Help me, i have just had one of those phone calls you dread.

[largeginandtonic]

DD has seen a consultant for tests recently, she is behind at school and seems emotionally immature. We had lots of academic tests done, took about 2 hours. She seemed to do ok.

We were then sent to the hospital for blood tests. I have no idea what for. The hospital just phoned me and said can the consultant come to the house one evening this week and speak to me about the results. They said they need my husband to be home too.

I am terrified. Has anyone else had a consultant come to the house? Am shaking and cant get hold of my husband or my mother.

She is coming tonight.

oh dear, you poor poppet.

Oh LG&T.

Hope you get the support you all need.

Oh LG&T.

I don't know whatto say but I'm absolutley possitive someone who knows lots about it will be along soon.

Have a very very rare LTH {{{{{hug}}}}}

oh my love, I am so sorry In tears for you . I know nothing about it I have to say, but I do know one thing and that she is a very special little girl, totally charming and a blessing for which you and N can be proud of.

lots of love to you all. So sorry it's bad news.

oh I'm so sorry

So sorry to hear this

Turner Syndrome Society Website

Oh LG&T, I'm so sorry. What a horrible shock.

I know nothing about it but a quick google pulled up the Turners syndrome support website. Hope that may provide some answers.

Hi,
Been following your story today- sorry to hear whats been going on.
Found this support site for sufferers of Turners on google, hope it helps.

www.tss.org.uk/

so sorry LG&T

thinking of you x

There's a website, www.tss.org.uk

I don't know anything about it, but there is a UK Turner Syndrome support society.

I'm sure that's much better than some of the things you must have imagined, although it is not perfect. Don't know what to say, just want you to know I was thinking of you!
but lots of hugs

here is where I looked, sounds good.

i dont know anything about turners LGaT, but want to give you a big hug if you accept them? {{{{{{{{{}}}}}}}}}

largeginandtonic, have a look at this website: www.childgrowthfoundation.org/turners_syndrome.htm

There is a forum there too, not very busy unfortunately, but if you become a member of the foundation you will get the newsletters and there is a yearly convention, where this year you could meet me! My son has dwarfism so we will be at the convention.

Really sorry that you have had these news, it must be an awful shock.

and me

A very good friend's sister has Turners. I think she had to take various hormone replacements and wouldn't be able to have children without egg donation but in all other respects is fine - has a perfectly normal life, good job etc etc. You'd never know she had Turners if you hadn't been told although she's a wee bit on the short side.

HTH a little, must be an enormous shock for you .

www.tss.org.uk is the turners syndrome support society.

(sometimes the net can be a bit overwhelming for information when you first find out a diagnosis though.)

hth and that someone with more experience comes along soon.

x

I know a reasonable amount about Turners syndrome including the fact that many parents and women with Turners syndrome find the Turners syndrome Society very helpful. tHey have annual conferences at Blackpool.

I can talk to you mosdly about the growth related issues and I have some knowledge about the fertility issues if that would be helpful for you.

I was in a clinic last week and met lots of girls and young women with Turners syndrome and they were all very happy, able and beautiful young women. You have clearly had a big shock tonight and there will be lots more info to take in over the coming days/weeks/months so take things one step at a time and I will ytry to answer any questions if you want me too.

What a shock for you all - will be thinking of you.

you'll get lots and lots of support on here. hope someone expert comes along soon, but if not there's the rest of us.

take it easy, you're almost certainly in shock.

x

What a shock for you all.
Had a quick google on the NHS website re Turner's Syndrome.
"Regular health checks and treatment may be necessary throughout life, but the majority of girls and women with TS lead normal, healthy lives".
So that bit is quite positive.