GP thinks I’m crazy!

[BexAubs20]

Ok so I’ve been having symptoms for years now and been tested for all kinds of things via bloods, stool and urine samples. The only thing that came back positive was low vitD which I’ve been taking daily for months and still don’t feel any better. I’ve got a tugging type sensation in my lower tummy either side of my hips as well as the following symptoms; Headache
Nausea
Severe back/ hip pain
Rash on face & under breast & chest & arm, back of knees on hips and eyes
Bowl issues
Dry sore bloodshot eyes with rash on eyelids
Phlegm
Depression
Anxiety
Fast/ irregular heartbeat
heavy, irregular periods 2 x per month
Pain under right side ribs
Heavy legs
Mouth ulcers
Bruise easily
Dry nose with scabs
Dry sore lips
Random body twitches
Toenails peeling off
Brittle fingernails
Dry hair
Twitch under right eye
Acotites- swollen tummy
Fatigue
Aching joints
I’m at my whits end! The fatigue is the worst. I’ve had to give up work. I wake up exhausted and I’m struggling to carry out daily tasks. Even climbing the stairs hurts! I’ve asked for a gyno referral but apart from that I think they have ruled out everything else. I’m 37 so poss peri menapause but the test they did came back negative for that too! Does anyone else have these symptoms and what was your diagnosis? Thanks

Awful people trawling the internet with nothing better to do. I’ve noticed on MN they pick on people who sound low in mood too. Like whole who say “please be kind I’m not in a good place” etc they GO IN on those people for no reason. I came here to ask advice and I’ve been criticised for my weight and told to take weight loss injections, told I must “like to be ill” that my GP wishes I would leave , that I should die and leave my children orphaned, that my house is filthy, I have poor hygiene, I don’t pay tax, the list goes on lol non of which are true btw and I’ve not alluded to any of that bulls*it. Luckily the post has been monitored by admin as they keep deleting posts which is good (thanks admin if you see this)

I completely agree with you. Read my previous comments. You can’t take chances and palm something off as health anxiety unless absolutely certain.

No. Read the thread and my comments. Then read the title of the post.

• Public Order Act 1986:
• This act criminalizes public order offenses, including using threatening, abusive, or insulting words or behavior, or displaying such representations, within the hearing or sight of a person likely to be caused harassment, alarm, or distress.

I think those posters who are so unkind should take note of what the law says. You can have free speech, but it has to be within the law, and some people are abusing the law. Do they know that, or do they think they can say what they like?

Well exactly! And the fact I’ve said I have a learning difficulty yet was told to “stop hiding behind your learning difficulty” and picked on repeatedly for spelling and grammar when I’ve said I have dyslexia. I mean it’s a mum forum ffs 🤦🏼‍♀️ obviously I have techniques for anything important like my dissertation I had a tutor to proof read etc but jeez get over yourself I spelled something wrong could you be arsed getting that triggered over a spelling error that you had to take time out of your day to point it out and belittle someone?! It’s sad it really is I feel sorry for their GPs and family and friends in the un likely event they have any lol

This is so scary! I hope you’re ok now! X

OP, I do actually sympathise with what you're experiencing, especially as I experience some of these symptoms myself. At one point in the thread it felt (to me) like you were blaming your tone towards certain pps on your learning difficulty. That was the intended context of my comment, nothing to do with your spelling/grammar which I hadn't even been taking notice of tbh. If it upset you/if I misunderstood, then I apologise, but without wanting to re-ignite that whole thing I wanted to set this straight because I would never call someone out on their spelling and grammar who had disclosed a learning difficulty.

Ask for an immunity blood test. I was back & forth for a couple of years with pain, full bloods always came back ok & my Dr actually told me it was all in my head. Went back a month or so later to see a different gp (locum) & burst into tears saying I'm not imagining it & she said she'll arrange an immunity blood test which I had never heard of. A week later had a phone call to say my rheumatoid factor was through the roof. I got referred & was diagnosed with rheumatoid arthritis then a bit later fibromyelgia, chronic fatigue syndrome/ME & Sjorgens. My niece has ra & last year got diagnosed with lupus & one of the factors is like a butterfly rash on the face/cheeks & can also be present on other parts of the body. If I'm saying the same as everyone else I apologise but as someone else who can't work due to chronic pain & fatigue I really feel for you.

Thank you for being big enough to apologise. I probably had a tone with people who were being mean and there’s been plenty of them on this thread 😫

Thanks. You really do have to push sometimes to get answers don’t you? I’ve had this test (I think) and it came back negative. I will double check though. Thank you

OP, you're going to see another GP. Definitely wise. A female too, good move.

Something about all this makes me come back to EDS. I have this and a plethora of horrible autoimmune diseases and associated co morbid issues like Mast Cell Activation. It has high inheritance risk but I don't see it clearly in family members of mine. I wouldn't use that as a basis.

It's difficult to get this diagnosed and you can't treat EDS as it is a genetic defect of collagen. Collagen is in every single part of your body. This is why we can suffer so much. The extent of the defect is different for each person.

EDS is significantly associated with Neurodivergence in case that's relevant.

I implore you not to use the words or suggest Fibromyalgia or FND. These terms are to poorly explain a collection of symptoms for which they haven't found another cause. They don't look hard enough because time and resources won't allow. So if you get these 2, they will close the books on you. They are not conditions where there's a collective, standard agreement as to what the heck they even are. Not like a defined genetic defect such as EDS, or an autoimmune condition where we can understand and define and explain exactly what's occurring and mechanisms of action beyond word salad.

Many autoimmune conditions don't show up in blood tests. None of mine do. They're severe and for me life changing. My bloods are normal.

You don't deserve any of that. Try to clear you mind of the nasty things people say and concentrate on what has been happening to you lately, where you have been, what you could have eaten to cause the problems. Think back to any time when you might have been exposed to a disease, or virus. People regard viruses as causing colds, but they cause a lot more than colds.

Remember, there are billions of people in the world and they are mostly all different.

Start with your eyes, because sores inside the eyelid are unusual, and may point to something that would include some of the other symptoms.

Go to an optician. GPs cannot do everything. An optician has a whole lot of diagnostic technology and if there is something wrong with your eyes - or if it is a symptom of something else, they will refer you to your doctor.

Same with dentist. You would be surprised how many underlying dental conditions there are that a dentist can pick up at an examination.

I strongly advise going to a chiropractor for your back pain. They also give advice on position, like sitting. A physiotherapist can help with many things. If they find something significant they will refer you to your GP.

All of those health professionals have the ability to refer you to your GP if they see something wrong.

Don't concentrate so much on the intestinal problems. If you like yoghurt, eat the ones with live cultures. Not all yoghurts have them. Do not tale anti=inflammatory drugs like ibuprofen and aspirin. They will make your guts bleed if you take too many.

Stop taking any of the vitamins and non-prescribed drugs. Only take what your GP has prescribed.

If a post starts with something you don't like, don't read it.

I have lupus and have had all your symptoms over the years ask for lupus blood tests and a referral to rheumatology.

That is what I was going to suggest! Also possibly ME?

Have you had your doc appointment yet with the female GP yet op?