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Original poster

Charlie Gard 10

999 replies

user1498911470 · 15/07/2017 23:26

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

Starting now as 9 will fill up quickly.

OP posts:
Thread gallery
9
FallenUnicorn · 17/07/2017 01:29

Oh right thank you smilingmind, I hadn't looked on her FB don't know why really, I should have done. So she's with the pastor and is pro life, it just seems like she's turned up out of nowhere and is very involved already.

I really don't like that quote from the pastor: "First the hospital denies care, and now they deny prayer", it really grates on me. He says it, then Connie says something similar and then that Catherine repeats it. It's one thing saying things aren't going too well with the hospital but to outright accuse them of not giving Charlie care is just so awful IMO :( I feel so much for the staff at GOSH.

Jux · 17/07/2017 01:31

Surely God is present everywhere. The pastor didn't need to be at the bedside to pray effectively for Charlie. He didn't even need to be in UK.

There. Saved him a trip.

FallenUnicorn · 17/07/2017 01:37

Exactly Jux. And if he absolutely had to come over, there didn't need to be posed photos. Of both him and Catherine.

Jux · 17/07/2017 01:42

I sent an email to GOSH earlier in the week, and got a really nice reply. It's so worth doing. I'm sure that morale could do with it.

Whichwayyisup · 17/07/2017 01:52

This is not going to end well

Onepartcranberry · 17/07/2017 02:11

While I have compassion for C&C, I also have frustration. My heart goes out to the other families at GOSH, as well. Their children are equally loved and valued and also in possibly some of the darkest days of their lives. These families should not have to be subject to the circus surrounding this case. CA and C&C seem to not allow any latitude for their comfort at all. I cannot imagine how much additional stress it has added. I'm having a hard time with C&C and CA not acknowledging that Charlie would not be alive today were it not for the NHS and the committed staff at GOSH. Mr. Justice Francis is an intelligent and compassionate man. I believe he has a plan to bring this case full circle , as well as shut down the chance of further appeals. He has shown extreme patience. At some point that has to run out. I'm surprised a gag order has not been issued. I cannot help but feel when looking back, the parents are going to regret not spending this time focusing solely on their little boy who is slowing slipping away.

Jux · 17/07/2017 02:28

I agree with you, cranberry. No one regrets spending more time with their children, especially when time is so short. I suppose that C&C still believe he's going to be riding that bike....

I hope that when this returns to Court on 24th the Judge cuts through all waffle, delaying tactics and so on, and closes it quickly. I don't think that the parents are going to be susceptible gentle taking by the hand.

I am assuming that the good Dr H is going to say that he can't substantially help. Maybe he and GOSH will surprise us all. (I do add that I don't have any belief that will happen.)

Thanks everyone for interesting discussion again! I must go to bed. Work in the morning.

Onepartcranberry · 17/07/2017 02:30

I feel for C&C, I do. This is any parent's worst nightmare. I hope in the end, they can find peace that passes understanding. I also hope, when all is said and done, they are not forgotten completely as I fear they will be. I hope they still have a strong support network. I guess what I am trying to say, is in wanting to write the end of the story their way for their son, they are also writing the ending for so many other families, that might not want the same ending written and they should be cognizant of that.

Saucery · 17/07/2017 06:11

Cathy Newman on Ch4 News asked CGF about her involvement and how it had come about. She said a 'family member' of CG/CY had asked them to become involved. A family member in the USA, but haven't seen if there is any further info on that. It seemed a bit vague and dismissive as an answer.

Sostenueto · 17/07/2017 06:20

Everybody riding on the back of this tragic story. People like CGF are a disgrace really.
My thoughts and prayers today for the meeting to go ahead as planned and whatever the decision I pray a consensus is reached. I pray that Connie will allow the meeting to progress and that she may see how doing so will benefit little Charlie. I pray for Charlie that a solution is found that will be to his best interest.
I pray that in the end Charlie and his family may find peace.Bear

londonrach · 17/07/2017 06:27

I dont understand why they havent let charlies suffering end. Whats the final decision. This whole case should have been kept private. Theres a very ill little boy in the middle of this that everyone seems to have forgotten about including his parents. Does charlie have extended family who stay with. Him whilst his parents in court?

Ellie56 · 17/07/2017 06:41

londonrach the parents don't believe he is suffering, or in pain, or brain damaged. Because the GOSH doctors are lying.

Lightlovelife · 17/07/2017 06:58

Amen Sostenueto.

annandale · 17/07/2017 07:17

LondonRach I am absolutely certain that the parents have not forgotten their baby, that they love him desperately and that they are satisfied with the care he has while they are away from the bedside. He is in PICU with likely 1:1 care and I have read on here that his grandmother is often with him in PICU but I don't know any more about that. I don't agree with everything they have done but I think the posts (and there are a lot of them) about them regretting time away from their baby should stop. We don't and shouldn't judge people who make adult parenting decisions that for whatever reason they need to do something other than be with their children. The parents look as if they have driven themselves to the limit in this fight. Their visible agony makes me uncomfortable and i don't think I'm the only one. I have to be careful that I don't comment on the basis of 'please don't look so distressed where I can see you'. They are teaching us something even if we disagree with them. I really recommend the Rumer's Rainbow links above for a different perspective.

bruffin · 17/07/2017 07:37

This reply has been deleted

Message withdrawn at poster's request.

BlondieJ · 17/07/2017 07:42

Can I ask to those who have sent emails to GOSH, which email address did you send to? Or "what is the nature of your enquiry?" If I want to send a message just to say thank you to all of the staff?

bruffin · 17/07/2017 07:45

Apoligies wrong thread

sashh · 17/07/2017 07:50

but for many conditions, the outcomes are better.

But not for all.

The USA is one country where maternal mortality is going up, that should not be happening i a first world country. Far more women give birth than have rare diseases which attract funding and trials.

www.vox.com/2016/8/8/12001348/more-women-dying-childbirth-america

My mother and grandmother both had breast cancer (my mum 2 different types) neither were sent home after ops with drains still in place.

Going home with a drain probably doesn't make much difference to survival rates but it is not an easy thing to go through.

DarthMaiden · 17/07/2017 07:57

The Daily Fail has "picked up" been spoon fed the story about Butler-Cole (lawyer for Charlie's Guardian) having an association with the charity Compassion in Dying.....

contortionist · 17/07/2017 08:03

One reason cancer survival rates are so much better in the US is that they do very extensive screening and detect cancers earlier. That doesn't necessarily improve the patients' lifespan, but it does increase the time from diagnosis to eventual death, which is what the survival rates measure.

The extensive screening can also pick up cancers which would never have been detected in the UK, and which would never need any treatment, which also improves the figures.

This obviously makes it difficult to do direct comparisons between countries. But one measure that is straightforwardly comparable is life expectancy, and there the UK does do better than the USA.

ArgyMargy · 17/07/2017 08:08

Blondiej many of us have sent them a message via their Facebook page (FB messenger) and received more or less the same lovely response. We also know from a poster on here that these messages are being read out to staff and are extremely well received by them.

DarthMaiden · 17/07/2017 08:11

First few comments in on the Daily Fail Butler-Cole "story" encouraging wrt to balanced response.

I paraphrase but one is "not a conflict, she has a background in the ethics of end of life care - what did you want? A tax Lawyer?" and "compassion in dying is about living wills not euthanasia - this is a media circus".

ArgyMargy · 17/07/2017 08:12

sassy I know from personal experience that having drains after mastectomy/lumpectomy is a very individual thing (patient and surgeon dependent) so probably not relevant here. However the infant mortality graph that has been posted here several times is hugely relevant (showing US rate several times higher than European countries including UK).

ArgyMargy · 17/07/2017 08:13

I meant sassh of course (I'm sure you're sassy too!)

ArgyMargy · 17/07/2017 08:13

Arrghh sashh!!