Charlie Gard 17 re started

[muckypup73]

Ok guys, we have been very lucky to discuss this, please lets not give anyone anything to complain about, Mhq have been more than accomodating.

Why pick on his parents in such a low key, snide way, with that comment on trial privacy? I thought mumsnet was about support, not judging parents. His parents were trying to get him better treatment. Ive no idea if earlier intervention would have helped, but it should have been an option for Charlie.

Im very sorry for your loss Sostenueto, but fail to see how its helpful or kind to judge Charlie's parents against your own handling of your personal grief.

FuckleberryDunne seriously. Have you actually read the threads and the posts. NOBODY is questioning their intelligence or their love - NOBODY is feeling superior but we questioning, not the parents, but their support system and some of the advice they are being given - not for our sake but for theirs and most importantly Charlie's.

I am questioning why you felt the need to post on a thread that you find so repulsive.

I don't know why the judge didn't just say yesterday, ok there is no alternative so we will transfer to a hospice.
This "new information by tomorrow afternoon" approach is really weird in my opinion.

This "new information by tomorrow afternoon" approach is really weird in my opinion.

I also thought it was odd that he said it. If he wasn't in such a respected and professional role I would have questioned if he was being sarcastic.

Maybe he's doing it show everyone that yet again he's going out of his way to try and accommodate the parents and allow them to have their request and wants carried out. Maybe, deep down, he wants them to find a safe way to have Charlie at home so that a) it means he and GOSH don't have to be the bad guys and b) because amongst all this distress he does want C&C to have their final wish.

I really don't know why he said it.

Think that was to make sure, yet again, all eventualities covered lapin.

I thought mumsnet was about support, not judging parents. His parents were trying to get him better treatment. Ive no idea if earlier intervention would have helped, but it should have been an option for Charlie.

Sigh. But not unconditional uncritical support, fuckleberry.

And by now you must realise that a lot of us disagree with your views that earlier treatment should have been option. Based on the evidence of court judgements, and GOSH statements rather than the emotive messages in the media.

Also - I don't believe sostenuto is judging things by her personal grief.
I do believe that the parents, very unfortunately, are allowing their personal grief to warp this situation into a horrible travesty.

I thought it might be a sarcastic comment, but the judge us above all that. In fact you couldn't wish for a better judge.

I haven't been able to keep up with the threads over the last couple of days!

Will someone be posting any tweets from the hearing this afternoon? Thanks

I have read posts on here and on pistonheads. As a nurse I have been folowing the case from day 1 as it seemed that it would have ramifications both in the medical and legal fields. I have been impressed with the majority of comments on both forums, the factual information regarding the progression of the disease, the legal aspects and the other HPC's explanations ( which have upheld my own beliefs).
Most of all I would like to thank those parents/relatives who have shared their own experiences.
Lets hope tomorrow brings peace for Charlie and his parents, who whatever your opinion is of their conduct are griefstricken.
My regards and solidarity also go to GOSH staff as they will all have suffered from this and will have formed an attachment with Charlie.

Chris gard has posted a hate email he received on Charlie's Army with the sender's name and email address clearly visible.
This is all going to get really very messy and potentially violent.

Is it at all common practice for a child as ill as Charlie to be able to go home or to a hospice?
Or is the only reason that GOSH and indeed the judge are seemingly bending over backwards to comply to the parents wishes because of their relationship with gosh?

I just feel that, there are sadly so many terminally ill children, and their families are going through the exact same emotions and heartache. Are the Gards being treated differently to these other families?
Will this set the stage for more and more families demanding x,y and z from hospitals that are already stretched to the limit?

Let's not be derailed by any poster who obviously hasn't read all the wonderful advice and experience shared on these threads. I have been so moved by accounts of medics and personal experiences of families who have lost a child - really the idea that any poster has been 'superior' is utterly ridiculous.

Sostenueto hugs and as ever xx

That hate mail was completely vile, I just don't understand some people's mindsets I really don't.

Discussing mediation on BBC1 now

Hate mail was probably from an anonymous account, so I doubt anyone with that (extremely common) name will be targeted in error. That's not to say the police won't be able to trace them if there are threats rather than unpalatable opinions in it.

I do not condone sending nasty emails under any circumstances - I must emphasise that. But by having this tragic situation played out in the public forum (FB groups, thunderclaps etc) it was, unfortunately, going to happen.

This is for our legal friends on the thread - does the posting of the nasty email (with all the details contained) breach any privacy regulations. I am just curious - not trying to derail but feel this comes under the far reaching consequences aspect of this thread.

I hope he doesn't stay at GOSH. Once the relationship has broken down I think it's best to be moved elsewhere.

I do wonder about the practical reasons given by the hospital. Size of ventilator? Really? I don't recall ventilators as being massive - we aren't talking iron lung here. I do get the inability to provide staff though.

Maybe I'm more cynical though. I recall our hospital putting obstacles in my way when I wanted to bring my baby home.

I would not post that email here, it should not be spread any further

I haven't looked at the hate mail image but it's awful that anyone is sending such things and I hope they are traced and prosecuted.

Thinking of Charlie and everyone else closely connected with this case today. I really hope there is some resolution coming later.

Mediation is great as long as both parties want it. Sometimes I feel this case is like a very, very bitter divorce situation. My dd had to go through such a thing. Mediation was set up as is the norm nowadays, he refused to come, so a bitter court battle ensued. I think in this case, an independent ethicist should have been put in place as soon as the relationship between gosh and parents began to disintegrate. But mediation does rely on both parties willing to reach agreement. Sadly gosh wanted to the parents did not and will not. Sad really all round.

Sorry - I was not in any way suggesting that we post it on here - I was just curious where CG stood posting it publically on FB - that's all.

Headofthehive - I can't speak about the size of the ventilator, but in addition to the practicalities of setting up a home-ITU it would be a huge security operation given the threats made to the GOSH staff.

A team of staff would be needed for Charlie along with security (Police?) outside the home to protect the staff. And then what happens if the parents change the goal posts once home?

To be honest, while he probably shouldn't have posted it on Facebook, I don't have any sympathy for the person who sent it on that score. They should face the full force of the law. But I'm not going to look at it and give someone's hate any attention. And I doubt Chris would be in trouble for posting it given the immense strain he will be under.

Lying "these things happen, it's tragic, but you have to make the best of it the the demographic of Daily Mail readers.

Or they are experienced, may have been in similar situations where they have had to make life ending decisions, have grieved, lost close family, etc. The may also recognise when people have gone above and beyond for their family.

Pyong