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My gorgeous dd has really really bad OCD.

233 replies

gracepaley · 12/04/2008 23:30

We are on the waiting list for therapy and reading up about it like loons, but we are feeling really bleak about it. It's such a fucking pointless, ridiculous evolutionary blip, and it's turning her into a ghost of herself. Anyone got any cheery stories about recovery to bolster me? Normally more resolute, but just tonight feeling crap about it.

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MrsJonnyDepp · 08/05/2008 14:33

How are you? Just on a 'ad break' here in filming this riveting day time drama. Featuring a wild banshee - who is rapidly losing the plot. Oh no I mean glamorous mother of two, amazes those around her with her charm and patience!

MrsJonnyDepp · 08/05/2008 14:34

I'm going for a lay down!

gracepaley · 08/05/2008 18:46

Mrs JD, you ok?
What happened?

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sue1911 · 08/05/2008 20:27

Mrs JD i think several of us are concerned about the plot in your daytime drama. has it been lost?

along with grace i hope you are ok

MrsJonnyDepp · 08/05/2008 21:46

Hello - yes I'm fine.
Having a brain overload.

How are you?

gracepaley · 11/05/2008 08:13

Hello. We are hanging on in there. She has started on Sertraline - it won't kick in for 8 weeks but the side effects have started so she can't sleep v well atm, hence my absence from here. BUT she has had two sessions of private therapy and we are starting to map all the rituals. She has single handedly got rid of some really obtrusive ones and is going great guns and went to school for the whole day on Friday. I am UBER proud of her. She is such a fighter.

What news from you lot?
Berolina - no epiphanic email from you yet. Hope all is ok darlin.
xx

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sue1911 · 12/05/2008 14:03

Hi Grace, what wonderful news about DD. I'm glad the therapy is working.

Hope the meds S/E arent too bad for her. thinking of you both and hope things are ok for YOU at the mo.

Mrs JD. glad it was only a blip and nothing too major. I know how easily plots get lost!

No news from the Maudsley yet about mum, but we should hear by the end of the month (so they say). She had 2 nights at home last week (with 24hr carer) so thats a bit of progress.

DD hasnt filled the worry jar at all this weekend

take care all.

imaginaryfriend · 13/05/2008 16:10

You're doing so well gp, brilliant if you can kick this now while she's young rather than it developing into a lifelong thing.

And well done to your little dd!

sue1911 · 14/05/2008 11:36

Hi all,

have just recieved a copy of
A thought is just a thought by Leslie Talley

it is written especially for children to help them understand their symptoms of OCD and understanding that 'a thought is only that'

i got my copy from www.aphrohead.co.uk but i think there is a link that takes you to Amazon

hope you are all doing ok

gracepaley · 15/05/2008 09:54

Yo all

She has adopted Christina Aguilera's "Fighter" as her anti-OCD anthem. It's GREAT. Up and down the last few days, sertraline is making her quite agitated, and she refused to talk to the therapist AT ALL yesterday - but she has a steely core of determination. They have had school assessments this week - and she has got through them all despite needing extra time for the reading and writing ones.

That book sounds great Sue. Am a bit informationed out at the moment - especially as am having to tackle dd2s anger and learn all sorts of new techniques for that too. I find myself being a bit about psychological techniques, it all feels a bit CLINICAL and thought out. Any news from Maudsley? How is your mum doing with the 24 hour carer? How are you and how is your dd?

Mrs JD, IF, hope all good with you.

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Threadwworm · 15/05/2008 10:05

I'm so pleased, grace, that it seems to be going well for you. Your daughter is so strong. I'm really impressed that she is handling school so well at such a tough time.

I was struck by your mention of her anger. It's just a thought (based on my total ignorance!), but it seemed to me that it might be a really good thing that this anger is showing. For one thing, she has a lot to be angry with (bloody Fiona), and for another I wondered if part of the whole OCD thing is about over-controlling very strong emotions -- though I appreciate that 'psychological' accounts are only part of the picture.

Anyway, hope things continue to go as well as possible.

gracepaley · 15/05/2008 10:20

Thanks Thready. Hope all good with you. Haven't been on very many other threads atm so no idea what you are up to.

It's my other dd with the anger issues.
She is SO not OCD, she keeps drawing graphic pictures of Fiona in pools of blood, having been shot by her..........

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gracepaley · 15/05/2008 10:20

Thanks Thready. Hope all good with you. Haven't been on very many other threads atm so no idea what you are up to.

It's my other dd with the anger issues.
She is SO not OCD, she keeps drawing graphic pictures of Fiona in pools of blood, having been shot by her..........

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Threadwworm · 15/05/2008 10:23

Ah, sorry for confusion. Love those pictures!

sue1911 · 15/05/2008 12:33

Hi,
Understandable DD2 is a bit and about 'fiona' as not only has she taken hold of big sis she has taken attention away from her too. She will get over it and its perfectly normal even though hard to deal with.

just give loads of cuddles and keep explaining that you still love her and care about her exactly as you do DD1 but that DD1 needs abit more help at mo.
I think that type of death for fiona would be very fiting!!!!!!!!!

How long has she been on the sertraline now 2wks? Hopefully it will settle down within the next 2. How much is she on? 25 or 50mg Hopefully less than those but dont know what they give to children.
Try to get the drs to give it 2 weeks each time before dose adjustments as you will get a better idea of if its working.

mums routine now changed and she comes out every day with a carer or family and only goes back in to sleep as they dont feel she ready to sleep at hers just yet.( bit of a set back with the 24hr care)

No news yet on the maudsley (nothing new there)

Hope things in all aspects of your life get a bit calmer soon.

sue1911 · 15/05/2008 12:34

Mrs JD, hope your plot is coming along ok too

MrsJonnyDepp · 15/05/2008 13:10

Hello Hello!

Still around! Feel better as work has got better and I have tidyed the house and garden.

DS is still DS! He had saved the worst of the OCD just for us at home - but mil/fil saw it for the first time this week and were shocked He has long periods of being just fine and then suddenly says ohno - and off it goes! Had converation with his teacher last week and she says she has not seen anything unusual in his behaviour. Which made me wonder if it is for attention - is it fair to wonder this?

Best wishes all - hope DD's sleep is improving Grace.

gracepaley · 15/05/2008 18:47

Not just for attention mrs jd.
Absolutely not.
He's probably working really hard to mask it at school, or maybe school doesn't provoke the compulsions as much as home.
But it's SO not an attention seeking thing.
He can't help it.

Hello Sue.

More later must feed children.

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MrsJonnyDepp · 15/05/2008 21:17

Hello! Thanks - He has been good this pm - just trying to concentrate on being really positive and supportive with him- and keeping distracted with other things is working to.

How has your day been?

MrsJonnyDepp · 16/05/2008 13:05

Hello.

I'm very sorry if I sound dismissive of OCD.I am not, as I suffered as a child and know how horrid it is. My question was only related to my DS - I really hope all is going well for you all xxxxxx

gracepaley · 16/05/2008 14:07

You don't sound dismissive at all. I didn't think you were being dismissive. It's just v clear to me that ocd has nothing to do with attention/need for it. I didn't know you had had it as a child; had you told us that? What form did it take?

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TotalChaos · 16/05/2008 14:09

as a teen with OCD - I hid it as best I could at school, didn't want anyone else to know - also my obsessions mainly centred round the home anyway.

MrsJonnyDepp · 16/05/2008 14:42

Hello Grace and TC - yes I hid my ocd too - only I knew = I thought I was going crazy! Yes mine were mainly home things ,repeating things to be sure everything was ok!
I once had to say (in my head!) Merry Christmas 200 times on Christmas Eve or I'd get no presents! I had bedtime rituals before I would settle down to sleep.

Because I was so very secretive - I find it had to deal with DS being so loud about it! He also kicks off when the attention is away from him - which made me wonder. But in truth it could be insecurity.

gracepaley · 20/05/2008 18:56

Hello. I am just posting because amazing things have happened. I am slightly fearful that this is a dream.
DD went to legoland on Sunday, went on all the rides ( I was with her), had a brilliant time. No sign of the OCD.
Yesterday she decided to start reading again. No sign of the OCD.
Today she put her own shoes on ( I have been doing this for 2 months)strolled into school with a book under her arm, put her own lunchbox on the l trolley (I have been doing this for the last month) kissed me goodbye and walked jauntily off. When she came home from school she went and sat in the rabbit run with the rabbits and read for 1.5 hours.
Don't know if it's the drugs ( apparently too early but could be lowered base anxiety), the therapy, serendipity, us having stopped everything for a while, or what. But she is getting herself back and it is extraordinary to see. I wasn't expecting anything like this to happen for months.
So .

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imaginaryfriend · 21/05/2008 12:08

F-A-N-T-A-S-T-I-C!!!

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