Charlie Gard 10

[user1498911470]

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

Starting now as 9 will fill up quickly.

Lizzzar and which Drs and nurses are going to fly with him? The NHS ones that are needed to look after other sick children at GOSH or privately employed ones?

I'd be surprised if they can find anyone willing to do it based on the vitriol the GOSH Drs/nurses are getting and then there's hiring equipment, probably chartering a special flight trying to find someone willing to insure you, etc. There won't be any change left from the money they've raised so far that's for sure.

In our legal system the child's rights and welfare are paramount. Not the views of parents. Barrister blogger and GOSH position statement explain that. That is why Charlie has a guardian in court and the guardian has a barrister.

Yes lizzar until the money runs out......

What about the 2 million in USA without health insurance? Do their mico babies get free treatment?

Thank you so much for that link 11122.

I wish I could force everyone who has been frothing about socialised healthcare, death panels, holding Charlie prisoner, parental rights etc to read it, together with the GOSH position statement.

And don't forget Lizzar, that many of the organisations behind facilitating getting little Charlie to the USA are openly ANTI end of life care pathways.

So if he did deteriorate further and get to his last hours, and had been accepted/sponsored by a Catholic hospital for example (which is likely to be the type of place that'ld accept him for their own reasons), then no! he would NOT get the same gold standard end of life care that he would have got at GOSH.

Lizzar do you think it's ok for a baby to be experimented on?

Do you think people are aware that an ICU medevac is not a curtained off area on a Virgin flight (rhetorical).

It would require a gulf stream or similar to go transatlantic. I'm not sure if it would make it in one go fuel wise or have to stop for refuelling.

If the patient is not able to go by jet then the patient would have to go via twin prop and have to stop for refuelling several times. And even before doing that, a medical team (NHS?) would have to get the patient to the airfield.

Medevac companies have staff they can call on but this kind of transport is the extreme end and given the distance then they may need several medical teams.

I imagine it would be in the region of a few £100,000s.

Even if in cloud cuckoo land he went to America, got the treatment and came back, wouldn't he need maintenance doses? How much will that cost? How are they going to pay for that? I can't see all the Huns hanging around forever.

Good point. CaveMum

I can't see any doctors/nurses wanting to touch the job of accompanying Charlie Gard and his parents to the US, with a barge pole.If anything went wrong, they'd never hear the last of it.

No one here would accompany Charlie to US in fear of being sued if anything went wrong and a private company definitely wouldn't for same reason. I expect US companies would be the same. In other words charlie really is untouchable hence why other hospitals in UK won't take him on because of the circus that surrounds the poor little boy. ( not because of the boy himself). Everyone wants to help him and everyone has been trying to help him. I expect Hirano will be very reluctant to take him on too because of the damage to his reputation if it goes tits up.

Cross posted ellie56.sorry!

Sostenueto, totally agree.

The NHS turns people away if i doesn't think treatment is appropriate. They don't turn away people who are serial complainers or suers etc.

Private companies and hospitals can turn you away if you're bad for business.

It's one thing to find a doctor that'll treat him, it's quite another to find a whole hospital willing to take him on.

If this treatment was being bankrolled by fundamental christians in a private facility and it wasn't working for charlie and he needed to just be made comfortable, y'think they'ld keep bank rolling him? once his treatment was now at odds with their agenda instead of him being useful to them?

Has anyone heard from lonelymummy 1?

Thank you for the link 11122

Deux I would bet money on the fact that a proportion of CA think it is as simple as popping him down to Heathrow and getting on the next BA/Virgin flight to JFK.

Doing a quick Google suggests a basic Medevac flight from Europe to USA is $50,000 - that's just for the aircraft. Then there's $11,000 per nurse (average cost). Add in the fact that Charlie would be as complex a case as it is possible to find, the equipment needed, plus back up equipment should there be a mid-flight failure. You'd probably also need two teams of medical personnel for such a long flight and like I said up thread, I'd be surprised if there was much change from £1million.

Hello muckypuppy!

It may just be me, but I feel very sorry for Dr Hirano, from reading the comments on CA I'm not sure he is fully aware of what he is entering. The way they are talking about him such as changing the lyrics of Mariah Carey's hero is quite disturbing, if he doesn't agree with what they think they will turn on him so quickly its scary, and if he is subjected to half the amount of abuse that other professionals have, I'm not sure he would want to ever come back to the UK

Considering a chunk of CA think that C&C should just walk out of PICU with Charlie in a maxi cosi, yeah, I'm sure they do think it's as simple as going on trivago and booking a flight.

I would bet money on the fact that a proportion of CA think it is as simple as popping him down to Heathrow and getting on the next BA/Virgin flight to JFK.

I feel sorry for this American Doctor beceuse the ridiculous hope that the CA are pinning on him is a huge weight to bear. I wonder if he knows the CA exist and if he has browsed their FB page. I have a feeling that he's going to end up being their new scapegoat and hate figure as opposed to laying all their blame at GOSH before too long.

Sostenueto her friend posted earlier/yesterday, not entirely sure when that she hasn't heard from her in a couple of days & there haven't been updates on Facebook either. She's been on my mind a lot too, I hope they're both OK

Thank you for that link 1122aa, a very worthwhile read for everyone, IMO.

Thanks for the links to Blogging Barrister and Melanie Phillips. Both very interesting reads.