Hand hold while I wait for ambulance for daughter

[StopTheQtipWhenTheresResistance]

Currently waiting for an ambulance for my daughter. Been sent as category 3. She's not been right for a few days now, not eating, not drinking, just laying slumped on her bed. This morning she collapsed in the bathroom and went really pale.

She has a learning disability and complex mental health problems so she can't tell me what is wrong as she doesn't verbally communicate when she feels unwell.

She was in hospital a couple of weeks back due to an infection (see previous threads) so I hope it's nothing to do with that.

I'm so worried, I feel sick.

People don’t get worked up at the OP. Of course ambulances should be available to take an ill person with very complex needs to hospital. Blame the people in charge who’ve run the system in to the ground so that it’s hanging on by a thread.

OP, I’m glad you’re in and being looked after. It’s clearly where she needs to be.

@Differentstarts Yes was all checked and I've also been checking myself today but it dropped down to 91/92 on the last check. I got really worried.

Because of course you know so much more about OP's daughter than she does.

Constipation can be life threatening in people with Learning Disabilities. It’s not the same as your average Jo suffering constipation.

Thankyou for the work you do but you can’t say that.
92 may be lower end of normal for some people but for some with certain issues it could be very significant.
My adult dd recently had an asthma attack. She rang 111, told them she was too unwell to drive herself to hospital and was on her own. They sent an ambulance. The crew said she ‘wasn’t too bad’ as she had sats of 91/92 however they took her to hospital. As soon as she got there she was taken to red majors then resus within mins. Her asthma is unstable and presents unusually so with sats of 91/92 she was in major trouble.
My DS however could have sats of 72 and ‘be stable’
Everyone is different.

Just a hug 💐

Honestly don't be the doctors know what they are doing. My daughter caught pneumonia just after she turned one and her oxygen level was in the mid 80s. A day later she was a different baby

@StopTheQtipWhenTheresResistance I’d echo trying to get hold of the Learning Disability nurse at the hospital if you can. They have always been really helpful when DS ( 21, minimally verbal autism and severe learning disabilities) goes in. I absolutely empathise with your situation as he would struggle with any vehicle that wasn’t his own car. I am thinking of you and hope your DD starts to recover soon.

FFS what is wrong with people? 111 sent the ambulance. The ambulance service agreed the DD needed one. And @starsparkle08 says she should have 'tried' a taxi? Today was not the day to experiment!!

OP I wish your DD a speedy recovery.

This is what needs to be answered. There isn’t one though is there?

What actually happens is a vulnerable person is massively distressed with attempts to use a taxi (remembering they’re already ill enough to warrant calling for help) and it ends up sitting in a queue for an ambulance anyway.

there just isn’t a provision for people who don’t fit into any solution currently available. This isn’t their fault and it’s certainly not their fault that the only option there is, is to use provision that also has to serve higher levels of need.

@Flamme when someone in your family cannot breathe - revisit this

Good grief, are we at the stage of blaming the parent of disabled individual with mental health issues who has collapsed and is mute?

Is it surprising that someone with learning disabilities might be more trusting of an ambulance than a taxi?

My DD has learning disabilities and we have to be on alert for issues around dehydration and constipation.

Managing the health of another individual who can't take responsibility for it themselves or even recognise danger signs is very challenging - MN of all places should be alert to that.

If you cant be polite to the people you’re sent to (as this man was) then you’re in the wrong job. It’s not their fault you don’t want to be there

Perhaps you should redirect your misplaced ire at the government.

Why are people on this thread being so awful!
Clearly have no idea what it's like to have a child with disabilities.
Things need to change still, I started my LD nurse training 20 years ago and there was such an emphasis on change in healthcare services for them and it doesn't sound like it's got much better.
I really hope she's ok and you find out what's wrong soon

@Bluelightbaby your advice is brilliant . I couldn’t do your job I’m to reactive to injustices

This isn’t the thread for a debate. Poor OP.

Sending lots of love to you and your daughter, she’s in the right place and hopefully she gets well soon x

My god, is this where we are in 2024?

Writing from Essex where we are being told that we can only use A&E if it’s life or limb threatening. Yet, 1000’s of houses are being built around us. I am deeply concerned, this is unacceptable, GPs need to be available beyond 8am to 6pm Mon-Fri, OOH is woefully inadequate in this area, we are paying into a system that isn’t there in our hour of need.

@StopTheQtipWhenTheresResistance I cannot believe you are being castigated for wanting medical treatment for your child, who has learning disabilities. What depraved world do we live in, here in the UK, where a human tells you to ignore your basic instincts.

It’s depressing to see this is our new normal, it’s pitiful.

You’re a real piece of work ain’t ya? If this thread is so triggering that you can’t help but be snarky, nitpicking, unhelpful and argumentative perhaps you should hide the thread

Please ignore the arseholes - once a thread is trending, some people see any thread as fair game. I'm glad you've got there and she's being seen.

Some of the comments on here baffle me.
I thought mn was supposed to be used as a way for mothers to support one and other??
Fine example some of you lot are setting to your children, you should be ashamed of yourselves

The OP has very politely asked those debating to do so elsewhere, if you are not here to hand hold please have the respect to follow her request.
A healthy blood oxygen is 95% or above so I understand you being concerned. She is in the right place though and they will monitor and give oxygen if needed. You did the right thing getting her on tonight.

@Flamme easy to say but resources are scarce . This is GP treatment stuff not an and e

Why?

OP's child who has a potentially life-threatening condition getting a Category 3 ambulance has not endangered people who need Category 1 ambulances.