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Charlie Gard 15

999 replies

cjt110 · 24/07/2017 12:59

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

OP posts:
teainbed · 24/07/2017 14:24

So brave. Truly.

ItsNachoCheese · 24/07/2017 14:24

Apparently the case is effectively over according to jr twitter

Sluttybartfast · 24/07/2017 14:24

Thank God

Sirzy · 24/07/2017 14:24

Must be awful for the parents and I just hope they accept the proper support they are going to need.

cjt110 · 24/07/2017 14:24

@JoshuaRozenberg
Gard: parents sitting with heads bowed.

@JoshuaRozenberg
Gard's: case is effectively over. Armstrong explains why.

@JoshuaRozenberg
Gard: parents withdraw request for change to original order.

OP posts:
GabsAlot · 24/07/2017 14:24

sorry i just burst into tears

TheFairyCaravan · 24/07/2017 14:24

I really, really hope they don't suffer any backlash for that.

WeDoNotSow · 24/07/2017 14:24

Bless their hearts Sad

Yamayo · 24/07/2017 14:24

😢 poor parents...

CotswoldStrife · 24/07/2017 14:24

I just gasped when I read that tweet - it looks like the parents will withdraw their case. Very sad for them, but the right decision IMO.

LapinR0se · 24/07/2017 14:24

Am crying I think with relief and sorrow.
God love his parents
God rest his tiny soul.

Fancythat69 · 24/07/2017 14:24

And may his parents get all the support they need at this devastating time for them

MirandaWest · 24/07/2017 14:24

I really don't know what to say. It is truely heartbreaking

EB123 · 24/07/2017 14:25

Oh goodness.

cjt110 · 24/07/2017 14:25

My god Sad Those poor parents. At least they have been brave enough to use their heads and not their hearts now it seems.

OP posts:
AccrualIntentions · 24/07/2017 14:25

I absolutely feel the right decision has been reached, but how utterly heartbreaking for them.

teaandbiscuitsforme · 24/07/2017 14:25

Wow, incredibly brave by Connie and Chris. Just hope they get the privacy to say goodbye to their darling boy.

Mimimouse4 · 24/07/2017 14:25

Heartbreaking for the family. I am really glad they made this decision rather than the court do it for them.

Bless poor Charlie x

GabsAlot · 24/07/2017 14:25

somon tll th supportrs to go hom or be rspctful now

teainbed · 24/07/2017 14:25

Me too @GabsAlot big squish for my four DC tonight.

blueskyinmarch · 24/07/2017 14:25

It's all over. I really feel for them but at least they appear to have now accepted that there is no hope of any miracle for Charlie. I hope CA can also accept this and leave them to their last moments with Charlie in peace.

cjt110 · 24/07/2017 14:25

@JoshuaRozenberg
Armstrong going through merdical evidence. Usher hands box of tissues to parents.

OP posts:
KnitFastDieWarm · 24/07/2017 14:25

What incredible courage from his parents today. Just awe inspiring and heartbreaking.

Maryz · 24/07/2017 14:25

This reply has been deleted

Message withdrawn at poster's request.

CabbageLooking · 24/07/2017 14:25

Oh well done C&C. What a difficult decision, particularly with all that pressure outside. Poor things - I hope they get some peacefully time with Charlie before the end.

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