Charlie Gard 10

[user1498911470]

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

Starting now as 9 will fill up quickly.

Oh yes, applause for Dr Ravi. Thanks for posting @nocoolnamesleft

It is not weird to have so many threads discussing how we as a society deal with the rights of a very ill child whose parents are in conflict with medical opinion

Because there but for the Grace of God go any one of us, at any time. We all have children in our lives who are dear to our hearts, be it our own child, a neice or nephew, or a grandchild. And none of us knows when or if we may find ourselves in Charlie's parent's position. These types of debates are needed to make clear to us how we would want to act, and how we can best consider the needs of our loved one above our own wants.

I have nothing but the utmost pity for C and C. When this is all over they are going to need an unbelievable amount of love and support, and I hope they get it.

Apparently this country is turning into a fashionist state!
(CA are terrifying as an example of how people can be riled up by miss-information, but they do occassionally offer up a bit of light relief LOL)

Just wanted to thank you all for these threads which I have been following since day one. Whilst I feel great pity for Charlie's family, my main concern is for Charlie and the hell he finds himself in. I think that even if he receives this treatment, the best possible outcome is that he might be slightly more aware of his horrendous quality of life. Sadly I think his parents have been badly let down by whoever is allowing them to believe that one day Charlie may be a normal little boy

Omg I can't believe this has gone to. a tenth thread!

Apparently this country is turning into a fashionist state!

Is that like having catwalks in every town? And banning tracksuits?

Anne
I am eternally grateful for the NICU staff who saved my twins lives when they were born at 26 weeks. For the amazing round the clock ICU care they received despite the predicted outcome not being very favourable.
They aren't paid a great deal and to deal with life or death situations in tiny babies on a daily basis is something that only a few people have the mettle to do.

I'm also grateful for the Paed staff on the Children's Ward I'm currently sat on. We've been here 2 weeks now and the nurses and Dr's are compassionate, skilled and hard workers.
When one of my girls suffered a collapsed lung earlier this week, their emergency procedures were amazing. Their quick thinking and efficient working meant that they stopped her needing to be mechanically ventilated and sent on an emergency ambulances to another hospital.

Yes, it's their job - but it's one that I couldn't do, and I will be grateful always for them.

It's so interesting that numbers are dropping for CA. This could be because of their gatekeping policy that strives for extreme like/mindedness or hopefully a case of people quitting

I don't think I trust much of what CGF says. She seemed to suggest charlies guardian and the guardians lawyer were the same person and her massive news about that was already known by many.

So I don't put a lot of faith in her comments about chances of recovery.

I don't think any parent of any sick child owes any hospital or staff member gratitude. Staff are doing their jobs, no doubt very well and are paid for that.

Sorry - I know the post has moved on but Anne do you actually believe that. I am not picking a fight but I am curious as to why you would think thank.

My DH regularly gives up his weekend (as mentioned on other threads on other topics) to go in and take the pressure of his colleagues and this allows patients to be treated and sent home quicker. It allows means that some patients can have their unplanned surgery over the weekend and they do not have to wait until the "regular" weekday slots.

He is not a saint by any means and is not the only one (I am just using him as an example as I know him and on occasions love him ) but I would hate to think that his patients think like you do.

I don't think any parent of any sick child owes any hospital or staff member gratitude. Staff are doing their jobs, no doubt very well and are paid for that.

Sorry - I know the post has moved on but Anne do you actually believe that. I am not picking a fight but I am curious as to why you would think thank.

My DH regularly gives up his weekend (as mentioned on other threads on other topics) to go in and take the pressure of his colleagues and this allows patients to be treated and sent home quicker. It allows means that some patients can have their unplanned surgery over the weekend and they do not have to wait until the "regular" weekday slots.

He is not a saint by any means and is not the only one (I am just using him as an example as I know him and on occasions love him ) but I would hate to think that his patients think like you do.*

I understand the solicitors on both sides of this case were pro bono

I don't think they are pro bono for GOSH.

sost I share your frustration for that poster, long standing or not (as I am), I feel that she has been particularly goady on these threads, repeating the same comment on each new one.

I've just read the post by Dr Ravi Jayaram, which makes excellent points. Which private hospital would the spokesperson like him to be sent to? The Portland? Where a lot of the GOSH consultants work anyway?

Thanks for the new thread. At the risk of sounding like "head girl" can we wait until the old threads are almost full before starting new ones? There are still 40 messages left on Thread 9 and people are still posting on there so missing the discussion here.

I don't think it's odd that we have reached a 10th thread about a "maybe dying disabled boy" - how lovely and compassionate....

This case is huge and for many reasons I have read every post on every thread. I'm reading it from a professional view (as I deal with things like this at work) and from a personal view as the mob mentality of the CA fascinates me in terms of human behaviours on so many levels.

I'm also interested from a Political view as I'm shocked by how this has been allowed to be drawn out and all the ethical dilemmas and debates.

The medical side is also fascinating, hearing about the potential treatments and their likelihood of working etc and how this can influence the Judge.

The whole case has so many complex layers that I think it has been so educational for every poster.

As a public we should be aware of issues like this because it potentially has the power to change UK laws.

In AIBU people are always posting on threads about "children they don't even know" so I can't see why it's a surprise that so many people have such an interest in talking about Charlie and having such a mature conversation about all the complexities surrounding his case.

Amongst the 9'000+ replies on these threads I think there have only been a minuscule amount of posts that may be critical of the parents but in general we've still all said that despite some of their actions or behaviours being questionable we feel nothing but sympathy for them and that we can't imagine how devastating this is for them.

I have enjoyed being part of the CG threads, I have learnt off people, I've heard from people who have lost children of their own and everyone's perspective brings something new and thought provoking. I think the fact we've managed to keep the discussion so level headed and pleasant is only proof that despite AIBU sometimes being called the Vipers Nest we are also 'normal people' who are considerate of others and want to have sensible discussions and learn from each other.

I will continue following and participating in these threads until a conclusion is reached and I don't think it's 'odd' at all that we are all wanting to talk about it.

There are some topics in AIBU that run into 3 or 4 threads that are highly entertaining but only about small matters so the fact that such an emotive topic as the CG Case has reached 10 pages is hardly surprising and I find it odd that we are criticised for having "so much to say about it".

And Charlie is not just a "maybe dying disabled boy" he's a precious baby who is amongst the centre of all this and who is probably needlessly suffering whilst everyone around him argues and fights about what's best for him.

I hope there comes a conclusion soon and it's genuinely what's best for Charlie, whatever the Judge and doctors deem that to be. And my genuine sympathies go out to his parents and I hope that however this ends they have someone supporting them through it.

Thanks to everyone who has contributed to this thread

Sostenueto

Apparently this country is turning into a fashionist state!

One lone Italian doctor poised to fly over is not a reason for Brit CAs to start getting above their sartorial station.

Fashionist state is not a contagious thing. He cannot infect the country with Rolls Royce ironing systems, a knack with collars and the art of one bad accessory

This has a potentially massive impact on the future procedure and care of children/adults with a terminal illness, it's been a very measured series of threads.

I think it is hugely significant that these discussions we are having are a million miles away from what is being published in the mainstream media (other than Zoe Williams' Guardian article. For me, this is a perfect example of the disconnect between the media and the average person. Or maybe it's just me

Well, I'm delurking to say that I too have found these threads distasteful at times. Yes, most of the posts are measured and respectful, yes the case is extremely important, yes it's being played out on mainstream and social media everywhere else. However it is still picking endlessly and publicly over the details of the life of a critically ill baby and his family, unlike most others discussed in AIBU he has no anonymity. The eagerness for updates on proceedings, the sneering at posts by CA members, it does not sit well with me.

Wh0Kn0wsWhereTheTimeGoes, I guess it's best if you stay off them then, I do that with threads that I find uncomfortable.

Will you be having a news blackout in your house too?

Wh0Kn0ws, again, have you actually read the threads? If you had, you would know that discussions range far and wide beyond "picking endlessly" over one child and his family.

Everything discussed has been put in the public sphere by his parents and their supporters and to a lesser extent, because they have been forced down the legal route, GOSH.

There's a few posters now who've come
on to a thread for the sole purpose of querying the thread's existence and the motivations of those posting on it. I don't think it's ok but it's happened on every long running popular thread I've been on.

To those who don't like the thread - perhaps and individual or the whole thread breaches guidelines, you could report it.
Otherwise please don't turn a thread where people have shared their experiences of their own and their children's experiences of critical and terminal illness into a bunfight.

I am another who has had a child in PICU and who was motivated by these threads to DM GOSH in support. And their response made it very clear how our valued support is.

Yes, most of the posts are measured and respectful, yes the case is extremely important, yes it's being played out on mainstream and social media everywhere else.

Exactly. So why single out these threads for criticism?

However it is still picking endlessly and publicly over the details of the life of a critically ill baby and his family, unlike most others discussed in AIBU he has no anonymity.

Not really. It's focussed on the details relevant to the case, not their "lives" in the broader sense. It's a medical ethics case, isn't it? So that's what is being discussed. That and the social media guerilla tactics.

If the family can discuss, distort and tweet the details but nobody else can, then we'll already be halfway to the parental ownership of children that they're arguing for.