LVAD has been changed...

[misdee]

to a VAD. looks like peter will have double exterior pump fitted tomorrow (tho have been told this all could change in the OR). it means he wont be coming home. not till after transplant.

he is going to miss dd2 birthday, he is going to miss dd3 growing from baby to almost toddler. this isnt fair.

OMG hun, things get worse dont they. You WILL get through this, all of you. How long til transplant after the op then? Op still going ahead tomorrow?

So sorry to read this. Send you all the hugs and bst wishes that I can

Oh you poor thing - thinking of you

I haven't posted before Misdee but have been following the posts. I don't quite know what to say except fingers crossed and good luck.

still goign ahead tomorrow, about 8am. 8-9hour op.

transplant, who knows, at least 3months away. could be longer.

so sorry for you, dh & LOs misdee.
hope one day it'll have been worth it tho

hun, if there is ANYTHING, and i mean ANYTHIGN i can do, please ask.

DH will be on leave from 5th August, so if you want me to pop down for a few days to help out, please ask. It would be no trouble.

.
Wow, when they were passing out lives you got a rollercoaster....

I'm still praying honey

Aw sweetheart.............

I'm sorry misdee

Misdee - do you have a video camera - so you can 'record' bits of the kids special occasions - and just general day to day stuff for him to watch once he's had the op, transplant and come home??

i'm pretty shook up about this. instead of a nice neat little box and a few wires attached tim carried i na bag/rucksack/bumbag type thing), its now a visable pump. you'll be able to see the blood flowing through it, it will initially be conected to a large 'air pump'. after that if he does well it will be compacted down to a machine which can be wheeled about on a trolly similar to the old granny style wheeler shopper things. i know i wont have to do any of the aftercare like i would've done with the jarvik pump, but i cant get over the fact he wont be coming home for a lot longer than originaly stated.

what if dd3 forgets who he is? the older 2 wont be able to see him for a while either.

i was shown round ITU today, was very busy, and a bit intimadating.

Misdee, I am so terribly sorry that you are going through this, I wish there were a way I could ease the burden for you all

misdee. i'm so sorry. god it's like a ton of bricks isn't it?

i'm thinking of you all.

xxx

dd3 WONT forget her daddy.... the video idea is great, lots of photos and of course talking to the kids about daddy.

it is going to be a very hard few months for you and we are all here for you. We all want ot make things better, and through our prayers we hope the right thing will happen soon.

You have my email address honey, and i am prepared to come and help you out for a few days in the summer.

Misdee, I'm so sorry. Your life is hard enough already.
Will be thinking really positive thoughts for tomorrow.

Misdee I am so sorry. As I have said before please ask if you think I might be able to help with anything you need clearing up. ITU looks very busy, but it is one on one nursing care, so there should be someone who can usually take a moment or too to explain things to you as they go. Does he need the 3 months post op this time around to recover enough for a transplant?

yes FF

no misdee this isn't fair .. but it is giving him the best chance isn't it?

Message withdrawn

i hope so twiglett. without he wont be here in a few weeks. its not a 'normal' operation as its quite risky, but they have tried everything else. and he will still need a transpalnt ASAP after the recovery period.

Oh Misdee, it isn't fair, am thinking of you and your family.