/5
2dl3
2dl4
3dl1
3dl2
3dl3
Activating 2ds2
2ds4
00103
2ds4*003/4/6/7/8/9
Hubby dqa alpha 0101, 0303

OP posts:
Mel3062 · 09/11/2013 14:20

Agate says it's also come back that I have some match with hubby and missing kir activators which may rise them so think I'll need neupogen, lit treatment and intralipids etc best get saving again!!

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brownstag · 09/11/2013 17:05

Sue, yes it would almost certainly be throwing my money away, as I have dreadful AMH, but I just don't want to regret not having done it. I have done 4 cycles of Clomid (all BFNs) and 4 cycles of letrozole (1 BFP). I need the higher dose of letrozole as I only produced 1 egg on the standard dose, so I suspect I wouldn't respond particularly well to the IVF drugs.
Did you have an antral follicle count done and if so, did it tally with your AMH? And have you tried the Clomid yet?
Mel, try to rise above it. Very hard, I know, as it's the kind of thing I would personally obsess about in the small hours. I get really upset about anything like that! Just remember that all the important people are behind you.

brownstag · 10/11/2013 11:01

Has anyone else had an antral follicle count done that conflicted with their FSH or AMH results? Clutching at straws here ...

Buzzybee123 · 10/11/2013 14:51

brown my lh was 3.6 my fsh was around 9 my amh was 1.1 and mt afc was 6, I have no idea if they stacked up

brownstag · 10/11/2013 15:36

That's interesting, Buzzy, thanks. Well, your FSH was good but AMH bad (like me the last time I was tested - FSH 9.7 and AMH 1.04), and your antral follicle count was a bit better than suggested by your AMH, which is encouraging to me. How old are you, if you don't mind my asking?

Mel3062 · 10/11/2013 16:02

Ladies who have had lit. Can it be done on Saturdays? Would hubby need to come every time? He's had blood taken a week ago. It's just with Xmas coming hubby can't get time off x

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suemays · 10/11/2013 21:01

My AMH was an awful 0.57, Fsh was 6.9 but then I was having acupuncture every week which lowers it. Low amh is more of a problem if you are having ivf as it normally means you won't respond well to drugs. You can still conceive naturally with a low amh although the egg quality might be rubbish!

suemays · 10/11/2013 21:04

I haven't had lit so can't answer your question mel. I think belly had similar amh levels to me.

suemays · 10/11/2013 21:11

I did have an antral follicle count but wasn't told what it was at the time! I haven't tried clomid yet but have done 3 cycles of letrozole and conceived on all 3 but two ended in chemicals and one in miscarriage. That's why I thought I would try clomid as it works differently to letrozole. With regards to low amh, I was told by zita west that they have stopped testing it now as it was inconclusive and didn't tally up with antral follicle counts. I found that very reassuring!