Charlie Gard 17 re started

[muckypup73]

Ok guys, we have been very lucky to discuss this, please lets not give anyone anything to complain about, Mhq have been more than accomodating.

*Today 22:16 Writerwannabe83

Why are the parents saying a transfer to a Hospice would be brutal yet it's not brutal to transfer him home?*

Armstrong said in court that it would be brutal to move to hospice for just a few hours. What GOSH have said is that he would be moved to hospice and ventilation would be withdrawn in a few hours after that. Parents want him at home for a week on ventilation.

There are people replying on yesterday's CA post asking for specialist doctors and nurses to come forward and offer to help.

I'm not surprised they've been reduced to sending out public requests.

Oh dear I'm afraid I don't think they will get much response to that. As I said, it is a toxic case and therefore not many with any sense would want to risk their reputation or livelihood in case anything went wrong. Going public is THE wrong thing to do in any scenario.

Yes mucky brings back memories that music.

The word brutal comes from the quoting of Armstrong in court, that it seems brutality that Charlie be taken to a hospice or home to die a few hours later. That is the issue. They are requesting days, not hours which requires very different kit and teams. A palliative care transfer is intended to extubate fairly shortly after arrival at either home or hospice depending on parental choice.

Appealing for a single dr does not seem likely to help as it's been made clear a team would need to be found to manage shifts and breaks, with 2-3 doctors.

Unfortunately putting yourself relentlessly in the media can sometimes come back to bite you.

Maryz you're right, better just to link to the evidence than try to reiterate here in a way that can't cause offense.

I do think parents should generally be able to take children home to die if that's their wish. It's often not possible when they;ve been on ICU and equally there are a great number who don't express this wish.
I lived at the time, having moved house while DC was unwell, in a ground floor place completely assessed by occupational therapy with wide access points and equipment ready because I was expecting a hospital discharge not death. I still wasn't able to take my child home to die. As I said up thread, I am now glad about that because I can see that the intensive level of support required just wouldnt have been manageable outside of that environment and although it was all horrendous I am at least reassured that at the end it would not have been for them because the infusions were running, etc etc.
I too found it very hard to leave the hospital after (sounds crazy I know) but I just wanted to be close to my child and felt somehow that they were still there in some kind of meaningful way, for about 3 days after. But I know GOSH will facilitate everything possible to help the family despite all of this, but CG needs must come first.

I can't imagine that intensive care doctors who want to continue working in the profession would take this on. But perhaps that will at last settle things and Charlie can go to the hospice.

Leghoul respects to you for saying how you felt when you lost your dear child in an ICU setting.

oakleaffy & Sostenueto yes me too, been paying tunes all night to cheer me up x

Armstrong said in court that it would be brutal to move to hospice for just a few hours. What GOSH have said is that he would be moved to hospice and ventilation would be withdrawn in a few hours after that. Parents want him at home for a week on ventilation.

I know - I'm just confused why taking him to a Hospice is considered to be brutal in their eyes. Brutality is often associated with cruelty so I'm just wondering why they think it's cruel for him to go to a hospice. I know he can't have long term ventilated care there but that hardly means it's cruel to send him there. I just find it an odd turn of phrase.

TheWeeWitch Thanks. That makes sense.

I think we may become afraid to say anything now.

It's interesting that their feature works spokesperson hates reverend Mahoney and has written articles about him being a conman

Maryz I can't get that link to load; is it still working for you?

How utterly fucking heartbreaking this all is

Blimey, I bet the phones will be red hot with calls from paediatric intensive care doctors who have nothing else to do and no other patients to care for

Why is nobody advising C&C? Or is it that they just won't listen?

leghoul, so sorry for your loss x

Surely even if they find willing doctors and nurses who'd take this on, GOSH and the judge would still have to be satisfied that the arrangements proposed were suitable and didn't pose a risk of real harm or further discomfort to Charlie? Is there any potential for a plan to be put in place expediently, given that the hypothetical people who come forward will likely have little or no direct experience of handling infants on life support, knowledge of Charlie and his specific needs or the appropriate MedMal/PI cover? The cynical part of the me thinks this is just more stalling tbh.

I'd be very surprised if there was a doctor out there, even if they felt taking him home was the right option, who would put their neck on the line for this. The high profile of the case has been a double edged sword, and now the risk of being blamed/litigation will be weighing heavily on the mind of any medical professional who was so minded to offer their help.

Writer My understanding is the brutal claim applies only to the length of time post transfer not the actual transfer if that makes sense. So they believe it is brutal to transfer if that gives them only a few hours but want a transfer home if they then get days / a week at home with him.